Adventures with EDS : Radio Drama, A Year Post ICP Monitoring & A Major Flare !

[@mayabewsher6987]

Big hugs and spoons to you. You are coping so well and showing your illnesses who is boss. Remember to take a step back sometimes to reassess. It doesn't mean failure though. I believe we all attempt to do more than our bodies can handle, and so suffer at times. I am still trying to get to university, but keep falling at the final hurdle each year. One day it will happen, I am sure. Keep fighting and conquering. Lots of love from a fellow British spoonie xx

[@ChronicallyJenni]

Best of luck in getting to uni, you will get there and it has been so amazing to be back! 8 weeks of business plus a UTI on top of normal stuff hit me pretty hard, I'll be a little kinder to myself next time. Always lovely to hear from a fellow british spoonie! Spoons & Love xxx

[@GeorginasJourney]

I’m so sorry you had such a tough week 😔 But you’re doing so so well and setbacks and crashes are okay. Although it doesn’t feel like it at the time, they always pass and I’m sure you’ll be feeling a bit better soon if you’re not already 😘 It was great to chat and laugh with you for a while but please call me if you need someone to cry to and someone who’ll understand 💗 So proud of you xx

[@ChronicallyJenni]

Thank you so much my love

[@JfD9]

I had a ICP bolt monitor a few months ago. I have been having pain and straining in my forehead and in my eye up to the bolt incision. Just curious if you experienced pain or weird feelings after your bolt monitor. Thanks