my life expectancy

[@mayamwww]

In case you guys don’t know: Claire had passed away September 2nd 2018. She received her transplant but then suffered a massive stroke. She was put into a medically induced coma. She was taken off of life support September 2nd 2018. Rip Claire, you are now free from this horrible desease.

[@Aurora-sz8by]

What happened with the lungs? Did they take them off again or she died with them?

[@Redmonki184]

@@Aurora-sz8by I'm not 100 percent sure, but she probably died with the lungs she got...

[@Christine_990]

@@Aurora-sz8by she was an organ donor as well so I'm sure they went to someone else if they were salvageable.

[@jiannarae28]

Jungkooks banana Milk Oh ya I heard from inside edition...

[@jpvlogs9388]

why is she still uploading tho

[@norakennedy4670]

So she died 4 months after this video. I cannot imagine knowing I had less than a year left. She was extremely brave.

[@thelast3553]

We may only have less than a month to live right now. Do what is pleasing to God.

[@norakennedy4670]

@@thelast3553 we are not all going to die in a month and what a wonderful god we have for the coronavirus.

[@feralhound23]

The Last do what is pleasing to yourself and the ones around you, whom you love and care about.

[@b1emb4b3y6]

@@thelast3553 why?

[@thelast3553]

@@b1emb4b3y6 If I say it it will just get deleted because it's true.

[@LuisCypher4666]

I just discovered you and you're already gone. You were amazing. Rest in peace Claire.

[@ethyumeko7381]

SayTanNic 666 :-0 same Rest in Peace

[@godschild9997]

Rest in peace Clare

[@dommidavros2211]

Already gone???? Please tell this poor girl’s still alive!! She’s getting a lung transplant so let’s keep our fingers crossed! Don’t write her off just yet!! She’s still in her early 20’s and life expectancy is over 40 these days!

[@LuisCypher4666]

@@dommidavros2211 she died last year.

[@lynkent677]

Sometimes we discover others strength when ourselves at a time when needed!....SayTanNic 666...#John Lennon...Give Peace A Chance!!

[@Anetusn]

She was pretty, wise, and had a badass voice.

[@matthewmadsen8123]

hi how are u

[@DustyyBoi]

@@matthewmadsen8123 kzbin.info/www/bejne/aJyThKCnl6d8prM

[@user-zv7yb4yp9g]

Matthew Madsen simp

[@Whyme-cr4xq]

Matthew Madsen bro stop simpin

[@matthewmadsen8123]

@@Whyme-cr4xq what are u talking about

[@moe.4490]

The KZbin algorithm is cruel. I never knew about her before now, but I hope she’s found rest and peace.

[@evelynmockridge3337]

cruel? Bruv

[@moe.4490]

@@evelynmockridge3337 yes?

[@sluvvr]

Yeah sad,....

[@dubbedanimeisgay6480]

I just rediscovered her again. It hit me like a brick when I saw all the comments that she was dead because the last time I was on her channel she was talking how she was getting healthier and she was so optimistic :/

[@zejdland]

It doesn't think.. it has no empathy... it is a robot...

[@connorfincham6945]

I'm gonna start appreciating my life more.

[@ken-fv9cz]

i should too!!

[@wickededogirl]

*M O O D* 😭

[@deathrays]

She would have wanted that.

[@kaydenjones6616]

Appreciation works a lot better when your living it with Jesus!

[@chyennjustice8365]

Kayden Jones shut up you bible basher

[@hannahnicole36]

KZbin is recommending this to me in 2020? sad reality check

[@lexbroken8101]

Recommended to me 3 days after you found it, it broke my heart watching it and destroyed the broken pieces after reading the comments. May she rest in peace.

[@Make-Asylums-Great-Again]

Hannah Nicole just got this.

[@rainbowdeathhearts1466]

I know wtf KZbin

[@Abaviolinist]

I know. I cant even deal. I miss this girl 😔😔

[@roguenz9848]

I think one of the things I now find so heartbreaking about Claire's journey is she got SO CLOSE to the time where a real breakthrough was made. Seeing other people with CF have such incredible results with Trikafta is amazing but I often think of Claire and all the others who missed their chance, such is life but it still sucks.

[@graceoyama2047]

i wasnt aware she's been gone for almost 2 years now... :(

[@davidadams2395]

I know, it's sad. One can't say she didn't make the most of the time she was given. They say people who are terminal become wiser through introspection, and Claire was an excellent testament to that thought.

[@silverwolf2643]

@@davidadams2395 Because at that point everything we generally care about loses all meaning. In front of death and not knowing what happens next. You start questioning what's the point of everything.

[@amyureel2769]

💛🙏🏻💛

[@cheezyfilmsproductions1842]

21. She was 21 when she died. The fact that there are so many who die before ever really experiencing life is devastating. And living with the knowledge that you have an expiration date. I can't imagine how it would feel to know when I would die.

