WHERE ARE THE VLOGS? - A Year in Review

[@OGBatty]

Sue 👏 the 👏 nurse 👏 😌

[@silverbroom02]

Batty Definitely have reason to! I’m also wondering if that nurse knows what her carelessness cost.

[@sarahwithstars]

It's not even suing a nurse for "making a mistake" is it. It's not "carelessness" It is suing a nurse for the fucking defiance when asked "please change your gloves before you touch me again" And she said no And poor Christina passed out and couldn't fight back It's fucking assault

[@mooonlightrose]

honestly it sounds like everyone part of that hospital could do with sueing (even the damn surgery pillow). I'm just glad that lauren at least had a better experience there...

[@silverbroom02]

sarahwithstars Absolutely.

[@frenchiegirlintheusa]

I agree

[@AllieYoung]

I’m a medical assistant and can’t even begin to tell you how irate I am with the way you were treated. I’m disgusted by the fact that the nurse used contaminated gloves to access your port. It doesn’t matter what procedure you are doing, it is basic knowledge that once you leave the field you’re working in that you dispose of your gloves and put on new ones when you re-enter. Not to mention that accessing a port or Hickman line is supposed to be done in a sterile manner. I’m so sorry for the domino effect of things you’ve had to go through in the past year. I’m so happy you’re back though!

[@nessapinkruby]

I really hope that they reported her because who knows what other patients this can happen to.

[@bmckin2011]

Allie Young I’d honestly sue. Burns me up too!

[@overgrownkudzu]

@jacob blanchard dude that's really creepy

[@lauren3596]

My gorgeous best friend. You mean so much more to this world then you will ever know.

[@lauren3596]

Leah Gratiot hanging in there!:) doing pretty well:) hopefully I can come on the vlogs and do an update soon. Hope you are well❤️

[@curtisbemis6640]

That statement is behyond accurate

[@curtisbemis6640]

How are you doing Lauren , it's been a very long time since I've seen you on KZbin . Your to very strong young woman and I hope you both are doing well after your surgeries🙏🙏💯💯

[@williammurgida7521]

Thats a beautiful thing to say. I've never met Lauren but i just know that she is beautiful and amazing and wonderful. If i wasn't married i would marry her without even meeting her. What a gorgeous girl

[@overgrownkudzu]

@@williammurgida7521 lol have you ever wondered if she would even want to marry you?

[@nbv6975]

Those doctors being awful to you because you “wouldn’t remember” made me sooooo mad. And that lady who didn’t change her gloves, Iwant to punch those people (and report them). That’s not ok, you don’t do our girl Christina (or anyone) wrong that way.

[@sarahwithstars]

Anyone in the medical field should treat any patient like their own mother and always behave as if their grandmother is watching over their shoulder (Ready to give them a slap)👵😒 😉

[@mooonlightrose]

Ikr this video is so infuriating as to how she was treated!! Its bad enough to have to go through all these surgeries and health issues in the first place, and doctors and nurses should be there to HELP not make things worse oml. I'm just glad Christina is able to be at home during this whole pandemic because I can only imagine how much worse it must be in hospitals right now

[@curtisbemis6640]

Disappearing lizard your damn right IDGAF who it is these girls are my angles. No mercy shown when someone hurts any angels.

[@savannahcotton8414]

I have PTSD due to medical trauma also. Thank you for talking about this, I seldom hear anyone talking about it. I can't tolerate being restrained and I will freak out. I'm sorry you had such shitty people attending you during this time.

[@nikki10114]

Amen

[@Joy.Elizabeth]

I'm in that shitty group too(medical trauma/ptsd). So sorry its not right what we all go through. 🙁

[@savannahcotton8414]

@@Joy.Elizabeth Bless you, friend. Hope you are doing ok.

[@thegastroparesisgoofball1030]

100% this!

