Aortic Valve Replacement | Recovery Story

[@clarazelaya-gw8nc]

Thank you for sharing your experience. I had valve replacement 3 weeks ago. It has been the most painful experience I have gone through however keeping informed and knowing what to expect after surgery helped me get through.

[@Fish9133]

I'm going in for my last check-up before an AVR in about a month, trying to do as much research and this really helps, thank you!

[@UnbeatableCHD]

I'm so glad this interview helped you 🥰 Good luck with your AVR replacement 👍🏻

[@ZeroAdultLife]

Thank you for the video. I am 29 years old and am undergoing an aortic valve replacement this Wednesday. This video gives me hope. Thank You.

[@UnbeatableCHD]

I'm so glad! I wish you luck on Wednesday. I'll be thinking of you and wishing for a speedy recovery. Simon is always happy to chat with others about his experience. If you'd like to reach out to him his Instagram handle should be in the description of the video.

[@hammertime644]

I had this surgery at 15 years old in March 2011, tissue valve replacement. Recovery took about 2 months and I had an annoying cough through most of it. I'm currently super active, weightlifting and running. I did full contact martial arts, skiing, and squash back before covid happened. My last checkup in 2016 showed excellent and my next checkup is January 2022. Just a reference for anyone wondering about the tissue valve.

[@UnbeatableCHD]

Thank you for sharing your experience. I'm glad to hear you're doing so well 😊

[@iiencarriere2664]

Aortic and Mitral mechanical valves now at 68

[@amberdelligatti9635]

Thank you for the video. My 14 year old son is getting a aortic valve replacement in a few weeks. Its really nice to hear other peoples experiences.

[@UnbeatableCHD]

I'm so glad his experience has helped you! ❤️

[@jijijiji7290]

My 13 year old son has an bicuspid aortic valve. It was detected when he was 5 by coincidence. His leak was mild until last year it progressed to moderate and he is taking blood pressure medicine for a week now. We will go back to check in 6 months. I’m very nervous and confused! I just wanna share my story to support you and tell you that I’m sending prayers to you and your son! Wish you a smooth recovery!

[@amberdelligatti9635]

@@jijijiji7290 I know how scary it is to hear that kind of news. It is a good thing they were able to detect it and now can keep him monitored. I should be getting our surgery date soon. We had a thing called nuclear imaging done last week. I will keep you all posted! Thank you for the support! I will keep you and your son in my prayers❤

[@jijijiji7290]

@@amberdelligatti9635 Thank you!

[@Aortic-Valve-Replacement]

Glad you enjoyed the video. All the best for your sons procedure

[@CloverHLHS]

Great video, it’s nice to hear other people’s experiences

[@iiencarriere2664]

I had 2 mechanical heart valves

[@JancanCookKitchenProudIlocana]

I’ve had AVR with a mechanical one almost a year ago now, that was October 6, 2020. I started working after 3months. It’s always nice to hear others talking about the same experience that i had, like I always have this feeling that these are my people, count me in!

[@iiencarriere2664]

I have 2 mechanical heart valves and use a nasal spray to help. I was going full speed within 8 weeks 😅

[@ArcherAdventures]

Great video guys :) loved how you talked so in-depthly about recovery and building back up to where you were before

[@UnbeatableCHD]

Thanks so much!

[@davidpearlactorteacherbizman]

Thanks I am facing AVR and feel crushed

[@UnbeatableCHD]

You are definitely not alone!

[@davidpearlactorteacherbizman]

I feel alone I'm 58 I have no girlfriend no wife no kids everybody in all these cardiac groups always seems to have a family a partner my parents are dead my brother is dead my other brother is sick.. I just wanted to have a girlfriend before I died that seems to be impossible

[@UnbeatableCHD]

@@davidpearlactorteacherbizman It might be the same, but joining a Facebook group for those that have gone through the same surgery might be helpful.

[@bobshaw4063]

David Pearl when are you having the surgery ? Are you a Veteran ? I was Air Forcev ' 71 - ' 75 .

[@bobshaw4063]

@@davidpearlactorteacherbizman I hear ya . I have aqortic valve insufficiency & also aneurysm on my descending aorta . I was diagnosed decades ago with aortic valve insufficiency . I get annual Echocardiograms . EKG's are always abnormal as I was told I had a silent heart attack of unknown time frame . I'm single never married & I only have a sister that is till alive . Shes a nurse .

[@susie7345]

Hi where did you have your surgery ? I’m having mine in 2 weeks

[@Aortic-Valve-Replacement]

I had my surgery at the Royal Brompton on London.

[@susie7345]

Hi Simon not far from me I had mine done 3 and half weeks ago in Hammersmith hospital. Surgeon says it all went really well however I’m surprised at how I’m still getting out of breath when I do little bits of walking up and down my street. Maybe I’m wanting to much to soon lol.

[@brianstalley2415]

This is great to hear, I live in the UK, I am a bit older than this gentleman I am in line for having an aortic valve replacement I am going to be having a mechanical one made of graphite I am not sure how long I’ve had my problem but it was picked up two years ago when I had my first spine injection it was picked up from a pre-op assessment, and had been monitored for the last couple of years and the hospital consultant said will be monitoring yearly and before I know it I am now in line to have this operation which is very scary I am a bag of nerves already and I will be going into hospital next Thursday, July 1st & my operation date is on the second so anything I can watch like this give me some ideas not looking forward to it but we know it’s got to be done Big thank you for this video and the gentleman who is explaining. Brian

[@UnbeatableCHD]

I'm right there with you when it comes to nerves! I wish you the very best in July 🙂.

[@Aortic-Valve-Replacement]

All the best for your procedure, any questions feel free to reach out.

[@susie7345]

Hi Brian I know it’s very scary I had mine done almost 4 weeks ago now on 1st June. The care I received from the NHS in ICU and back on the ward after my surgery was fantastic. It’s a slower recovery then I thought but everyone heals differently. I’m managing little walks up and down my road now. All the very best for your surgery ❤️

[@dominator678]

I had Re sutura to my aortic valve...2009,2010 and 2011 year...

[@lilyandlogansmommy]

I just had heart replacement surgery in August 2020 and this video is extremely helpful. Also I had same issue with breathing my Doctor had me do a breathing treatment in office and prescribed me steroid I had immediate results.

[@UnbeatableCHD]

I'm so happy you found Simon's story helpful :) I hope you stay healthy and safe after your heart surgery.

[@serenheart8426]

Really amazing video!

[@fruitloops3718]

That's funny I didn't have a murmur when I was young but I grew a murmur as I became older. So I grew into a murmur.

[@Raj-ul9my]

Wrong choice to have mechanical Valve even though your young, their is not really any 40-60 year clinical trial data that checks the complication rate of blood clots for the mechanical valve and you don't have to have open heart surgery, a lot of surgeons do keyhole through right corner of chest 4-6mm cut. That valve can fail and the fact that your taking blood thinners means you can get a blood clot thanks to that valve. It will never eliminate that risk that valve had put you in just by taking warfin. These valves are faulty but they got around it by giving people warfin. How about later on if you needed other operations on other parts of your body? your blood would poor out and it will be hard for your body to clot the blood. First, repair it!!!!, second, use tissue valve, if you need that replacing, they can in the groin its easy and a very safe procedure. The last throw of the dice should be the mechanical valve, but it also depends on how badly damaged you valve was