CARING FOR LATE STAGE HD

Late stage HD requires round-the-clock nursing care, which can be difficult to find because of the nature of Huntington disease. Get practical tips about how to care for individuals with late stage HD. For more information, visit www.huntingtonstudygroup.org

[@oceannaperry7424]

my mom died last July due to huntingtons malnutrition,she was only 80-85lbs when she died of a severe ecoli/and pneumonia/sepsis. she didn't have anything left and could not fight,and her pneumonia turned into MRSA.She was perfectly fine 3 days prior to being this sick..talking to me telling me she is ok. two days later when I was supposed to pick her up on july 1st, she was found in her apartment slipping into a coma from septic shock.....she used meth to subside the hunger in her body,and feelings.....she was such a good mom/grandmother/friend...RIP-Rhonda Francis-We love you to the moon and back-

[@autumnconway3642]

I'm so sorry for your loss.

[@debwoods3831]

My husband was able to get into a clinical trial Dr. Sung lead at UAB. Even though the trial ended abruptly, it is coming back in a different way but my husband doesn’t qualify. I know without a doubt that we are heading towards end stage. I’m glad Dr. Sung follows my husband’s care.

[@isabell462]

I'm helping my friend he don't even what stage his at ..knowing him for pass 8yrs. .he just told me last year..sadly I can see his going down..I'm watching videos to help him as much as I can😢😢😢😢😢😢

[@bal0076]

It's very hard to see someone that was so active and this disease takes everything away from them My bro inlaw has Huntington's and to see the way he was and what he has become.its very hard for my sister she is very supportive of him. He has 4 daughters and the chance for them to have this heredity disease is 50/50 He only found out 5 years ago that he had HDat the age of 49 and it has been downhill ever since He has gone from being independent and hard working to being reliant on his wife and kids for everything from feeding to bathing Sad so sad His eldest daughter gets married this weekend and that is the only 1 he will see getting married The way he is deteriorating He won't see another year. 😥😥😥😥😥

[@newsing33]

God bless you both.

[@dorisjohns8124]

Yes, God bless you. With my grandson the professionals who diagnosed has been right there with profound support. This is so sad it appears your friend does not have that support. God has blessed your friend with you!

[@smileyface5908]

Thank you so helpful

[@georgen9755]

injury prevention communicate latest but not late, cedar Brooklyn care facility, we need to end this hunting disease ,

[@pirateslife1679]

hi my uncle is suffering from chorea his age is around 48 year please there is any kind of treatment for curing them give me please

[@mnnomad1870]

Best friend from the military has had it since 2002. Now in hospice/ palliative care. Sad...

[@georgen9755]

hygiene, end of life care , late stage HD , abnormal movements, TV remote, non pharmacology treatment, cedar Brooklyn facility

[@ХалиматЯмадаева28]

my ex boyfriend has it but i dont understand why he is declining so fast . its been 3 years since he has syptoms he was diagnose this summer . Now i dont understand what he says

[@marioreoyan3405]

food intake maybe or existing medical condition. to speedy in his condition

[@taleandclawrock2606]

Some people have a more severe and faster, earlier developing form, Huntingtons occurs due to too many copies of a specific gene, over 40, but some have higher numbers, it usually occurs younger and faster for those.

[@coraldell3091]

​@@taleandclawrock2606 that is called juvenile HD. Which is referred to someone under 21 yrs of age.

[@tiarrahopkins4682]

my mother, aunt and uncle all have Huntington.

[@oceannaperry7424]

same here. im getting my results in a bout a week...my grandmothers 4 children all have it and only one is left.

[@hudamohammed892]

@@oceannaperry7424i hope u ate negative

[@oceannaperry7424]

@@hudamohammed892 im positive cag repeat of 43