[@pinkfluffyunicorn1899]

Cheezy Films Productions I’m turning 21 in a few months. It’s not the time to die, it’s the time when life starts. I cannot imagine knowing my life is to end in a few months at just 21...

[@pinkfluffyunicorn1899]

Emmie Conner I’m very sorry to hear that, that’s tragic. It makes me appreciate the fact that me and the people around me are well and healthy. But anything can happen anytime.

[@evanw2195]

Okay come on everyone dies, it’s really not that special

[@wonderlandian8465]

@Emmie Conner I'm so sorry to hear that

[@LuckyLuch1]

While I agree, we all technically have an expiration date, and could go at any time. In some cases having to face your mortality can force you to live your life to its fullest. Some can live more in 20 years then many do in 80.

[@sammargerum7283]

I miss my girl... when people ask that “if you could have dinner with any 3 people, alive or not” question, she is always at my table

[@gem.444]

JOHN MASTERSON you know that’s very racist and she wasn’t any of your girls she was her parents and families girl so just stop

[@gem.444]

JOHN MASTERSON why are you being so rude I was just stating the facts

[@gem.444]

JOHN MASTERSON well I’m 13 and I don’t even play with dolls and honestly your just a low life trying to ruin peoples day so no I won’t 😁

[@gem.444]

JOHN MASTERSON it was a typo and stop embarrassing your self by trying to act cool by swearing in every comment you make and I won’t get mad or annoyed at you just to make you more angry because I don’t need to be sad for people like you 😂🙄

[@ghoste_girll]

@@gem.444 lmfao fr he lookin like a whole ass clown insulting you

[@anastasiagirl1342]

She passed away two days ago. I'll miss her and her wisdom

[@3v3ry1]

anastasiagirl1342 ????😰😥

[@bee4907]

@@3v3ry1 During a lung transplant she had a stroke from a blood clot.

[@3v3ry1]

bee that’s terrible

[@3v3ry1]

bee I feel so bad for her little sister.. her family

[@brianbommarito3376]

Apparently, the stroke didn’t kill her right away. She was in hospice for a short period, and I guess when her condition became “brain-dead” (that is, she would live but only in a coma and on life support), her family decided to turn it off and let her die instead of prolonging her suffering. It is very sad, I’ve only known her since yesterday, when KZbin recommended her channel to me. By this point, Claire had been dead for 3 days. I feel bad that I didn’t know her personally, nor even through the channel while she was alive. But Claire is an amazing and beautiful person, and I could tell that from the first video. My sympathies to her family, I too have lost loved ones to illness, and it is an indescribably painful experience, and how powerless one feels to stop it from happening. And when the worst happens, your feelings are a mixture of intense grief and relief, because you know your beloved isn’t suffering any more. And Death isn’t the complete end, it’s only a temporary setback. You will see Claire again, in a better world, and she won’t be sick when you see her. Until then, just try and live your life to the best of your ability, and make choices that would make Claire proud.

[@jasoncatron1039]

This sucks. I watched the video and really liked this girl. In my mind I was really rooting for her and then I go to the comments to see she has already died.

[@areyoukirringmeirriyaa]

life is so unfair, she didn’t deserve to leave this world so soon

[@CheatGang]

It happened for a reason. Imagine still having this disease during this time

[@gracesnowflake2344]

Hi I love you and I miss you every day.!

[@shhs1227]

@Angel Izazaga her living would have been better. immunocompromised or not there would have been a chance that she can't even get the virus, or would be an asymptomatic carrier. and if she did get it. yeah it would be likely she'd die because she's would already be sick. but even then there's still a chance of recovery

[@Firefox-xr7mp]

RIP

[@_______6398]

“Sorry for looking bummy” wtf she looks amazing...

[@iarrcsim2323]

You're right. She looks like a hot bum.

[@hdfuwhfjkwehfwiefhwe]

Claire, whatever happens - please know that you have made a lifetime of a achievements already and changed so many people's view and perspective of the world. Myself included.

[@tupacshakur3745]

🙏🏾

[@ChristopherTradeshow]

❤️

[@reiguro7483]

:( ♥

[@nubiabogale]

damn .. 3 months later. ❤️

[@shannonmcmahon2683]

Amen ❤️ Keep on inspiring and speaking your beautiful truth in Heaven Claire ❤️❤️🙏🏼

[@experiment0003]

oh what we take for granted

[@democratsaretrash9366]

Yessir

[@Wraakk]

@Ollie Zhao it is not funny but... It is

[@fatima-purposefullybeautif5950]

To Claire's parents. I am a 57 year old women that suffers from PTSD and depression. When I feel life is getting too much for me I watch your daughters videos and her love for life makes me question my suicidal tendencies. So even within death you daughter is saving lives and an inspiration. I hope you never take her videos down. Thank you. You were so blessed to have such a beautiful soul in your presence

[@GeeBri]

♥️♥️♥️♥️

[@shuvolinamukherjee6217]

Yes same my problems seem mineal in comparison and her life her being is so inspirational

[@lukasz1154]

@Dude Juststop you don’t know anything about her life though? And yes, the brain is an organ too, it can become extremely fucked up too. Your brain manifest your reality, it can lead to some pretty miserable realities for some people. And she never claimed to have a “level up”, she quite literally stated she comes here to remind herself of how lucky she is. Ffs!

