Candace & Anne - Living & Caregiving with Coproporphyria

  Рет қаралды 1,731

Alnylam Pharmaceuticals

Alnylam Pharmaceuticals

Күн бұрын

This video was created for U.S. audiences.
Candace, living with hereditary coproporphyria, and her mother and caregiver, Anne, discuss how her porphyric pain and associated attacks have greatly impacted her life.
Porphyrias are a family of rare, genetic diseases characterized by potentially life-threatening attacks and, for many patients, chronic debilitating symptoms that negatively impact daily functioning and quality of life. Learn more: www.alnylam.com...
AS1-USA-00001-092018

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