Before it all started

[@lynnettehendersen1317]

I found your sweet girl & her bada$$ parents today through your DNR short. Had to come find out what Brooke’s diagnosis was. Found fellow paramedics doing their absolute best to give their beautiful baby the best quality of life they can for however long that lasts. You don’t listen to the haters girl… you give your girl your all and it shows. I wish there was a magic wand that help you stop blaming yourself for any of this. You rock!!

[@nataliefoster9318]

That's how I found them! What selfless parents to make that heartbreaking but the right (IMO after watching there videos and diagnoses etc) decision xz

[@kristy4619]

Me too

[@sherryllynnjones7077]

Gigi.. Your beach/signed a DNR short came across me tonight I'm almost speechless. I've never heard so many things at one time. I'm older, almost 70 & have memory problems. But I could never forget you & your family's struggles. I had to come here & find out what was going on. Almost speechless...you're prob sick of hearing how strong you are but it's almost like, how much can y'all take!!! I sub'd & will eventually try to see all the videos, etc. Praying for you all.🙏❤️🙏🦃🙏❤️🙏👵

[@kaykanut8778]

Same! I had to know more about this beautiful family!!

[@kiie1642]

This was such a sweet and kind message❤️🥰

[@morganfalkdesigns]

The first thing they teach pediatric residents is LISTEN TO THE MOTHER.

[@mem518]

I feel your pain, sorrow, anger, depression, disappointment, need to investigate everything, fear and all the other emotions imaginable when having a chronically ill child. My son was diagnosed with Neurofibromatosis 2 when he was 11. The 15 years of fighting a condition caused by a mutated gene was unbelievably painful, difficult and scary. The treatment was a series of surgeries, embolizations and off label medications. At first, One doctor misdiagnosed him with another degenerative disease and told me “ at least you won’t have to worry about a college fund, he’ll have the mind of a 6 year old by the time he’s 16”. Thanks, that’s comforting. Ugh. He fought this war for 15 years. He won several battles along the way, but at 26 he couldn’t fight any more. The first thing that I thought of was “ I wasn’t a good enough mother”. It’s been 15 years since his passing. I thought how to go on without him. Thankfully, his younger brother still needed me, ( my husband died that same year, 5 months earlier) so it was my saving grace. I will pray for you and your family that God will lead you to the best doctors and therapies that Brooke can get. 🙏🙏🙏🙏🙏

[@alishaparker315]

🥺💕💐

[@claricestarling4964]

My daughter was a preemie (29 weeks) and when she was born there was a social worker who came see me during labor and would come see my baby every day. She lined up all the services for us, applications, therapists, specialists, government programs, you name it. I thank God for her. Her name is Marilou. I would have never been able to navigate all that in my state. I couldn’t cope. I became confused and lethargic. I don’t remember much of that time. My poor baby girl. I was such a terrible mom. I’ve tried to make it up to her for those first few months. Stay strong!!! You’re amazing!

[@violetscreaming]

A genetic mutation is no more influenced by you than winning the lottery. Yes ypu got pregnant/bought a ticket but everything else is out of your hands. This would break so many people, stay strong and keep making every single day of your baby’s life as special as it can be. I’m so happy for me that I found your channel.

[@kiie1642]

1. My thoughts, prayers, love and light to you and your family. 2. I have 1 special needs child and 2 with chronic illnesses, 9 kids total so my husband and I empathize with you and yours. 3. You can only do what you can do and seems you're doing amazing!!!!!!!!!!! 4. I know you've been on the social media journey for a while now but PLEASE PLEASE... Don't waste your precious time, energy or emotional intelligence on addressing those who disagree or are negative (in won't work social media is brutal) and you don't have to explain any choice you make because it's yours to make and nobody knows your journey!!! Best of luck to you all!!!🥰❤️🥰❤️🥰❤️🥰

[@amenm1976]

Listen! You are a wonderful Momma, and your spouse is a wonderful Daddy! Brooke is blessed to have you both as parents, because since before her birth, you both have been following your instincts. That is the kind of parent a special needs person needs! My Mom and Dad did the same with my Autistic brother. He was born healthy, and at two weeks old he had to go back in the hospital for Viral Meningitis. He has had problems his whole life, but one thing that was constant, was he had a Mother that constantly fought for him. You are an amazing Mom! She has a good quality of life, because you give that to her, selflessly.

