"Chiari: A Fluid Disorder" - Mark G. Luciano, MD, PhD

[@chrisellington3560]

THIS! This is such a fabulous video! Every Chiarian should watch this and especially before a decompression surgery is considered. Thank you for this wonderful, informative video!!!

[@michellecole7936]

This video is sooooo good, and so very important (perhaps even the most important) for people to know before being decompressed! Thank you CSF for doing all that you do for our community!

[@BobbyJonesCSF]

Thank you for helping share these messages! They are so important!

[@kmkkniat]

This video!!!!! Thank you so much. I am going to be sharing this with my neurosurgeon and my daughters peds neurosurgeon. Her Neuro does not believe in the CINE flow studies as important. This video will be a blessing for him and all Drs and patients. I will be sharing it also in my chiari groups as well. Again thank you so much.

[@loveKG26]

Wow what are they thinking it’s very important.

[@kerenleah]

Great video - recommended to me by lovely admins of a wonderful Facebook group for Chiari. Such a helpful presentation, thank you 👍

[@paco3447]

Can an asymmetric mild tonsilar herniation cause thoracic level spinal diverticula CSF leak ruptures and CSF venous fistulas due some sort of estasis? Or those CSF leaking cysts be the responsible of such mild unilateral tonsillar herniation?

[@loveKG26]

Probably sounds quite serious and complicated.

[@Carlos-od7jr]

What makes your heart rate elevate when having chiari

[@loveKG26]

I think I have a CSF leak into my left ear since 2010 I had hydrocephalus since about 2014 for sure when my horns were commented on by a DR or Dr assistant. Saying they looked like the devils horns. Only way horns look like that inside your brain is with hydrocephalus. They lies to me at a university hospital I assume now…. Years later in 2020 I got so sick been having horrible increase in head pain pressure and new dizziness…. All chalked up to be epilepsy still. At least I got some steroids that helped immensely. Even went seizure free for over a year after ten years straight of no changes….. My neuro didn’t even care…. Glad that nystagmus is gone and a lot of the headaches for these past years but starting g to come back like I suspected and I have no way to get proper treatment diagnosis even slim acknowledgement… Going into seizures while awake before steroids it was only in my sleep while I’m squishing brain stem as I sleep making it dangerous… now it’s worse maybe? I assume I’m having stoke like seizures after syncopal events. My necks so tense each day it cracks everywhere I had a X-ray tech say I has cysts all through my neck it’s just super scary. My sons now 9 this week. I just had stats in my eyes after blowing my nose.