[@sixmercer2504]

Sadly I am hearing this from almost everyone I talk to who has a chronic illness. I also have PTSD from the way I have been treated by medical personnel. It's definitely become "a thing". They are over worked and underpaid and their impatience doesn't make things go any faster. It only causes accidents and mistakes and horrible bedside manner that leaves us in a worse situation especially when it comes to trust. I'm sorry we're all dealing with this and I wish there was a way to navigate it. When we lay our fragile lives in the hands of these professionals, we don't have a choice in the matter. When that trust is violated it causes us to make dangerous decisions such as not going for help at all. My PTSD has resulted in me avoiding the appointments I need to make and go to and I wind up waiting until it's an emergency which then means they don't have my accurate history. Years of being ignored and shrugged off almost killed me just over a year ago and I was fighting for my life in ICU for over a week. Now I'm back in the same boat I was in before, only sicker. I definitely don't see this being addressed anytime soon as I watch the level of concern for patient care go downhill faster and faster. I have also been referred to a psychiatrist for this issue. That was months ago and I still haven't heard from anyone to set up my intake appointment. Go figure.

[@Daubenton951]

It feels just like having a friend back! I am sorry about the medical trauma :( . Take care Christina!

[@momosi95]

oh Christina, you're such a warrior. I am so so sorry for your immense suffering. You're truly an inspiration to all of us. Thank you for sharing your journey - you're such a beautiful and brave soul.

[@neen42]

Sterile, gentle hugs from several hundreds of miles away. So sorry about your Nana 💔. Be good to yourself, love.

[@darkbluematter1753]

You're back!!! I clicked so fast!

[@sarahserenity3872]

Same lol

[@leslieiannottacronin2176]

Even with some puff, you are beautiful. You have amazingly clear skin set off by your eyes and wavy dark hair. You have a lot of style and have a gift of communication that has clarity, forthrightness, Wisdom, and creativity. You are a fascinating person. Watching your videos makes me want to get up and move and keep on keeping on, with the life and my faith.

[@Eb611582]

I’m so glad you’re feeling well enough to post a video! This past year sounds horrific, I’m so sorry for how awful those nurses treated you were! Both while you were intubated and the one who gave you sepsis.

[@sarahserenity3872]

Hi Christina!!! I've missed you!!! Ugh so sorry that you went thru that horrific experience in the ICU! I would have had a massive panic attack.

[@mizboom]

Oh sweetie. No wonder you have ptsd. I’m SO sorry! I missed you lots and thought of you often and sent good wishes your way. But obviously I was not very good at that. :-( I hope that this year will turn out better than the last for you. Love your face.

[@earthandfire4840]

Have you been doing many arts and crafts lately? I used to be so inspired by your crochet and your art. I can imagine being wheelchair bound arts would be very theraputic. Your outlook and perspective is so inspiring christina, seriously I cannot thank you enough. I would love to see more vlogs.

[@grayskindablue]

Girl you came back with some sass and a cup of tea 😂 your personality is so great. But hey, advocacy has to make us a little feisty. Just last week I was checking your channel, and checking for you in 20’s and 30’s. SO glad you’re back. Agh. So many emotions. I can’t even express how much I empathize and am horrified at the medical trauma. You’re freakin’ bulletproof. Keep working through it, I’m so glad you have support, but yeah it’s so hard. I have a lot of trauma about the IR “procedures” that 100% were surgeries. The clips with your family on vacation made me tear up, and I’m not the kind of person to get teary, you all deserved that so much. I’m so glad you’re as stable as possible, and have as many spoons as possible. Here’s some extra- and sending good vibes your way. 🥄🥄🥄🥄✨✨✨

[@j.f.5798]

Welcome back! I've missed your videos.

[@Alaxl]

We're here, whenever you are ready. Thank you for sharing your experiences!

[@rethinkeverything2982]

We are fighting right along side of you sunshine💜 I have HEDS/ RA and MCAS and. 2 years ago Had a fusion on c5&6 I became miserable after 6 weeks.... love my pt as well (fascia massage) is the best on my worst days. My family never believed me until this year and I’m 30.... your so lucky to have your support💜 sending up prayers for your health and anxiety!!🙏💕 I totally get it...❤️

[@jeanettesilhouette5678]

I was wondering about you! You were just on my mind yesterday and here you are. It's like you've lived 10 years in one year. All I can say (in a nut shell) is, keep on keepin' on. It was good to hear you say you are going to go forward and let go of what "was." Stay safe darlin'.