[@ChersJourney]

Just found your story. Your Strength is Amazing , Bless your family🙏🏻

[@deastover898]

Don't be so hard on yourself. I was an EMT and my daughter was having seizures also. Babies have them so many different ways. I didn't realize it until she was walking and she fell. It hit me and that is what kills me too but I have to let it go and what the Dr says isn't always right. Neurologist are jerks some of them. I fought for my daughter and finally got the diagnosis of chiari malformation. Your mom instincts are killer and your daughter is so lucky. You both are amazing 💝

[@millenialsmom2214]

I respect you so much for being honest. Even with a healthy baby, while your pregnant, all anyone ever talks about is how wonderful hacking a baby is. No one talks about the sleep deprivation, the changes in your body, the depression. Having a baby IS wonderful but it's also REALLY hard and no talks about that.

[@ninas4968]

Do not beat yourself up queen.. 🥺 you’re amazing and doing the best you can. ❤

[@Purplexedtc]

I love your honesty. Not too many EOULD have the balls to say what you did. You rock and I’m going to share this out

[@toyinalonge3659]

Thank you for sharing and being so transparent. I relate a lot to your story because my first child was diagnosed with spinal cord cancer at age 2, after over a year of me going back n forth with doctors because even as a first time mom, I knew something was wrong. You never know how strong you are until you find yourself in a situation like this. Keeping you and your family in my prayers!

[@kaykanut8778]

Nobody should ever judge anyone, even if they've been there. It takes an enormous amount of strength to make a decision like that for your child. I've never been in your situation and I hope if God forbid I ever am with one of my 4 daughters, that I'd have the strength you and your husband have. Prayers for your beautiful little family 💗

[@awalkthroughtorah6897]

I had to tell my best friend that her second child at 10 months was having seizures. But they were atypical. I happened to be babysitting and saw her have them. I had had them as a child. It was a hard time. Her daughter is an adult now, and is mostly deaf from constant ear infections. Her daughter is grown up now and they both got through her childhood.

[@maymaypooch]

Just found your channel from the DNR short. Thanks for sharing. I have a special needs daughter who’s 4. ❤

[@dawnmoore9783]

I’ve been following on TikTok for awhile and after you’re most recent update I looked up your KZbin and found this video. My mommy heart breaks for you. I understand what you meant about the if you knew there would be no quality of life for a child you’d terminate. & after hearing how they weren’t able to do proper scans of her brain I truly believe it was all gods plan. For whatever reason this baby girl was meant to be here. Nothing you did caused it. I’m a mom myself and although I’ve never had to deal with any of these types of things one of my twins used to have feberal seizures and that alone was horrible. I can’t imagine what you go through but I have been praying for you guys and it’s really made me stop and think of how lucky I am . I shouldn’t get made over a mess or the small things. And be thankful and blessed my kids can make a mess 😞.

[@reannarwhite2011]

I can’t and don’t want to imagine mama. My heart breaks for you! I’m so sorry

[@figmo397]

I don't see how anyone can possibly be critical of you and your husband. The two of you are doing everything you can and are clearly loving parents. What you're all going through is heartbreaking. The best thing you can do for yourselves is to not "Monday morning quarterback" everything that has happened. You are dealing with a very rare and unusual situation. You were lucky that the first doctor you saw was able to diagnose her. Many folks go years with that kind of thing without a diagnosis.

[@aleksandragruber1112]

You are such a brave woman and your daughter's disability is NOT your fault!

[@wiztribe]

Your baby girl Brooke is a beautiful blessing. I appreciate You sharing your history, your life, sharing Brooke!

[@ebbflowtarot2359]

Prayer. God can heal. He is the only way. Brooke I'm praying for you.

[@christi9815]

My son was vaccine injured with his 4 month old DpT shot. He was in the hospital for a week. Since then I have had to fight for him to never get that shot again. The school system has gave me hell but I have stood my ground.

[@animalwhisperer4653]

Your such a good mum keep fighting 🥰

[@kelsiephillips1066]

Gigi I love you! You are so strong and I’m so happy I met you (on TikTok) lol! I so wish I could hug you! You are by far the strongest mama I know! 💜💜 and brookie keep kicking ass and showing the world how strong you are💜💜💜

[@4sakesalive-75]

Crying right along with you ❤️

[@eleanor5585]

I've gone through your videos. I think you are amazing and what you're doing is incredible. I think your Daughter is beautiful and what a gorgeous family you are! I also wanted to say I think it's disgusting that people are making. It's on them honey! Sending so much love ❤❤❤

[@tonyaboggs5367]

I also agree with you. If I knew my child would not have any quality of life only that I'm barely moving at all I will terminate as well I agree with you 100%. An amazing mother and thank you for being honest

