Chris Carrino: The Voice of FSHD

[@brianowens9545]

Thank you for this video. I’m inspired by your strength it is encouraging to me. I am affected very similar to you and struggling mentally with this lately. This video was a big help to me to see tonight. Thank you

[@louiedangelo3843]

Stay strong my friend. Praying for your health. One day at a time.💯🙏

[@thesimplelife963]

Thank you for your transparency and honesty. I have FSHD also. My little girl has it also. Thank you for working for that cure for the future to help my little girl. God bless!

[@tr8086]

God bless you All!

[@ednamvega18]

Tim what a friend amazing. Wish we all had one like this

[@jwsf941]

Good luck, Chris. Hope you're their to document Steve Nash's growth as a head coach not only in 2020-21, but for years beyond. I had a schoolmate in the 1980s in San Francisco who walked with a limp. He ended up confined to a wheelchair starting in his late 20s. When he passed in his early 40s in 2014, a mutual classmate said it was a form of muscular dystrophy. I wonder today if that's why a co-worker walks with a limp & sometimes needs a powerchair. In both cases, I felt reluctant to ask them if that was the issue

[@melodyflores5422]

Research of illnesses n issues n cancers n FSHD n more is so Vital !!! My young son 25 works in a private Medical research Facility and i am so proud of him that he does because it is a sad grueling job n harsh on animals and ppl who love animals thinks its cruel ! But u cant do it to human s n kids and wouldnt want to . WE love animals too in my family !!!!I live with Lupus 2 types n they can take my life and it attack s my bodys organs and insides and i have fibro n Auto Arthritis n thyroid n more all Auto Immune . I am cancer survivor but i fight here everyday and pray and ask heavenly Father to let me grow old to my late 90s hopefully research can help! So next time u hear someone get angry at research ppl or u do think of what it means God bless

[@jimmysingh5429]

inspiring

[@rrera1885]

Thank you so much for sharing your story that affects many of us. I will share your story with our FSHD Patient Advocacy on Facebook. I would love for you to join our group. Victoria

[@jamesgoldstien1468]

SALUTE !!! FSHD SUCKS !!! I’M ROLLIN WITH YA BROTHER !!!

[@prabuark9467]

Bro this is Shyam Kumar from India. I would like to know. Why don't u use" keeogo " which will support to climb steps also effortlessly. Hope for the cure soon.

[@ednamvega18]

What is keeogo?

[@tolikmiro6533]

@@ednamvega18 kzbin.info/www/bejne/fnyYoalsipV1d8k its a exo skeleton that attaches to your legs to help get up off the floor and climb stairs.

[@prabuark9467]

Bro this is Shyam Kumar from India. I would like to know. Why don't u use" keeogo " which will support to climb steps also effortlessly. Hope for the cure soon.