Catherine's journey with Pompe Disease.

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Australian Pompe's Association

Australian Pompe's Association

Күн бұрын

Пікірлер: 2
@valerieTxRealtor
@valerieTxRealtor 2 ай бұрын
Thank you for sharing 💕. My 28 year old daughter is just starting her life with Pompe. As a mom I am shattered because I gave it to her. Your video is most encouraging. 💝
@southernreign1
@southernreign1 10 ай бұрын
Thank you for your story. I am 55 and I have yet to be confirmed with LOPD. I recently been told I have a pathogenic homogeneous variant of the GAA disease. I have muscle pain. Yet, waiting on further tests.
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