[@billielyons5168]

I just came across your channel tonight but I clicked the like button just because I hope it helps you get some good income idk anything about KZbin or how that works but I sure hope it helps I didn't hit the like button because I like cause your baby is sick. That's kinda what it felt like but please know that's truly not what I meant. I pray the Lord heals her and I pray all your tears are turned into blessings. Back 33 years ago when rsv First came out my son caught it h was 5 weeks old and the doctor told me it was like turning your hand if h lived or died so I do know that feeling of being told your child may die thank God he lived. I wouldn't wish that on my worst enemy ( maybe because it's not my enemy's child fault lol j/k) But please know I never hit the like button because I like her being sick. I'm praying for you and your family. I hope this isn't the first time you have been told this but your little girl looks just like her dad God bless you mom Stay strong and thank you and your husband for being on the front line for everybody. Your so much stronger than you think. I just have one question does this mean if you and your husband ever have other baby's they would have this gen?

[@justtracie8636]

You are an awesome badass mama. Brooke is a beautiful little angel.

[@amandacrazy5325]

Followed from TikTok. 💜💜💜

[@jennytillery6408]

God bless your journey!

[@amandacrazy5325]

You are amazingly strong mama.💜💜💜

[@Thewildnewberrys]

Wow this is almost identical to our story only difference is the genetic condition. My son was diagnosed with EIF4A2 we’ve been living out of a suitcase going back and forth to the hospital two hours away and just relapsed infantile spasms after prednisone controlled them. Literally made it three days off meds. I feel every word of this. It’s hard. Life is really hard on all of us right now.

[@awalkthroughtorah6897]

No one knows what they are getting into. 5 of my 6 kids have ADHD. I still don't know what I am doing half the time. 1st kid and 3rd kid were easy. 2 probably has mild asperger's and screamed for 6 months with acid reflux. The fact you are still standing means you're okay. And no, genetics can't be triggered by mom's stress. Forgive yourself for what you can't change. 💓

[@ehaszdawn]

From one mom to another ❤️

[@kayavibes]

Support you on that Brooke.

[@angeldaniels396]

You are an amazing mama

[@danied605]

You both were admitted for 29 days the connectivity is crazy . The medical system can be so infuriating because I’m sure they knew if you were still admitted you would get Medicaid they were wrong for that

[@AmandaCadorna]

Lordy. Piss poor care 😤 I'm with you on this, if the baby had a syndrome that gave them no quality of life, then I'd terminate too. I can't see having one of my kids just sit and suffer their entire life.

[@lisaloveschris2011]

This is literally just learning questions is all, no I'll feelings or etc. I just came across your stuff and story an I think you all r amazing. But the questions r do they have any idea why an how she came to have the diagnosis and all at once? An if you all have any more babies would they have any issues an do u all gonna have anymore?? U r awesome mom an keep good work up an prayers for that beautiful and sweet baby girl

[@MsTinkerbelle87]

You are not to blame.

[@aspenrobinson8797]

A person never knows how strong they are until they are in the situation and then you either do it because you have no choice . Lol. It always amazes me what a person can get use to if you have to .

[@morganfalkdesigns]

Stress cannot cause genetic mutations

[@sarahlock5487]

I’m following you I’ was on your live

[@maggiemurphy9314]

My mom have me at age 28 buttons line she had me at 27 weeks and we almost die thank you for sharing your story

[@beansmama8914]

Whoa Mama, I came across your story on KZbin shorts just this morning so I came here to see your whole story and I am just so amazed and awe struck by your strength, like you I had a rough pregnancy I however had placenta Previa which causes bleeding throughout pregnancy they wanted to keep me in hospital on bestest early but I didn't stay, my daughter was supposed to be born April but arrived in March at 35weeks 4lbs 5oz and spent time in NICU because of suck, swallow breath needed to be learned, no teaching in breastfeeding except a male hospital staff showing me how to use the hospital breast pump machine, just thinking so many parallels but you are so strong I don't think I could ever have been half the Mother you are. As for your daughter's seizures and you being a paramedic you may have not seen it because of being a first time Mom, we never think about it happening in babies, sometimes it can look like normal development movements and we never think of it happening to us or our children. I work in healthcare and see seizures at times taking care of adults with disabilities but one night my daughter was running a fever and I thought oh a cool bath should help and after I took her out I laid her down by the tv unit to put on her diaper, her head tilted back and I am thinking she is watching tv and in all reality I finally realize she is in full blown seizure, I panicked. Thank goodness for her Dad he kept a level head got ambulance service there and rode to the hospital with her, turned out to be the fever that caused it but they don't tell you these things can happen. You are a bad ass Mother and such a inspiration, your daughter is such a strong little person and your husband sounds like a amazing father and partner. I am really looking forward to learning more about your family, and your journey. ❤️🤘