[@celestevanveenen6005]

Oh and for content, I really don’t care!🙈 I did really like the reviewing gadgets series but also the storytime videos. And would love to hear from Lauren how her TC surgery experience was. Maybe a Q&A with her??😇❤️

[@IzzyKDNA]

I'm so sorry that you have dealt with so much this past year. I really enjoyed this video and hearing you talk again and I'm wishing you the best!!!

[@bevbailie4544]

So glad to see you! Glad your back, but take it easy.

[@kaylabarnes]

I'm so sorry honey!!! Missed you SOOOO much!!!!!

[@itzamunguia2107]

Glad your back....take care of yourself and stay strong....we are here for you when you are ready..

[@noodlecatcountry]

Wow, I'm so sorry you had to deal with all of this, I would have PTSD if I went through that too. It's amazing you are talking about it, it will help so many people, and hopefully you as well. I hope you are doing ok and being safe, especially with Covid-19 around.💙 I'm sorry for your loss, you are so amazingly strong, I'm sure your Nan is looking down on you with pride. Stay safe!

[@veroniquepouillon3759]

Never been so glad to see a video pop up in my feed- so good to see you! Stay safe💙💚

[@Darjoli8]

You are a walking, talking precious miracle! So thankful for your video. Everyone here loves you so much! Take care.

[@ig7002]

I seriously am about to cry thinking about how poorly you were treated. I am so happy you are still with us. I hope things are much easier for you going forward.

[@raeofsunshine17]

That ICU experience sounds like an absolute nightmare. Pure negligence. I'm so glad you are getting mental health care. Then the pillow, the fall, the port infection...so much malpractice and grounds for suing but of course that's expensive and exhausting within itself. Biggest virtual hugs to you and while 2020 has been a rotten year for society, I hope but nothing for recovery and much better things for you this year. You deserve it.

[@greyv9107]

weve missed you so much, and its so good to see you back. youve dealt with so much this year, but you still seem to have such a positive outlook. those doctors screwed you over so hard, im sorry you went with that. ive seen how hard it is to deal with ptsd, especially when its medical and so much of your time is spent in medical facilities. also any content you make will make us super happy! so glad you seem to be doing better than before

[@Psychobonnie1]

Sooooooo good to see you!

[@rachelchristensen9326]

I completely understand why you couldn’t vlog but it’s so good to have you back darling. You truly are sunshine - hence that blanket you made totally encompasses everything you are! :-) I am also constantly running a IV’s, this that and everything else, and yes it seems to be that same vein right near your little pinky finger, which depending on what you’re running through can hurt like magnesium - the list is a lot longer but hey who needs to go there. Not surprised at all that you have PTSD from medical trauma because you have certainly been through a lot in a very short time period. I also have diagnosed PTSD from medical and physical injuries etc but mine has been spaced over the past 20 years. Although in saying that I did spend 11 months straight from age 23 to 24 in hospital. So I know where you’re coming from..Loads of love and a big big hug (with Social distancing) from Oz🇦🇺🧚🏻‍♀️🌈⭐️🦋👍🧡❣️‼️

[@ChucknRachelN]

I am so sorry you have had such a hard year, I have been trudging through hard health issues this year as well, and I also got diagnosed with PTSD due partly to medical trauma as well. I am being evaluated for hEDS and POTS right now as well, it is a very slow process due to Corona. :-/ I have been watching your videos for the past couple weeks and you have given me so much hope and explained so much. I am so grateful to you and your family. I hope you will continue to share your life with us.

[@jennablumer4885]

Welcome back!

[@aryondcrazy101]

I've missed your videos!!! Hiii

[@neen42]

Missed you!!! I'm sorry it's been such a rough year ♥️♥️♥️

[@darkangelaljjohn8064]

Missed you and hope you are doing well ❤️❤️❤️

[@tove_sofie2388]

Missed you !! So glad to see you 😊❤

[@olgagnatyuk2441]

Oh, Christina! And here I am thinking my pain is so hard to deal with... Lord, please forgive me. I missed you and your vlogs, your upbeat spirit and the inspiration that you bring. You have been in my prayers all through this past year. Listening to you in this vlog I can't stop crying but at the same time I'm amazed and incredibly proud of you and your strength to keep going, to keep living and inspiring others. You are a superhero in my eyes. I am keeping you and your family in my prayers.