[@lauraska95]

Beautiful comment. Sending you love ❤️

[@julyy7788]

❤

[@JennyNicholson]

Claire I've followed you for so long and my heart was sinking at this update. I know a lung transplant is by no means simple or a cure-all and is its own excruciating process with its own concerns but I think it's so brave that you're going for it, and I really hope it gives you back the autonomy you deserve

[@TomHanksFan84]

My friend with CF got a transplant a few years ago and it was so smooth and incredible and he’s thriving right now. There’s hope, plenty of hope, that you could experience the same thing! Praying for you right now, girl.

[@aninarohr9205]

Jenny Nicholson yes, we really hope that and pray for you Claire❤️ Thankyou for everything you gave to this world, it’s kina time to just recieve now. To recieve hope and love and rest. Love you Anina Joy

[@Amoose-Always-Fun]

So she have hope? Right

[@helenfaith1508]

HARRY H she passed away two days ago

[@kandiwhite4655]

She died 8-26-18.

[@95TurboSol]

This is why I'm an organ donor, any out there that isn't please consider being one next time you update your license. Anyways, it so nice too see another video Claire! I keep wondering how you've been. I want to see this transplant go well and give you many more years, even though it's not a fix, it gives more time for science to catch up with new treatments. I'll be praying that is what happens!!

[@Laurinska08]

95TurboSol I am too..I just graduated nursing school and had the opportunity to do a rotation in the ICU..and unfortunately had a young person die..but I was able to see how the organs were able to help quite a few people..you can so greatly change or save a life💗

[@sweetboo1022]

also, it isn't always as easy as marking it on your driver's license, depending on the state you live in. So please go to organdonor.gov and go thru the process depending on your state. I'm in KS and I had to fill out an extra form with witnesses. PLEASE COVER YOUR BASES AND DON'T RELY JUST ON YOUR DRIVER'S LICENSE. Cheers

[@JessicaHelena1227]

I am a donor and make it abundantly clear to family that anything that can be harvested and used is to be so.

[@fotoschopro1230]

Most organs go to fat old pigs.

[@twistedbliss58]

No one has to donate if they don't want to.

[@alicegordon4415]

Never apologise, Especially for those sunglasses they’re fabulous xx

[@ranchugoldfish3822]

Alice Gordon I to love her glasses. I thought they were a fasion statement not eye protection.

[@alicegordon4415]

bill hundt ugh same I wish I could pull them off they’re pretty snazzy

[@Jackson_Hts_Mr_Randy_Watson]

Right? Glasses are great.

[@mertunsal882]

Do you know where can i find them??

[@idiotsponges7987]

She had a badass voice that you’d hear in an 80s action movie

[@wyldeyouth]

Another dumbass comment. Jeez

[@wyldeyouth]

@T K How insensitive do you have to be to say something like that to a mortally ill person? You are as thick as the OG poster. The hell is wrong with people these days..

[@FurianFlame129]

@@wyldeyouth she always took it as a compliment. When she would live stream people would tell her that all the time and she liked it. Don't get offended for other people ❄

[@Minmin._.]

_Actually her voice sounds deep and hoarse from the disease, people who generally have diseases that affect the lungs have that type of voice._

[@ashley-sv4lo]

I have like the same voice :)

[@Christian-do3vk]

I swear life is so unfair.

[@yamirryayo20]

It's true life is extremely unfair there are a lot of people having the time of their life and others wishing that they would die so the suffering stops. you just have to accept wathever life brings to you.

[@mojo6112]

The problem is people have lost their reason behind living. God always takes the blame because people forget he's the most just. It really sucks what happened to her, but who knows for sure she might be having the time of her after life in heaven and most of us here are living a mediocre life

[@Christian-do3vk]

@@mojo6112 I can't agree nor disagree. As a nonbeliever I don't feel the need to blame God. But i understand why people do. But you're right, people take life for granted until it's too late.

[@Christian-do3vk]

No judgement here. Honestly sometimes i wish i could believe because i know it is comforting for many. I just can't. Sometimes that's all people have left, faith.

[@mojo6112]

@@Christian-do3vk you can't? Why?

