Chiari Malformation Part 2 (Severity, Symptoms) by Dr. David Saperstein

[@lr6294]

Where is this neurologist? I feel so ignored on my symptoms even though I’ve had decompression surgery 5 years ago with minimal relief but also have cervical stenosis being ignored. I’m being told to “deal with residual symptoms” but running out of options to treat my symptoms…

[@centerforcomplexneurology]

We are located at 1010 E McDowell Rd, Phoenix, Arizona at the Center for Complex Neurology, EDS & POTS. bit.ly/LearnMore_EDS

[@hlrivera3357]

Just found out today I have chiari today haven’t found out what type yet

[@ANDKCNYC]

Would symptoms basically be the same? For both

[@michaeldove4929]

This is terrifying

[@sallyhoffberg8224]

I have Chiari malformation had surgery 19 years ago been fine every since

[@heatherdiaz4380]

In California. My 7 year old daughter had migraines with nausea that got worse over time. This prompted the pediatrician to order an MRI. From the result, the doctor gave a chiari Malformation diagnosis. She was referred to see a neurologist. My findings are that most neurologists arent familiar with Chiari Malformations and only have experience in Migraine headaches. How do I get the neurologist to refferr my daughter to a pediatric Neurosurgeon who can give a medical review on my daughter Chiari Malformation. Im concerned that the neurologist may only treat her with regard to pain medication and pain management.

[@centerforcomplexneurology]

Sorry to hear this is happening to her. Unfortunately, we only see patients 16+ and aren't familiar with anyone located in California.

[@ClintGrantham]

I'm in Alabama. I need help. My condition is getting worse, much worse in fact. I've been to 3 neurologist and haven't had any real relief.

[@centerforcomplexneurology]

Sorry you're going through that. Please reach out on our website using Klara if you'd like to inquire about scheduling.

[@AbbyPugh-os5jr]

Where is this guy located!? I want him to be my doc!

[@centerforcomplexneurology]

He's from the Center for Complex Neurology, EDS & POTS located at 1010 E McDowell Rd, Phoenix, Arizona