[@monicadahlin]

So glad to see you here on KZbin again! I think you're going to love the power wheelchair! I struggled with a regular chair and then I had motorized wheels but my shoulders and hands still couldn't handle it more than short times. And then I got my power chair and wow it was like heaven! I have one I can change my position in a lot of ways and that is really great. And I can even elevate the seat so I can reach for things higher up like in stores and in the kitchen. To me my power chair became my freedom! 🇸🇪

[@elizabethb1096]

I have missed your videos so much and I am so sorry about the year you had.

[@jamerayton50]

Omg Cristina We've all missed you so much ,and by what a time you've had I thought it was bad last time we sore you a whole year ago , but you've been through so much ,I cannot believe what you've been through 😱so so excited I've seen you again please say hi to your family and plz take care of yourself, sending you a big giant gentle hug ,and we will wait to see your next video x😄🍀

[@Littlemushroomtree]

Christina! I am so happy to see you again. I'm so sorry for all the difficult experiences you've gone through in the past year. You did not deserve any of that, especially awful treatment from unprofessional medical staff. But I am so glad you are back. Sending love and healing thoughts.

[@stitch_andherhuman1888]

I lost my nanna last week and I've just had to start using a power chair. Keep fighting, you inspire me! 💕

[@MathIsMagical]

I’m glad you are back. Man you have had a hell of a year.

[@chantelleflores]

Welcome back! I'm so glad you decided to cover some of the topics not usually addressed on KZbin, social media, etc. Also, I'm so glad you're at a healthy (or mostly healthy) stage now! I also feel your pain when it comes to appointments being cancelled due to coronavirus (definitely a nuisance, especially when trying to reschedule all of them). Hope you manage to find some quality toilet paper soon too! Best wishes to you and your family :).

[@natuskasmile]

I would like to hear ALL your stories! Glad you are back

[@gailgolightly5110]

I have missed you. I am not computer savvy, basically all I can really do is KZbin. I've worried because I couldn't find out about how you were. Super glad to know you are doing as well as you are. To me it doesn't matter what you post, just let us know you are alright. Love you alot, stay safe!

[@meganlovesdisneyandcrafts4780]

Medical ptsd is such a PIA. I’m so sorry, you have to deal❤️ I was gonna say you look great but ok.😂 Yeah, don’t apologize, we get it. I think we are all going through some stuff🤯 Keep going💪.

[@norajung4513]

First I have to say it is good to see you, I have been thinking about you lately. I am so sorry you have had such a rough year. I think anyone that has gone through what you have would have PTSD from it. You have such a strong spirit and survival mode. You are an inspiration. Stay strong and looking forward to seeing future videos.

[@LadyPashta]

Christina, I am so sorry to hear what you went through. I'd have PTSD, too... SUE THE HOSPITAL and do NOT go back to that place EVER again!! You are such a strong woman, it'll get better my EDS sister. Hugs

[@elcucuy1770]

Love you so much sweetheart All of us got ur back

[@Rtytanicj]

Oh my gosh, I’m soooo sorry you were treated that way. Unfortunately I’ve had similar experiences, and btw you looked BEAUTIFUL in your uncles wedding. You all looked soooo beautiful, I’m so happy you got to go to the wedding. I’m also so very sorry for all you’ve been through. You’re an amazing and beautiful soul, NEVER forget it. Sending you, your sister and parents tons of love and healing 💜💜💜

[@katherinemurphy2762]

So glad to see your "year in review"! I'm not on Instagram, so I wasn't aware of everything you had encountered since your last blog; I just had hopes you were doing what you needed to do to get better. Sorry to hear about all of your tribulations. Let's hope for a better 2020, sans coronavirus! I'm happy with anything you want to post, although I am curious about your sister's experience with tethered cord surgery... 🤔

[@plannerfunandinspirationwithme]

It's ridiculous what you had to go through. I mean these are the very people who are supposed to be on your side and helping to comfort you through the healing process. I worked in a hospital in a clinical role until I had to stop working due to chronic illness and none of that would have been tolerated from a staff member. I'm so sorry Christina. But I am so glad to see you again. I've been following your Instagram and facebook and I've been praying for you.

