[CC] The Tea about OSDD 1A and 1B with The Alexandrite System

Welcome to this video by The Plural Association Nonprofit about OSDD 1A and 1B. This video is in addition to the article we wrote on this topic, we suggest you read the article before you watch the video: powertotheplurals.com/osdd
Link to the at this time not yet peer reviewed study on the prevalence of dissociative experiences: www.researchgate.net/publication/334625332_The_prevalence_of_Dissociative_Disorders_and_dissociative_experiences_in_college_populations_a_meta-analysis_of_98_studies_Author_Accepted_Copy
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[@Solidude4]

I had no idea OSDD 1a and 1b weren't in the DSM wow! Just goes to show how easy it is for misinformation to spread. ~Wesley

[@abbiepancakeeater52]

So THAT'S why my therapist didn't see it in the DSM 0: the more you know

[@powertotheplurals]

Thank you both, that is why we made this video :)

[@Flusterette]

Same with CPTSD vs PTSD.

[@sora607]

I also had no idea that 1B and 1A weren’t in the DSM. I’m kind of (well, very, honestly) frustrated about that because of exactly what you said - there are so many different cases that are possible that don’t fit into those examples. Not to get too much into our life, but we’ve been through such a horrible experience of being invalidated and internalizing these standards for multiplicity that people have, and it’s made it SO much harder to be healthy, and to accept what’s happening. I still have panic/anxiety attacks over whether or not I’m “real.” And I also just realized why my therapist didn’t know what I was talking about when I brought up the different types... Wow. Thank you for talking about this.

[@sora607]

(Also this totally isn’t a dig on anyone who likes those terms and feels that they fit them. I think that’s great for anyone who does feel like that, just like you said. 😁)

[@DeeTermhyndSurviva]

osdd1B system here and so thankful there is this video now - coz there is not much educational videos out there on OSDD - and even the differences between OSDD and DID. We can relate to the Alexandrite system's experiences and it was really helpful for us to hear that others are the same as us. We also experience medical professionals and therapists who have no idea what OSDD is and have never heard of it. Thanks for making this video :) Surviva Gang :)

[@powertotheplurals]

Thank you for watching and your comment!

[@LluviaSelenita]

This was very validating, thank you. We red the article before and it made us feel better. We're still questioning, but knowing about just being plural and having our own plural experience, that's super important. We experience a lot of stress over the fact that we don't fully fit in most experiences we hear about, both from systems and singlets, and it's a very lonely space in between. But OSDD-1 works and that's a relief. Thanks for this wonderful work. It's lovely to see how y'all ask a question and really listen to the answer, both of you. Beautiful.

[@binarysnow3762]

If I had to be honest with you, I agree it should be put under an umbrella, BUT. I do not believe DID should be that umbrella term, due to it's known definition. With DID black out amnisea is a well known experience. OSDD, not so much. I'd much prefure some form of spectrum disorder, since manyness is very much on a spectrum itself. I worry saying DID as an umbrella might cause those without the most common distinction not to get the diagnosis they need. It's already hard for them to get either diagnosis. While saying Disosiative Identity SPECTRUM Disorder would show there are more presentations then total blackout and distinct alters, even to lesser experienced or older phyc teams who aren't caught up fully with the new terms. Maybe that's just a me thing, idk. I've seen a lot of systems denied help for some very dumb reasons already ^^" maybe labeling it as a spectrum would fix that issue.

[@powertotheplurals]

Thank you. Maybe it would indeed, we all know it's very needed for people to be taken serious and that the need to exaggerate signs and symptoms in order to get validated and/or receive diagnosis is harmful at least and possibly outright dangerous.

[@Flusterette]

I agree about spectrum. I have strange symptoms. Firstly I'm diagnosed PTSD (but really: CPTSD both by life history & symptom presentation) with affiliated depression, anxiety, eating disorder not otherwise specified, & many dissociative symptoms. But I'm definitely singular. But it's complicated. I often experience depersonalization, like I'm an empty puppet. It's like parts of me animate me & at that point my demeanour changes, my memory is atrocious (short & long-term), I've had "integrations" involving flashback memories & aspects of myself & being different henceforth (my sense of height & time changed in one example, my hearing got more sensitive, I've had weird sensations in my brain other times). Growing up, I would reinvent myself, putting up a big block between who I was & who I was becoming, & just transforming. Often forgetting previous chunks of my life. I've become so shut-down I've been catatonic. I dissociate in conversations sometimes. And I seem to be/feel different after. I can want to do something. Then immediately be overruled by opposing action (I can't will myself to do things or not do things sometimes) -- like a saboteur. I don't know how to talk about it. Because I'm not trying to sound "worse off" than I am, for attention. I'm glad I don't have the extra struggles of folks with more extreme dissociative disorders But there's something more going on here than what most more neutral-typical folks experience.

