Beat AML: Donna Kelley’s Story

[@michelleoywech100]

Yay for you!! 🎉 I hope your remission continues and hopefully the AML never comes back! As a mother of a teenager who was diagnosed in August of 2022, I absolutely understand the sense of being overwhelmed by how quickly everything went. He unfortunately did need chemotherapy, and a bone marrow transplant. He had an aggressive type that most kids don’t survive and is known to relapse and be even more aggressive and difficult to treat than the first time. He went into remission with the first round of chemo, that is rare. Was negative for any measurable disease after just 3 rounds he went through prior to his transplant. He had his transplant in January, is already off immunosuppressants, and has remained MRD negative.

[@carljh58]

Michelle, I was diagnosed with AML Nov.2022. I'm so glad that your son responded so well to his treatment.

[@michelleoywech100]

@@carljh58 I hope that you also have responded well to treatment, and are in remission.

[@colleenreese7395]

My son was diagnosed with AML at age 17 in 2016. In remission after first round , had 2 more rounds then a stem cell transplant with a 99% donor match. He is considered cured! It is miraculous!

[@michelleoywech100]

@@colleenreese7395 I’m so happy for your son! My son will be 16 in a few weeks. His day +180 post transplant biopsy is this coming Tuesday. I’m hoping that he is still MRD negative. His donor was my 14 year old son. They were half matched but they have the same blood type, similar age, similar weight. There’s been a few bumps in the road but nothing that had him back in the hospital. Currently he’s dealing with mild eczema/ chronic GVHD of the skin. It’s truly incredible how far treatments for this awful condition have come. Yet, so much more needs to be done so we stop losing people to this cancer.

[@bmac6426]

I’m worried going in with my son for a BMT. I’m praying 🙏 everything goes well. 🙏🙏🙏

[@ExtantFrodo2]

I was diagnosed with AML 13 years ago. I got admitted to the Cleveland Clinic that day (no procrastinating). It took 3 rounds of chemo to get rid of enough of my cancer cells to begin preparation for transplant. I lucked out having a sister with 8 out of 8 MHC's in common. Plus she was willing to fly in and get her hip drilled 40 times to try to save my life. What a gal! The short story is that I'm still alive, compared to the above option ... well there is no comparison. Any allogenic transplant (even with 8 out of 8 compatibility) means immunosupressors for the rest of your life. Therein is a huge difference in quality of life. The prominent in my mind is my current situation suffering shingles despite having gotten both shots over a year ago. They were ineffective at preventing my getting shingles. So I live in constant worry that I'm not resistant to anything despite having been revaccinated with all my childhood vaccinations. Donna is free of all that.

[@mikewagner8748]

AMEN, AMEN, AMEN

[@praveenbillakanti]

My mother diagnosed with AML in the month of may. She is 60 years old. Do you recommend bone marrow transplant for her age? I got mixed reviews. Some doctors are advising and some not. Please give your suggestions

[@TanyaParker-h5v]

Perez Robert Wilson Sandra Williams David

[@JulianBrook]

Why isn't this therapy being made available to the masses? We rushed experimental vaccines to save lives, but these kinds of targeted therapies aren't yet available for countless families in the process of losing loved ones. In Canada, targeted therapies aren't available at all. The delays in subsidising and making this kind of treatment available are no longer justifiable.

[@yaohan91]

Mainly because the targeted therapy drug is awfully expensive. Easily 5k USD per month..... Most of the government healthcare system couldn't afford that...

[@SerafinaKlimavicius]

Thanks for sharing such valuable information! I have a quick question: My OKX wallet holds some USDT, and I have the seed phrase. (behave today finger ski upon boy assault summer exhaust beauty stereo over). How can I transfer them to Binance?

[@mikewagner8748]

Praise to you Lord

[@meredithmckee785]

Great news for Donna! What's the pill called? Does she have to keep taking it?