[@VaurionX]

I'm glad to finally hear directly from you again Christina! I remember when I heard from your sister that you had fallen while in your brace and was so worried that it was serious. It makes me so furious to hear about the total ineptitude of the medical "professionals" that so often let us EDS patients down. I hope that you continue to improve and I'm so impressed you're spending five a day doing PT exercises.... You are making me look like a major slacker! Anyway, thank you for the update.

[@billiebluesheepie2907]

You’re baaaaaccccckkkkk! (...and also your back!!!, and pelvis, sepsis...) I hope this means you’re able to vlog again. And to paraphrase our queen, let’s hope your “annus horribilis” is behind you and you continue to flourish. Only re-visit last year as you feel up to it, and it maintains your mental health (speaking as someone that has six months of medical hell from years ago that I still can’t deal with yet). I was waiting to see all the things that you had made... so you’re going to have to give us another update... 😛😉

[@tiff2106]

Your trip sounds amazing. Big or small moments of normality and pure fun are soooo important for families of chronically ill patients as well as the patients. Time to temporarily forget about sickness and struggles and just BE. There is always ups and down when managing illnesses. And sometimes people make mistakes which SUCKS! I love how positive you still are. 💜

[@BNHAalltheway]

Ya You are back God is with You mo need to apologize for anything stay safe and will be praying You stay well You are a sweet person

[@anjabrown7868]

I suffer from ptsd , severe anxiety , and fibromyalgia amongst other stuff but just WOW YOU ARE A TRUE WARRIOR GOD BLESS XXX🙏

[@Joeyb44l]

It's so good to hear from you again! What a crazy year you have had and I am so thankful that you are healthy enough to be taking care of your mental health and physical health now! Any fun videos would be great in this crazy time we are all in right now

[@ejdoug8328]

Hey girl, it's so nice to see you again. I've really missed your vlogs. I hope you get everything you want! You have been through so much. I'm so glad your going to do more vlogs. Hope your mom is doing well. Would love to hear your sisters story. Would love to hear more about you. Your very inspirational in the face of all that you've been through. My prayers are with you and your family. So glad you all got to have such a good time with eachother. I'm am so looking forward to the next vlog.

[@renyputman7118]

So happy to see you’re back!

[@chronicinokla]

I know this had to be a lot. Thank you for caring about all of us to do this. I am sorry to hear of lymphedema. Look to the flexitouch system. Tactile medical can help get insurance to pay for it. Dr. Karen Herbst is the definite specialist on lymphedema , lipedema and one of the things I have dercums. Thank you also for talking on medical PTSD it is so real. RIP TO NANA. Keeping my positive thoughts your way

[@rosephinebakerson2701]

You've been through so much. My heart goes out to you. On another totally unrelated note, I really like your Apple watch band. Super unique and looks great on you! 🥄🥄🥄💜

[@suem6978]

It's truly wonderful to see your smiling face again. The strength you have young lady is truly amazing. Looking forward to future videos. Sterile hugs and kisses from Canada.

[@nessbailey7931]

I would love to hear from Lauren of what she was going through as well.

[@Bevie2003]

What a year! I’m so sorry that you’ve had such a rough time. It’s nice to see you back!

[@rethinkeverything2982]

Just letting you know I’m cheering for you strong Ehlers sis😘❤️

[@Firetalon02]

I'm so sorry you went through all that! Yes that nurse is responsible for your infection. If it were my child I would peruse that... I hope all else goes well for you and your sister. ❤ thank you for your videos.

[@melzlayre9972]

No reason to say sorry for anything. You are so strong...stay that way!!! 💪

[@SandraEKitchen]

So glad to hear you are feeling in a better place to come back!!!!! I would love to have some sit down videos like this with you or your sister/family to explain certain things in the past year more in-depth in combination with more current vlogs! I understand not wanting to do a play by play, but I like getting caught up like old friends!

[@sallyomally132]

You are so brave! I have medical PTSD from childhood asthma. I’m so glad you mentioned it! I take anti-anxiety meds for it (I’m in my 50’s now). It’s the anticipation of pain, panic, fear etc. for me.

