Grace's Story | Nephrotic Syndrome | UPMC Children's Hospital of Pittsburgh

[@DaveGII-id6dk]

I had nephrotic syndrome and "outgrew" it at 24 even though I had puberty years before. Don't lose faith. When it's time it's time

[@arjumandakbar4119]

How long did it take?

[@DaveGII-id6dk]

@@arjumandakbar4119 I was 21

[@DaveGII-id6dk]

21 years

[@arjumandakbar4119]

I'm struggling with the disease, haven't spoke to a single person with the same condition. Can you share your contact detail to discuss a few things with you?

[@DaveGII-id6dk]

@@arjumandakbar4119 I'm more than happy to speak with you here.

[@Jaisee14]

What a beautiful girl.

[@Tishanb]

My son is 17 and this came out of the blue.

[@princechannel2154]

How is he now?

[@AnnaHovanec]

I never would have known because your so beautiful and this was a beautiful video! 💞💞💞

[@paulfiniak5123]

My son is 4years old and he's being relapsing every month he's being ending up in the hospital every month is such I feel so bad he's gotta go tru this

[@DaveGII-id6dk]

I was hospitalized twice for it...age 4 and 6...just know the care is much better today than it was 30 years ago when I had it.

[@ravipandey3200]

​@@DaveGII-id6dkAt what age did you outgrew from this disease?

[@DaveGII-id6dk]

@@ravipandey3200 19

[@pedrorosario7060]

i have that same thing!

[@osvaldog1840]

How did you know you had the disease?

[@ruth.k14]

@@osvaldog1840through biopsy

[@tazneemtendo3065]

I have the same thing

[@ileshsharma3305]

has anyone come out of this deases 100% ?

[@DaveGII-id6dk]

Me

[@rivkaleahrevah6272]

Tat docter iz joowis ad relijers luyc meey

[@DaveGII-id6dk]

My nephrotic syndrome was caused by the chicken pox

[@thetalayfamily7552]

Hi! How did you know that your nephrotic syndrome was caused by a chicken pox? My son was diagnosed with nephrotic syndrome by January first week and before that, he had a chicken pox around 3rd week of December.

[@DaveGII-id6dk]

@thetalayfamily7552 A viral infection can trigger nephrotic syndrome. Within 1 month of getting the chicken pox virus, I had nephrotic syndrome. If you look at what can trigger it, viral infections are very common.