[@gibbler_]

I had a girlfriend with cystic fibrosis. She was one of the most amazing people I’ve ever met. We bonded over our illnesses at first because I have severe hemophilia but she was funny, and kind, and one of the most beautiful people I’ve ever seen. She went to college, played in a band, started a scholarship named after her grandpa, she was so much more than her illness and if you have cystic fibrosis just know that you’re more than your illness too.

[@aloeleaf]

Nate Stewart she passed away 4 months after this video :(

[@johnmora5830]

What happened to your gf?

[@gibbler_]

@@johnmora5830 we broke up. i know shes married and happier than she ever was with me. not sure what her health is like now but i know shes alive

[@Esk8WI]

yes i am :)

[@gibbler_]

@@Esk8WI you arent her

[@superholly]

When I die I’m donating ALL MY ORGANS. You are such an inspiration, Claire! Love you!!! ❤️

[@theteasweetie1194]

superholly I want to too

[@MrRazorblade999]

Darric P.L Wtf? You have no idea what you're talking about.

[@grace_2904]

Darric P.L they take your organs when you’ve experienced brain death. This is where your brain is completely dead and unable to work. There’s no true recovery from this, it just like normal death except your heart is still beating. They can take your organs several hours after brain death, and they can take your tissues, which fall under organ donation, within about a day after total death. Please don’t perpetuate false conspiracies about organ donations, as there is already a shortage of organs and several misconceptions regarding organ donation. Actually look into what organ donation truly means, as you have no idea how the falsehoods that you’re sharing are actually hurting people in need

[@kirstenpoops7970]

😭😭😭 She's gone

[@majooleonmagnani5246]

@@kirstenpoops7970 I can't believe it

[@chipchop9067]

I know Claire is having a blast everyday in the afterlife. No tubes and endless friends. We miss you so much down here but only the angels truly deserve you.

[@tigershenanigans6878]

@@candyman6905 Thank you for dying and returning to tell us that afterlife doesn't exist. We humble people of Earth appriciate it deeply.

[@ZyliceLiddell]

😇

[@Neo5GT]

Beautifully said

[@Neo5GT]

@UCkTpm76juIRoQhDT-vlgQow you idiot, learn from good beautiful people like Claire and the OP. Why you being a loser and wasting your own time and everybody else’s trolling. You’re obviously an unhappy person and I’m sure you have your reasons but turn your life around. Quit lashing out at others and improve yourself - start now

[@stacielliott3311]

Because of you, I just checked my organ donor status. Turns out I wasn’t registered (didn’t complete a step). Because of you, I’m now an organ donor. Thank you.

[@IfYouMeetAWolf]

Go you! :D

[@claudiasally6496]

No, thank you.

[@zelo533]

Claudia Sally why not?

[@maxmustermann1455]

Nobody wants my organs (or blood) because of T1D, otherwise I would be a donor. Seriously no clue why people would be against being a donor. It just should be the other way around. Everybody being a donor by default unless they opt out for religious reasons or whatever.

[@Tiffytiff93]

Welcome to the club

[@cascadianseagull]

She really seemed to realize all the risks in the procedure. She was beyond her years, an old soul. She helped me alleviate some of my anxiety about death, but I'm still so broken about her passing away. She's made an impact in my life for sure.

[@dozydoe5245]

I use to cry at the thought of death. It would cause me really bad anxiety too. And she helped me cope with that through her videos and positivity in the face of it all. May she rest in peace. ❤🌹

[@silverbowftw5225]

@@dozydoe5245 aw mannnn D,:

[@jojox9791]

She truly was amazing. I believe we are all here for a purpose. Whether it be to help someone, teach someone, whatever our reason....we have a reason. Claire touched so many. Sadly I didn't find her until just this week. I am fascinated by her courage. Her love. Her light!! She is Very bright angel. Of that i'm certain. She is doing everything her earthly body would not allow her to do!! Rip sweet girl. Breathe.....

[@caribrown48]

The truth is, people with CF have to grow up really fast. They have to learn to embrace the fact that they are going to die. Until there is a cure, this is the reality of living with CF.

[@practicalintuition4030]

An old soul? The fuck? Bitch, who taught you that?

[@brandonjohnson3558]

When you find a new KZbin channel you fall in love with and didn’t realize she had already passed. Rip.

[@Ardeleus]

Very true..

[@uttaranhalder1855]

true

[@Dopegurldesss]

This showed up in 2020 and I’m heartbroken 😔

[@dgaf2219]

Same 😑

[@petrosmixides2843]

Imagine if the external reason she died was covid..

[@niamhdocherty5508]

I have depression and you being so positive helps me to try and see the world as something beautiful. You are an inspiration to me, I remember finding you out years ago and I’m so glad I found your new channel💓

[@stratchic]

Same!