[@lisawierzbicki4994]

Oh goodness, I’m sure this video was so very difficult to make, but we are all surely glad to see you again! Onward and upward, right?! I love all your content: the medical info (I think I’ve learned more from you than anywhere else), the practical life hacks, equipment reviews, and just the daily vlog stuff with your wonderful fam! Love it all!! And always praying for you!❤️

[@ceveale]

I'm so sorry you've had such a rough time over the past year, Christina! But I'm super glad you're doing "better" and that you're back!

[@likeabunnie]

CHRISTINA!!! I CAN'T TELL YOU HOW EXCITED I AM TO SEE YOU POSTED!!! Sorry to hear about the PTSD, I've got that and eds and yeah but... It's hard. Oh love! That's terrifying they didn't even leave the call bell in reach, oh hun, I'm so sorry. My sis went through a lot of medical trauma, and it's... It's horrible, and it doesn't seem talked about much, and I'm sorry for the way you were treated and unable to communicate and your mom not allowed and just... Urgh I hate that so much, I hate when there's already so much trauma but there's so much that could be avoided but just... I'm so sorry. ARGH AND THAT TICKS ME OFF, I'VE HAD PEOPLE DO CRAP TO ME WHEN I'VE BEEN UNDER TWILIGHT SEDATION AND THEY ASSUME I WOULDN'T REMEMBER AND wow sorry haha... Started having a bit of a flashback for moment from stupid oral surgery when they forced my jaw way too far and just I should stop cause it's similar details (not half as horrifying as your experience, at least I didn't have tube in my mouth and I didn't have I it was over quick though but they restrained me and afterwards said they hadn't and that was just idk but it's whatever but oh my God, oh love, oh hun, I can't even imagine the fear with... Oh hun. Some people are horrible and I'm so sorry I'm not with it rug now and I wanna focus on your video so I'll hush now but... So sorry they hurt you like that and just... Argh that makes me so angry! Glad to see you post again... Don't pressure yourself, I'm very glad to see ya again though, I know I don't ya in real life and such but I've been thinking of you and your sis (especially since Dr Lui has been on leave) so... Hang in there, y'all! I live in PA and am slightly curious about the doc you saw, though likely a moot point if they don't take insurance or yeah idk what I'm rambling about but it's really good to see ya :)

[@dianeluke1746]

I have PTSD from medical experiences. ICU Psychosis is a very real thing. I experienced this every time I was in the ICU. Then all the months I was in the hospital messed me up in the ways you mentioned. Sounds set me off quite a bit, and I still don’t sleep well at night. I have been in therapy for years, and it has helped immensely. My heart goes out to you as I know what it’s like to hear or smell something and then just be taken out of the present. I’m writing this at the beginning of your video, so now I’m going to go pay attention to the update!

[@scarecrowmax1192]

I'm so glad to see you back on here! You've gone through so so much this past year and you are so strong for getting through it. Stay safe in these crazy times. You look really good right now, there's such a light back in your eyes that's been missing in some of your insta posts. I would love to see any and everything you have filmed from the year. Love and spoons

[@nicolesinclair9223]

Hello beautiful so glad to see your smiling face! I sure missed you. I’m happy to see your doing your best right now. You have been though the ringer this past year, but better times ahead. I will say I’m sorry for the individuals/situations you came had to deal with as they don’t realize the magnitude of short falls. You are a warrior and you always come out stronger than before. I think EDS does that to us!!! Don’t feel alone we are always here for each other. I feel PTSD needs to be advocated more for people with chronic health conditions. I have major issues from my health problems, being treated poorly and for not being trusted. Hang in there and enjoy getting back into utube I think it will be therapeutic for you! ❤️ soft hugs 🤗

[@laurapowell3869]

I'm in nursing school now. Videos like this provide as much education as school does, maybe more. Thank you for teaching me about the kind of nurse I shouldn't be! Prayers for you!

[@teresaelza-fry7833]

Oh baby I am so very sorry for all you have been through. MPTSD here as well. Due to an injury on my old job and being treated horribly by the workers compensation state ran agency. I am so very glad you where doing well enough to do this video. I continue to hope that you improve. Much love and social distancing hugs. You my dear are amazing. And as always, if you need an old person to talk to I am always here. Sending positive healing energies.