[@incanthatus8182]

Yeah, definitely for making it a spectrum! There's so many people who don't neatly fit into the box, or their position on the spectrum changes over time. I really think that it would make it more obvious to people that it's not all one and the same, but that there are still underlying similarities

[@KK-qd6ro]

@@Flusterette I have a lot in common with you. PTSD, depression, anxiety. I also have diagnosis of autism.I don't feel like I have separate personalities, but definitely aware of different parts of me.You are the first person I have seen comment on body awareness. It sounds so weird but sometimes I feel so tall I think I might fall . I have some memories with out sound. One was a large earthquake I could see people injured and screaming but no sound.

[@kaelin8775]

i fully agree with this, im the host of a non-switching system (so im basically front-stuck permanently) and our experience as a system is so completely different from DID and even OSDD that we dont really feel welcome in those spaces, having DID as 1 disorder with OSDD being a seperate but related spectrum disorder would be so useful to display all the different types of plurality

[@ridicuryder8095]

Go with "Median or Mid-Continuum" system if you have a problem with OSDD 1A or !B. There are benefits in making finer distinctions for some people. The DSM was primarily designed as a Billing Tool. More refined categories (symptom clusters) are sprouting up around the Basic DSM which means more awareness of the VAST DIVERSITY of Systems. A provider can still bill for OSDD regardless of whether the patient is 1A or 1B. It seems much more important to understand the nuances when treating patients and their subtle differences effectively than conforming to Billing Codes. Another major consideration is that Systems are often more aware and sensitive with their Lived Experience...it's not surprising that Systems are including refinements to Symptom Clusters AHEAD OF SINGLET MDs.

[@powertotheplurals]

The article and the video state multiple times that we are in favor of people using language they prefer and fits their system best, I have no problem with OSDD-1A or 1B. I have a problem with pretending OSDD 1A and 1B comes from clinical texts when it is clearly does not.

[@thewindchimesystem]

Thanks so much for doing this, @The Alexandrite System and @Power to the Plurals! 💖 You all are doing such a great service for plural systems. 🎶☕

[@powertotheplurals]

Thank you for watching the video! It's an honor.

[@Brainjoy01]

With the DES ii, I scored a DID level. My therapist didn't believe in DID so she wrote down OSDD. It is invalidating, thank you for sharing that Claudia

[@allie54774]

"We don't know who's fronting or a switch has happened" YES. I have osdd and definitely understand that!! It's confusing. I've known about it now for about 5 years or so and still struggle to understand who's kind of like..."in control" at any given moment. Its like there's a bunch of us but we're very blendy majority of the time. Idk it's hard to explain it. I've got other stuff going on too like audhd, cptsd & bpd so it's a fun combination 😢🙃 to try to deal with & learn to live with.

[@neist]

The A and B designations are commonly referred to by individuals in the community from the distinction/example of "1." The example I'm referring to states that the first example "includes identity disturbance associated with less than marked discontinuities in sense of self and agency, or alterations of identity or episodes of possession in an individual who reports no dissociative amnesia." A being the first half of the compound sentence and B in the second half. Pp. 306-307. While what you're saying is true, what others are saying isn't "untrue" either. It's just a label that's commonly used to dileneate the first example.

[@Alex-ed8tq]

I once had a suspicion about DID but then let it be because it didn’t fit me. I struggle hard with dissasociation (I got diagnosed with ADHD, aspergers, PTSD but it doesn’t fit right. I don’t know if I could say I have alters as they are more like versions of me - and some trauma holders - and I cant reach them. Sometimes I feel like there is someone fighting for control but then sometimes i am so overwhelmed by me that I would give everything to just have someone else front - but nothing. I can’t access alters and I don’t even know if they’re there but i do know somehow. I have insane memory gaps and I struggle more like with no one really being in the body. I have one ‚mood‘ that is a child, a dangerous self destructive one (more a phantom) and a protector (male, i do have a name running around - Tristan) and I know some physical attributes of them. But I never hear them and I cant communicate, when one comes out it feels like we kinda merge or they sit on me on the drivers seat. Im fighting dissasociation because i really want to avoid going into child mode again or the dangerous one hurting the body. Im scared and unsure. I want to get tested but im scared.