[@Neitha98]

Niamh Docherty exactly, That's why I love technology in this way we can be connected and having help from people so far away they influence us even stronger then people around us!

[@thenerrdpit7441]

same!

[@dovestone_]

Same

[@blubbblubb6239]

same..! I also have depression and see Claire as an huge inspiration and role model! She gives so much hope and lives her life! I really try to see things like her sometimes...

[@hannahrenahouston5919]

You've spent these 21 years of your life helping other people. Watching your videos definitely helped me, and so many other people and no matter what happens in the future I'm glad you get to know that your life has really made an impact on the world and will continue to do so long after you're gone 💜

[@jennamacdonald4596]

A family friend who has CF got a double lung transplant, and recently turned 50! Sending love, luck, and well wishes.

[@christinegraham9069]

Jenna MacDonald wow, that’s impressive. :)

[@dncviorel]

Christine Graham Yeah, I'm pretty sure Claire will get to live at least 40 years, she'll probably marry someone, and even have children and such. I'm confident things will turn out much better than she currently thinks.

[@samanthamcgill1973]

That's awesome. My friend Suzanne who has CF got a double lung transplant 13 years ago - she's now 45, just got married last year and is enjoying life to the full. :)

[@humannature4327]

Thanks goodness, if they can live, she can live too..i.am.so happy after knowing that there are people living with CF..hooooorrrreeeeyyyyyy, now i have this ray of hope that i can see her live a longer life ,before i read your msg i was so depressed, but now i am bit relaxed

[@jiminie6788]

Sadly Claire passed 🙏🏽❤️ RIP

[@alexsevilla4974]

Whenever I feel like life’s not worth living or have no hope for the future, I always watch Claire’s vids and somehow they give me hope.

[@homiiciidalkiitten6650]

I had a heart valve transplant and I was so scared but yet here I am typing this to you. I pulled through, so will you. Stay strong. You got this.

[@Chilupiano]

Clair I’ve followed you for years now. Words get in the way. Thank you for sharing such intimate details of your life. Love you always. Keep us posted if you can.

[@bellamclaughlin9721]

same

[@camnicole900]

Yadira L. Um...... yes it is

[@anurse2794]

Yadira L. Yes it is, the other one started taking her money and treating her badly so she left it. Watch her video on what it's like to die. She speaks about why she left the clarity project. This IS her channel.

[@anacristinadelrosario]

Mundo Despierto Chalupian! 💜🎉

[@Edward-ko9pn]

Claire you are not alone in your situation. I too have a terminal illness. I have metastatic Cancer. Oncologist says the Cancer will eventually take my life but also says he does not have a crystal ball so can't tell me for sure when. The one advice that my oncologist gave me was he told me to start living my life now!! So thats what Im doing. In the last two years I have traveled the world and even just recently bought a motorcycle that I'm going to ride all summer long. I am single, alone but I have family and friends to help me through this. Claire I know with your health declining it's hard to still do the things you want to do, however still try to do what you can perhaps with help from others that love you. Solidify your plans for the lung transplant and then let it be and after continue to live your life right now, in the present moment. Cheers.

[@notsafeformiranda4271]

You probably get annoyed when people call you an inspiration for having an illness, as I do as well, but thank you. My disorders are not terminal for the most part and probably won't kill me, but hearing from others that "you can't let it stop you" helps so much. I'm 16 and want to heal others, so I have been working my ass off despite everything going on to accomplish my goals of becoming a vet. One year from now I will be 17 with my vet tech degree which I'm super pumped about. I also have an internship at a vet hospital which is a lot of physical work so it can be very hard at times, but I push myself. At the hospital, I am surrounded by death. Ironically enough, death has become a large part of my life, and I'm okay with that. On my second day of my internship, my boss and I euthanized a very ill dog. It was incredibly sad and my heart broke for him, but it wasn't hard to do. He was suffering and even he knew it was his time. We all reach that point of acceptance eventually, where we realize that it's the quality of life not the quantity/length. This dog had a joyous, love filled life and was genuinely happy. When he knew it was the end he was okay with that. I believe he felt fulfilled in a way- he had done his purpose of bringing joy to himself and others. I tend to use him as an analogy for being ill in humans. He had treats and played with toys, and you are traveling the world on a motorcycle. That is incredible, and something that many people, even healthy ones don't get to do. You are living life to the fullest and reclaiming your happiness. This is one of the bravest things anyone in your situation can do. So, I do not know exactly what it is like to be in your shoes, but what you wrote has definitely given me a more positive outlook on life and all the challenges that come with it. I wish you the best with all of your adventures and excursions. Whatever you do, don't give up on happiness

[@calliecooper99]

Edward prayers for you 🙏🏻

[@caryulmer5578]