[@alishaparker315]

I had a very very similar pregnancy w my youngest they didn’t kno wht caused his fluid to b low either but I think an iud done permanent damage to my uterus n the doctor wouldn’t tell me tht my son was born early I was hospitalized several times n had three drs apts a week w at least one ultrasound a week in between all tht so I understand all of that I’m commenting as I go thru yr video so I don’t forget wht I was going to say he was born early at five pounds too I was on bed rest the entire pregnancy tho it was awful I had spotting w him he was a csection Bc the fluid was so low he was suffocating they didn’t kno if they were to late or not atm I was at a drs apt they sent me across the street to the hosp for a csection I was never so scared in all my life😭 balling my eyes out if had two emergency cesctions before but this one scared me worse for the baby I guess where I was a lil older ya kno n mentally too Even tho I died while having my first child for a bit but this one was worse on me. I’m at the point rn where u got her into the new neurologist thank god for yr sanity n her health. I can’t imagine how stressful tht was I’m sorry. I have autoimmune diseases n to get a diagnosis of something is hard I understand that part but not for my child on tht level. My youngest has no hearing in his left ear Bc two of his hearing bones r fused thru his eardrum so there’s no way sound waves can bounce n make sound waves. Finding drs u trust for children is so hard I’m so happy u found a special dr for yr daughter. Bless y’all’s hearts her little body has been thru more than most 70yr olds😔. N staying at the hospitals r so hard on you I take care of my mom she’s waiting on a heart transplant but they put a lvad in while she waits Bc her heart was just worn out it’s incredible the things drs can do now it really is. I wish yr baby wasn’t sick honey or could magically be cured this story hurts my heart for you n her esp. I can imagine the ppl tht r goin/do judge yr every move but fuck them Bc they haven’t spent once second in yr shoes or even near them. I wish her all the happiness n you n yr husband happy holidays n new year. I hope u get to spend every min of every day w her I hope yr not having to work two jobs hub😔. Much love sent yr way💕💐🌹🤍

[@rebornswithkylie8847]

Brooklyn is adorable and unstoppable

[@Babylooney23]

Just wanna say you’re a bad ass !!!!! ❤

[@MJ-nv6mm]

I was always told in the church that children automatically go to heaven--They are innocent especially a handicapped child--Until the age that they develop cognitive reasoning skills around age 7-12 and can determine the difference between right and wrong

[@mommieminnesota3108]

Have you guys tried to get her I to the mayo clinic for a second opinion bc it sounds like you got alot of run around

[@BeyoncesWifey4]

Here from tik tok your story is beautiful

[@lisaloveschris2011]

And curious what it exactly means when the egg mutated and fertilized within the first 2 weeks an dropped before attached to wall??

[@amandacrazy5325]

💜💜💜💜💜💜💜💜

[@franpeterson7838]

Love you Gigi

[@reannastar1985]

Im so sorry that you had such a traumatic birth and breastfeeding experience💓 you are an amazing mama!!!

[@usbcmayo]

I'm from tiktok

[@reannastar1985]

I have 6 kids and Im still winging it🙏😂

[@laurendisanto3392]

💜💜💜💜💜

[@lucyvlogs9478]

I Love guys I have Epilepsy 💜💜💜 two

[@erino8716]

@16:00 never.... never Google that shit. 🙈🙈🙈

[@gingermoore4561]

I agree

[@kathleenframe4480]

Hunny, stress can NOT cause a genetic mutation ! You have got to forgive yourself for even thinking that.

[@Latte-girly90]

Wow in 2019 they didn’t have someone to help you breastfeed??? That’s what lactation consultants are for 😳 crazy they didn’t have those

[@cozetteoconnor1289]

Remember that killing the baby in utero is also putting them through pain and suffering- even more so. I know it's hard and inconvenient for you but her life is still valuable in God's Eyes- I just pray that God would reveal himself to you and that you would turn to Him. I know you must be going through so much- thank you for sharing your story honestly, God has a plan for us and our sweet children do make us more holy and more selfless- we may not understand it now.

[@Pirategirl4nightwish]

Not everyone believes in your god or a god at all.

[@sandylykens5730]

💜💜💜💜💜

[@chassitywhitaker986]

💜💜💜💜💜💜