[@padlocksncocoapuffs]

I can’t even imagine doing what that nurse did. I work in a bakery and we aren’t allowed to get something out of our cake case and then touch a loaf of bread with the same gloves. They teach nurses cross contamination! For goodness sake you have someone’s life in your hands. How dare she seriously. I love you from the bottom of my heart Christina!! I’ve been dealing with a bad flare up with my illness on top of being a grocery store working during a global pandemic, they just started allowing us to wear masks a few days ago. Stay safe and healthy my dear. I missed your videos! Welcome back.

[@sixmercer2504]

It's SOOO great to see you back Christina! What a horrible year. I'm sorry life keeps throwing these awful things at you. I have been struggling the past few years (especially the past 2) with my EDS which has caused my little 5'0" 115lb body to become 175 pounds of mostly bloated belly that makes me look like I'm about to give birth and has destroyed my back and hips causing constant subluxations and a few dislocations of my hips. So painful. My luck has been the opposite, if I just had help from someone who could advocate for me when I'm unable to maybe I would be further along into finding a decent team of doctors and specialists who are interested in helping me, not shrugging me off or passing the buck. I have had 8 years of that and for me my issues have been in my muscles with horrific spasming that causes me to shake and sweat and cry. I also have medical PTSD. It's not as bad as what you're describing but I also haven't been through the amount of true horror you have. I have very severe chronic fatigue which makes dealing with all of this near impossible. I'm constantly overwhelmed by the smallest things and they pile up so fast. I have the typical EDS stuff going on with really bad Dysautanomia that is totally complicated by my adrenal insufficiency so my blood pressure either gets wicked high or it bottoms out just by bending over and down I go. My gastroparesis put me in the ICU a little over a year ago with acute heart and kidney failure. I had Torsade de Points in the high 700s that they didn't think I would survive the night with and were preparing my mom and my daughter for. I never would have gotten to that point if the doctors would have listened to me for the past 6 years before that. I thought that would have been a wake up call for me to get better help but I was discharged in the middle of a blizzard at 11pm with no discharge plan. I live alone with my service dog. But she's a dog. She doesn't call 911. I can't begin to imagine what your family has had to go through. I'm so glad your sister's tethered cord surgery went well and would love to see you two do a video about her experience and maybe how things were for your family while you were going through all of this....again, still. You certainly have the perfect family structure to handle the load this carries for you guys. I find it amusing after being the weirdo wearing a vogmask everywhere I go for my MCAS and now if I have to go anywhere which is extremely rare, the people being stared at are the ones with nothing covering their face! Makes me wonder if this will become a new thing. I missed your vlogs, I was worried for you. With how severe my chronic fatigue is I don't check into much more than my Facebook and even that has been really difficult, so I didn't see what was going on with you. This fatigue feels like gravity is triple what normal people deal with. If that makes sense. Add in the pain and weakness and I am mostly glued to my bed. I have narcolepsy with cataplexy which is what led me to my EDS diagnosis oddly enough. So I have had severe sleep paralysis since before I was out of a crib as a baby. I still have it almost every morning and whenever I wake up throughout the day. I feel for you, it's definitely a personal hell before you realize it's not killing you but even then it can feel like it's never ending. And it's so exhausting. Well, I just hope to see you on the mend. This coronavirus is rough because it has caused my appointments to be canceled or by skype which is definitely not very helpful. I hope it passes quickly for you to get your lymphatic system massaged and drained. You have been through so much and you're definitely a trooper to still have that smile. I hope that never changes. Lastly (sorry for this lengthy comment), I am truly sorry about your Nana. I realize how intimately close your family is and how much you love them and they love you. And to have that happen the day after Christmas on your birthday of all days. My heart goes out to you and your family and may your Nana rest in peace. You look great. I hope you're able to pick up the camera again. I'll be here when you do. Xxoo Zebra 💪❤

[@Julia.connolly54]

Flashbacks suck, I have trauma too accept not medical related. And anxiety can also be really difficult to deal with. Sending lots of love your way ❤️

[@iceeyes4478]

It's so nice to see you again Christina! I can't believe everything that you have been through. It literally blows my mind. And the way you were treated in those hospitals! It's no wonder you have PTSD. I just want to tell you, you and your family are the strongest people I have ever seen. I hope you all have better days to come.