Edward, You are so right. I have 2 terminal illnesses, cancer & a lung disease.Treatment didn't work for cancer; is no treatment for my lung disease. Was told I probably had months to live in 2012, but I'm still here, even though I'm told it's not medically possible. I too decided to live a full life the best I can. Like you, I also ride a motorcycle (Yamaha Maxim). Claire is right, serious illness demands much of your focus, (colds can easily turn into pneumonia etc.). I mostly require oxygen but I do go without sometimes, when I need to pass myself off as 'healthy'. I know I can do that until my oxygen drops into the low 70's (I pass out below 53😀); it's risky, & I try to avoid doing any of this if possible. But life sometimes gives you tough choices. You can't let the illness totally run your life or else you have no life. I too am now single, (my husband died from a heart attack last year), & have had to return to the workforce. It's hard disguising the illnesses at work, but luckily my job as a legal consultant mostly allows me to work at home. My options for work being limited; I have an emotionally abusive employer so its a high stress environment. But it is what it is; overall everyday is a blessing. I have a beautiful home, and (mostly) a beautiful life. I consider myself truly blessed, am proud of my strong body/immune system, & know when my health eventually declines I'll adjust & still live as full a life as I can. Meanwhile, I'll do my best contributing in a positive way, & love every minute of it.

[@notsafeformiranda4271]

cary ulmer i love your outlook on life. I’m sorry that you’re going through so much stress but you seem to be coping really well. The fact that you’ve surpassed your life expectancy by 6 years is incredible. I’m honestly awed that that’s possible for someone to have so much fight in them. As for your husband, I am so sorry for you. I know that must have been very hard as well. And your boss sounds... well, like a complete dick. You are surrounding yourself with positivity and not wallowing in it. Of course you’re still having you’re struggles, some of which could be terrifying, but you’re doing great. I wish you the best, and you’re really kicking your illnesses ass because you’re not letting them take your happiness

[@lemonsqweezy9532]

What bike did you get?

[@lockeddownboxing9904]

That girl deserved the best for what she's been through. I am CF too, just turned 21 this month. There is no life expectancy for me as I am in a blessfully great condition. My best lung test was 113%, currently I am around 80% but I've been through many infections during the past two years and it is still better than a lot of healthy people. I know I can raise these levels with physical activity and that's why I had 113% because since I remember I've been doing sports. Football/soccer for american readers, basketball, running, swimming, workout, gym, gymnastics, muay thai, bjj, boxing, wrestling and I am still doing to this day and I am in a great condition and shape but I can relate to her feelings and ups and downs and I hope she had her very last moment as she really wanted it to be for that situation. Rest in peace Claire!

[@mashpotter6158]

Congratulations 🙏🙏 that is amazing to hear 😁

[@daleowens7695]

Holy shit dude! How is that possible with CF? I thought pretty much all ppl with CF were like Claire. Were you just "lucky", in the sense that for w/e reason your CF just isn't as bad as others? W/e the reasons, congrats! Keep doing you!

[@lockeddownboxing9904]

@@daleowens7695 correct, I am a lucky man but I’ve been doing sports almost my entire life, since I remember. 6 days a week. I was into street workout, running, American soccer, basketball, then I was swimming, doing gym, competing, then I found my true passion which is combat sports. I started training Muay Thai and I’ve been doing it for 7 years now. I did boxing as well, grappling. I cannot really tell but without all this I am almost convinced I would be in a condition 10x worse.. the first 6 months of my life I spent in hospital with not so much positive predictions, I spent almost every Christmas alone (only parents were coming) in hospital due to infections, then I started doing sports, had 113% fev. Life can be beautiful with a little luck and hard work. I am pretty small naturally so sometimes people when they see me they worry if I can grab a box of 20kg for example meanwhile at the age of 15 I was deadlifting 120kg weighing around 55kg. I have developed top strength for my body and top endurance, I did marathons, many cool things for an “average” person. I love it and I’m only at the beginning! I also speak fluently 3 languages. I’ve done many jobs you’d do only with a diploma YET I don’t see anything special about me in this context, many people are capable of such things. The thing is you need to find your style and keep your head up! I know other people can do better than me but I expect from myself and I work for it, it’s not a blessing necessarily - I’d say it is getting to really know yourself and do what you do.

[@MythicBricks]

@@lockeddownboxing9904 wow dude I'm impressed. keep it up and stay strong

[@jessicah3450]

How do you breathe well enough to do all of that? 😳 Unfortunately for many of us with chronic/terminal lung diseases, our bodies can't handle that much exercise, and it is not a choice. But good job for you that you can!

