Thank you for sharing 💕. My 28 year old daughter is just starting her life with Pompe. As a mom I am shattered because I gave it to her. Your video is most encouraging. 💝
@southernreign110 ай бұрын
Thank you for your story. I am 55 and I have yet to be confirmed with LOPD. I recently been told I have a pathogenic homogeneous variant of the GAA disease. I have muscle pain. Yet, waiting on further tests.