Behind the Mystery Rare & Genetic Series - Endogenous Cushing's Syndrome

[@reneemansini7687]

My tumor was on my adrenal gland 2 yrs and google and I diagnosed cushings which was proved to be my diagnosis! You are your best advocate!

[@Romer411]

Well done Leslie 👍 you are the mouth piece sufferers need ❤️🙏

[@florabraswell8423]

Thank you for sharing your story, l have been sick with autoimmune diseases for over 30 years and still are having problems , these things need to become easier, before people reach old age ! Thank You 🙏 n God Bless You

[@Mrs.TrinaBurwell]

😢😢 I understand because this is my current plight.

[@lupeavila4595]

I think I have this and need a good doctor and the funds

[@gwenwilson2787]

My daughter is 19 and been dealing with this shit fir ten years !!! Finally dx three days ago . Smfh . Now she has to get surgery in this pandemic .

[@CSRFrecordings]

Hi Gwen, how is your daughter doing? Please let us know if we can be of any assistance with support or information. [e-mail]

[@birdmp7573]

Our 19 yr old daughter is getting mri on pituitary next week. her acth was very high along with cortisol level. no period for years levels show she is post menopause. She feels all alone and hasn't told her small amount of friends yet. We are waiting patiently taking each day moment by moment. would love to hear how your daughter is doing?

[@huitrecouture]

It's not rare. It's underdiagnosed. It's avoided by Endos who would prefer an easy life of telling people to diet. And it's increasing since Covid, MY symptoms beginning within hours of the Covid VAX, which resides in the adrenals.

[@Suesoulsister]

I have had been seen now by 4 endocrinologist which i have had 2 saliva test come back high and also a 2ml pituitary tumor located by MRI of brain.Now i have been referred to a new endocrinologist that refuses to do the saliva test due to my sleep being irregular and because i smoke . I can understand that i would need to stop smoking for 24 hours to take the saliva test ( but never had to stop before but for 4 hours prior to test) but to regulate my sleep when i live with other chronic pain disease's isn't going to ever happen . So any info to help me out would be greatly appreciated.

[@Ju5-v4o]

This is cushings disease - NOT cushings syndrome. You kept calling it syndrome. The two are different conditions with different causes. Why the doctor doesn’t even pick up on this is baffling.

[@Unocd]

My friend has Prader Willi Syndrome