Can patients with Polycythemia Vera (PV) live a normal lifespan?

MPN expert, Dr. Abu-Zeinah answers an important question and the results may surprise you. Listen for details.

[@douglasschmidt2869]

I was diagnosed at 25. Im 44 now

[@deekshithnarayana5256]

Hi sir

[@reifyshku4906]

How is it going man?

[@mrose4132]

If the avg age of diagnosis and treatment at Cornell is 50 yrs and they subsequently develop AML at 30 yrs they've already lived a normal life-span.

[@guruprasadkm7416]

Is it advisable to supplement with Glycine and NAC for PV patients?

[@leesmith6101]

By the time he gets to the point you'll die from old age, Goddamn he was aggravating

[@stevewatts3588]

Agreed

[@ruthierley2539]

What happens at the end of life

[@travisbain616]

What about a study in people in their 30s?

[@babumanu895]

u can live upto age of 65 to 70 provide u don’t smoke , have a strict balanced diet with routine checkups

[@kuleshwartandan784]

@@babumanu895 really?

[@MindSurf248]

​@@kuleshwartandan784 I believe in the only meta study I saw that split into 3 qge groups, under 40s had q significantly higher span something like 37 year median.

[@MindSurf248]

37 years from diagnosis I mean

[@anshumanpati7773]

​@@kuleshwartandan784hi bhai...from India...abhi kaise ho ??kitne saal ho gaye treatment ko??Kahan se treatment lete ho ??

[@mrose4132]

What is the financial cost of treating PV with interferon alpha?

[@babumanu895]

6000 $ a month for 1year without insurance, there after once in a month costing 1.5k $ for upto 5 years then if ur lucky no medicines required only routine blood works

[@4af]

zero $ if have insurance and a foundation grant to cover copayments

[@chrisoliver9442]

I was diagnosed with this 2 years ago and I am taking hydrea for it ! It takes a lot out of you ! I lost almost 40 pounds in about 3 months but I've managed to gain a little weight back

[@tammywade3649]

I was 10, when I found out

[@tammywade3649]

Stroke at 46, just turned 60!

[@KhashayarKamali]

What happened at 46? And 60? What’s your treatment? You live with pv for 50 years?

[@tammywade3649]

@@KhashayarKamali I take a prescription blood thinner, I had a stroke at 46, left me with right side weakness and short term memory problems

[@KhashayarKamali]

@@tammywade3649 oo I hope you will be ok, so how many years do you have pv? & do you get interfron or another drug for your pv?

[@ethanzatezalo5046]

found at at 16 kinda in the same situation. Definitely giving me some hope 😊

[@jillfisher283]

Telling us nothing....