[@livvjanee]

I’ve got CF I’m having such a hard time at the moment, they’ve just found 3 infections so just started my IVs today. I used one of your videos in my awareness assemblies, you’re an inspiration to all of us!!☀️

[@Smiley9915]

Liv Jane stay strong hope you feel better ! U got it ☺

[@BamitsSam4682]

Sending love to you❤️

[@Maadthreads]

Will be thinking about you!! Feel better❤️❤️❤️

[@pawaniyer2320]

sending the biggest hug to you Jane I'll pray you live forever and make the world stronger with your positivity *huuuuggssss* ❤️

[@PsychicMedium-Patricia.]

🙏🏽🕉🙏🏽💜 Sending you much love & healing light darling Xx🌈💜

[@kikicorleone3525]

It's really good seeing you again.

[@pizzelle2]

Knowing someone like you is out there in the world makes me a happier person.

[@CaseyAngelicaHardy]

The inner strength she had is so inspiring. Though she was dying and was probably terrified she still smiled and had such a positive attitude regardless.

[@Steven-lz7on]

Casey Hardy a more important thing to ask. Does my polo shirt look good? Or too many buttons undone?

[@CaseyAngelicaHardy]

Steven you dimwit.

[@Steven-lz7on]

Casey Hardy imagine we were both kidnapped and locked in a small cage together with no food or water. We’re both stuck in there getting very hungry and thirsty, what would you do?

[@CaseyAngelicaHardy]

Steven wth?

[@Steven-lz7on]

Just it happened to me. I got kidnapped along with a woman, we spent 5 days in that cage got soo damn thirsty it got unbearable. We both wore polo shirts, no food either.

[@CP9_Shino]

Stay strong Claire. Prayers going out to you that you get your lung transplant and it goes well!

[@haileysapienza7749]

PinoyShinobi ....well it doesn’t

[@1misstae]

RIP Claire. You were truly an inspirational beautiful soul.

[@christinahester1422]

callme_shantenicole did she pass away ???

[@nicolettedrewes1064]

Elise Marshall there are posts on @clairesplacefoundation @meliss.yeager1 @claire.wineland and @john_wineland on instagram

[@missingmagoolallahhaunaxar1160]

Okay Fr this is so sad, life's too short for the meaningless things you worry about. May she Rest In Peace and may the almighty guide us.

[@Susanarylander]

Is it true that she passed away??:(

[@nicolettedrewes1064]

susana rylander yes

[@isashisha]

rest in power sweet angel. you did more good here in your short life than most people who live to be 100.

[@goldenboyi1989]

mOST people who live to be 100? stop hating and being vengeful.That statement cannot possibly be true, do you know what most people over 100 have seen and done in their lifetimes? Besides making videos

[@isashisha]

Five EyeSights shut the fuck up and dont hate on my posts. i can post my opinion wherever i want and NOTHING was being vengeful. MOST people do not care to do the amount of good that she has. she started 3 foundations, wrote a book, went on campaign speechs while carrying her oxygen tank unable to even breath on her own. what the fuck have YOU done but troll videos and leave shitty remarks for people in mourning over losing somebody they cared for? way to go loser. hope you feel awesome about your loser comment.

[@opiumbrella1367]

Wow. You call her the names that your actually being. Claire did a ton. Saying she did more than most who get live a full life is not an insult to anyone. Most people just don't touch as many lives as this woman did. You are very hipocrytical.

[@Toastsandy]

Rest in power.. I like that!

[@Casesilver]

@@opiumbrella1367 when did i talk to you, just getting in a disgusion your sick! And i can say what else i want I'ts my opinion so i don't want a stupid ass getting in my way!

[@zer0chill241]

KZbin shoves this into my recommended 2 years to late. Rest In Peace

[@ussr95]

Rip

[@Ana_MF]

I found your videos the year I lost my brother to MS and your words have helped me a lot understanding life and what it really means to value our time on this planet, to enjoy the moment, even when it doesn't match this crazy ideal of perfection we have in our minds. It's not CF, but your attitude towards it what makes you special, Claire. If that operation is the only option, take it. You and your family are fighters. I hope you beat this whole situation and everything goes fine with the transplant.

[@NYCgirl927]

anamf sorry about your brother.

[@TheEternalScream]

Hey hey, I have MS myself and didn't think it was a deadly sickness? Coujld you perhaps share on what happened? Thank you and sorry for your loss!