[@montiloo]

Your positive attitude and being so brave, teach me so much! You are such a good example of resilience. Looking forward to watching more of your videos!

[@nancymandle5215]

What a relief to know you are well enough to vlog. I’ve followed you for years and was so concerned for you and your family. So welcome back!!!! As for content moving forward, just seeing your smiling, beautiful self is enough! Maybe sharing some artwork, or crochet projects or even a favorite piece of new clothing would be balm for our worried psychies. Would love a quick wave from your mom and sister (dad, too but he seems camera-shy), maybe a peek at how your room is lately, clips of pt progress, info. on any new braces, etc. Basically, go easy on yourself. Thank you for letting us in on this past year.

[@dreamerqueennotunderthemachine]

I bet you ptsd is another one of the main complications of EDS .. sleep paralysis is terrible .. I've had it too. It happens especially when my level of stress reaches to an unbareable point. I've been having a really hard time returning to YT and speaking due to PTSD, too.

[@BeverleyButterfly]

Missed you so much honey glad you felt up to creating again. You have been through so much and it sounds like most of it due to medical negligence you should definitely look into suing or at least asking for someone to look into what happened. It’s understandable you are struggling with self esteem and body image just be kind to yourself and remember you are recovering from a big fight and you won! You will get there lovely xxxxxxxxxxxxxxxxxxxxxxxxxx

[@EleanorNicBhatair]

I've so missed you here on KZbin, It's good to have you back! ❤️

[@eFoobar]

Hi Christina - good to hear from you again with the recap... thanks for putting yourself out there and updating all of us. Your strength and perseverance through all of these trials is amazing, and despite them you're still incredibly sweet and thoughtful. Bravo... I hope we get to hear from you again soon. Good luck with your recovery...

[@MadHouseOutAndAbout]

I don't know what to say about your last year. I've been watching your channel for a long time but just like everyone, I was worried. I am routing for your improvement and your days ahead! You are so talented and such a light to me! I hope you get more positive experiences this year.

[@Lazrhysing]

Absolutely thrilled to hear from you! I'm also a zebra, also with EDS, also diagnosed with PTSD. There is a treatment called EMDR my therapist has done with me and it has been so life changing for me! It helps your brain process the trauma you've been through so you don't get caught in trauma loops (the 'not being there', crying, shaking) and helps your brain move on. If you have a chance, I highly recommend!!!

[@Magickweeb]

I’m sorry that you’ve gone through so much this last year. But I’m glad to see you again. Much love 🖤

[@anne-marijansson4980]

There you are!!!! 😍😍😍😍

[@TheGuineababy]

It's wonderful to see an update from you! I'm sorry things have been so rough, and that your healing has been put on the back burner to COVID. It's definitely a scary time. There are so many of us that can't get sick.

[@intothemystic5223]

You're so strong and inspiring!! The way you always look for the silver lining is amazing!! ❤ Also, I hope that nurse got in trouble 😠

[@ServiceDogRosie]

Omg.. you made my night... glad to see you back on here missed you

[@danielledoetschart]

I'm so sorry you've had such a difficult year. I discovered your videos in June of 2018 when I was recovering from a very bad car accident getting hit by a drunk driver head on. I was pretty much on bed rest for about 3 months and watching your videos really helped me get through it. It was a long recovery after that with a lot of physical therapy and really hard for me mentally to deal with all the changes and pain. But it always helped seeing how strong and positive you were through all that you were going through and made me feel less alone. I was recently diagnosed with an autoimmune disease called Sjogren's syndrome that was likely triggered by the trauma and stress my body was put into from the accident. Thanks for sharing your journey! Just wanted you to know how helpful it has been for me going through my own. Hope you continue to improve and have a better year than your last one!!!

[@skye1767]

Oh Christina! You are amazing and brave and beautiful (puffed or not!). I admire the heck out of you. Thanks for coming back-and I hope you know that we all love your vlogs, but if you need to take a break from them or stop for whatever reason, we will be okay ♥️.