[@Alex-ed8tq]

Update: got diagnosed

[@atlaszurum]

Same experience..happy u could get diagnosed

[@kaelin8775]

i have a very similar experience. im the host, but i cant switch. i have NO communication besides occasionally hearing 1 word and thinking its me, or just "knowing" without knowing how. no matter how hard i try i cant switch out, but i do sometimes feel like a slight layer is over the top of me, affecting who i am (so like passive influence or slight co-con but im like 90% in control)

[@lilithking9193]

So grateful for this video with lived experience!

[@powertotheplurals]

So glad! Thank you

[@CRYSTALNOODLES]

We relate to the umbrella theory 100%

[@powertotheplurals]

Yes, same.

[@jamygarcia9566]

This is a very helpful discussion for me. I really need info about OSDD 1A...I'm new and confused

[@lbfaith]

What is the definition of ‘ordinary forgetfulness’? My mother nicknamed me (don’t laugh!! Cuz I hate it) as a kid, Forgetti Spaghetti bc I always forgot stuff. I still do but now I’m older I get wronged for it (by my husband who doesn’t know the extent of my trauma just the fact of the one incident not the plurality of traumas I’ve had) he always says your an adult, start being responsible. Be responsible you can’t be forgetting stuff like this and that or grow up idk why you crying. You’re only crying cuz you know I gotta spot for when you cry and this and that. No. Sometimes it just happens out of no where. Yes I shut down and start crying like a kid. I can’t help it. But I can’t tell him my traumas. He’s not easy to talk to.

[@gothboithick]

don’t tell him your trauma. only tell him information that’s directly currently relevant, like explaining what amnesia is and that it’s not anything to do with being irresponsible, what types of things might make you dissociate, explain that certain things can make you act certain ways (crying, seeming zoned out, x thing always seems to make me a bit grumpy, etc) and it’s not really within your control. i hope this helps. there are things you might be able to try, but if he’s often insensitive or invalidating about your feelings, don’t share any deeply serious personal trauma. i’m not a professional so this is just advice from someone who’s been in relationships that sound a bit like yours.

[@deadsoon]

Your husband sounds like a piece of work. Insensitive and uncaring.

[@tymondabrowski12]

That sounds like gaslighting :/

[@TheGrandy123]

I ve OSDD. Thank you for this video. Hard to find content about it.

[@slightlyinfernal3415]

awesome video, very validating

[@theblanketfortcohort7332]

What are the 7 examples of OSDD in the DSM?? And yeah, we struggle because we don't have DID but we don't exactly meet the criteria for OSDD-1b or OSDD-1a, we have experiences that fit into both. All the DID websites talk about OSDD being split into 1a, 1b, 2a, 2b etc... Even CTAD talks about it? So are those categories not in the DSM at all or are those the examples??

[@wormsontoast]

Those are the examples I'm pretty sure

[@wormsontoast]

They are in the dsm they're just not the diagnosistic term used

[@oolongtherabbit9131]

I'm not a medical professional, but if you have experiences of both OSDD-1b and -1a, you would be diagnosed with simply OSDD-1. That, or Unspecified Dissociative Disorder (UDD). I hope this helps :))

[@lorainisrael]

In terms of names, I would really prefer if they were not called disorders, because they are not really a dis-order, just a different type of order. And also, having only 2 - 3 distinct groups is not very helpful, as it is a spectrum. I would rather describe myself as a person with dissociative experiences and multiple identities.

[@lbfaith]

Honestly they should just put all OSDD with DID as a subcategory. DID as main but for someone with OSDD either 1 or 2 or however they have it call it DID 1 For full blow. DID. Or DID 2 idk. OSDD patients should still be validated as still having that traumatic experience(s) and still have the DID diagnosis if they wanted it I guess. I’m new to this whole idea of even remotely may be thinking I even have it. I’m watching all the videos on it before even bringing it up as a possibility. I’m in the search of a therapist who specializes in PTSD And personality disorders. Not very many in my insurances network. Shame.

[@kyoudakou5232]

What if someone has no amnesia, and the alters don’t talk or front, so making the distinction is hard, does that still count? Like they’re there but no one knows how to make their presence known?

[@powertotheplurals]

Yes, there are definitly OSDD and Plurals (Some Median Systems for example) with that experience! Totally valid!

[@kyoudakou5232]

I tried to talk to them yesterday, and they might have replied though, so we’re working on it.

[@chika3150]

@@kyoudakou5232 I wonder if it would count as OSDD if those parts don't respond back but only talk. Maybe rarely.