Cancer Survivorship 101: “How I Became a Cancer Survivor Advocate”

“How I Became a Cancer Survivor Advocate” with Stacey Tinianov, BCPA
Due to the quarantine, we had to cancel our annual in-person Cancer Survivorship 101 event that was planned for June, 2020. Instead, we created a series of video lectures presented here on our website and our KZbin page featuring the speakers that were to be highlighted at the event.
Stacey Tinianov, BCPA
Patient/Community Engagement and Advocacy Consultant
Stacey Tinianov is an early stage breast cancer thriver, a board certified patient advocate, and a community engagement consultant in the San Francisco Bay area. Since her diagnosis and treatment for breast cancer, Stacey has become a vocal advocate for patient engagement and empowerment via collaborative education; community building; shared decision making; health data access; and person-centered design. When it comes to person-centered advocacy, her goal is to build bridges between science, industry, policy and communities to improve understanding and participation in both directions in order to ultimately deliver accessible, quality, person-centered care and accelerate research.
Stacey is a co-founder of Advocates for Collaborative Education (ACE); an advisor to Ciitizen, CareLoop, and Pulse for Good; an advisory board member of Camp Kesem SCU and the California Precision Medicine Consortium (CaPMC); founding member of Kaiser Santa Clara’s Member Patient Advisory Council (MPAC); a research advocate for Komen AIS and UCSF’s Breast Science Advocacy Core (BSAC); and a policy advocate for the National Coalition for Cancer Survivorship (NCCS). She is co-chair of the Patient Advisory Council for the COVID-19 and Cancer Consortium (CCC19) and an individual member of CARIN Alliance and the Palliative Care Advocacy Initiative.
Survivor Journeys has been a non-profit organization since March, 2015. Its origins, began during the year-long medical quarantine Dr Jay Burton lived through after his stem cell transplant for Acute Myeloid Leukemia which ended in late October 2011. Dr Burton’s emotional and social support experiences prompted speaking engagements about cancer survivorship. The community interest generated from these talks, as well as the lack of emotional and support services for cancer survivors in our region, led to the creation of Survivor Journeys. Learn more at survivorourneys.org