CEO of EB Research Partnership Michael Hund on Venture Philanthropy | Venture into Cures

[@azadabedin5912]

My baby is six months old, eight days old and has been suffering from epi dermotysis simplex since birth. I have tried a lot of treatments but there is no benefit. So I am in trouble. I don't know what to do now. Please can you please give me a suggestion what can I do now.

[@willie1220]

Good day, I am 32 years old and have EBS. I want to motivate you to not lose hope. With simplex I am able to live a full life as i became older. My chidlhood was not easy, but currently things are looking good. I hope this for your child as well. He or she will grow up strong.