[@mariadelosangelesrodriguez5858]

❤

[@Ana_MF]

It depends on the type of MS you have. At 16, My brother was diagnosed with a really aggressive form of the disease. Doctors said he could live 5 or 6 years but he stayed with us 13 years. During that time we meet other people with MS, many of them had treatment and could have a life as normal as the disease allowed them to. I'm sorry to hear you have MS and maybe what I said scared you but please remember your type doesn't have to be my brother's. Just listen to your doctors and don't focus on other cases because it doesn't affect everyone the same way. Never give up. I send you a big hug and all the best for you and your loved ones ♥

[@luniette]

I've been watching you forever, and the thought of you suddenly not showing up on my subscription box anymore is just so heartbreaking...but i know it wont come to that. Ive never watched anyone on here or in general be as strong as you. I mean - here i am, three years younger than you - complaining about school and my period.....Theres a reason why you keep breaking the life expectancies - i mean, the doctors thought you'd die at 5 - but here you are 16 years later making a difference in the world and living more than any of us have ..even if your body may not be strong, you and your brilliant mind and courage will get you through this transplant. I believe in your Claire, and always continue to believe in yourself.... I really hope for the best and that you get the lung transplant

[@BlogManiac64]

The Truth well said! ❤️

[@IfYouMeetAWolf]

I can recommend Emily Hayward if you want some more of that type of strength :)

[@icansurviveuniversity.imra1405]

IfYouMeetAWolf no one is fully replacable, thou.

[@janetsnakehole4836]

❤️

[@mollyee6856]

She died

[@Popskittle]

I'm a med student and I've always really found your channel very interesting. You're so human and sometimes in medicine its easy to become desensitized to what people who deal with illnesses are really going through. You are so incredibly strong. Really hope you get the transplant and all the goes well

[@TysonASMR]

God I loved this girl 😭 I listened to her podcast with Shane so many times. I’ve never heard someone talk about death the way she does. An inspiration. RIP CLAIRE ❤️

[@angelbasham6631]

She was magical

[@Auriraka]

They said her life expectation was around two years... 20 to 21.. They were right this time.. It's sad

[@bitchwormpuddin1499]

Derrick McAdoo ...wtf

[@user-yn7ku3dg7b]

Derrick McAdoo i- wtf

[@booty_hunter4207]

@@derrickmcadoo3804 the fuck is wrong with you

[@dataar7441]

@@derrickmcadoo3804 weirdo. The girl is dead.

[@Infinity2219]

@S***** sadly it was her time to move from our relm and move to the next relm, where she is sure to be at Gods table of pure souls in heaven.

[@tnteesha]

I'd love to hear about the lung transplant process. Thank you for the update. You're an inspiration.

[@AOM-wq5qd]

Even though she only posts like once every 3 months she still has a notification squad. Me

[@claire640]

and me :))

[@mieliboo1]

And me :)

[@kaylascountry1189]

Me too :p

[@meganmorris9284]

& me🙂

[@allietitone9944]

It was a year since she passed away in September.

[@sirsackolis5203]

She looked so stunning in this video, glad she found eternal peace.

[@plddevries]

"Bummy version of Claire?" Putting the rest of us to shame!

[@lu-themadpillow2985]

I know, some of us are such crybabies.

[@KalvinGarrah]

You’re so beautiful ❤️ We all believe in you and have your back through all of this.

[@hannahmichaels9992]

Kalvin Garrah KALVINNN!!!!!!!! it's so cool to see an awesome person comment on an awesome persons video!

[@tutterbutter34]

Kalvin! Hope your recovering well from surgery!

[@littlekev4700]

I love how she says « hi everyone » at the beginning, she is so sweet. You made it Claire you made it, we’ll never forget you.

[@rayray2752]

This girl inspired me and made me want to live my life to fullest, because it is so so short. Her death hit me like a ton of bricks, but the impact she made on me and millions of others will live on forever. RIP Claire. We love you.

[@mtngirlbunny9290]

My good friend from college many years ago was diagnosed with cystic fibrosis in her early 20's. She was told she wouldn't make it and even if she got a transplant she would have maybe 10 years. She got down to exactly where you are now. She eventually got a double lung transplant. I haven't talked to her recently but she is well past the 10 years with the new lungs and in her 40's now. Praying for you. I have had different long term illnesses since I was very young but not terminal. Blessings in Christ.

[@MySeasideRendezvous]

MtnGirl & Bunny Im confused? How was your friend diagnosed with cf in her early 20’s. From what I know CF is a genetic disease that you’re born with. They found my cousin had it when he was 6 months old.

[@jessloves9367]

MySeasideRendezvous Its rare but some people find out they have it later on in life.. not sure how or why they didn't know sooner but it can happen.

[@elenagibbons4719]

MySeasideRendezvous sometimes symptoms don’t appear until later in life. It is a genetic mutation that is recessive and passed on from parents but there are MANY (in the thousands) different versions of the mutations so everyone’s CF is different. In 2013, 6.8% of people were diagnosed at age 16 or later so it is possible. And since 1940, the average life expectancy with CF has increased from 6 months to about 37 years and 5 months.

[@MySeasideRendezvous]

I had no Idea, It's good to know. All my cousins and I are going to get tested to see if we have the recessive gene and if there will be a risk when we try to have kids. Thanks for the info :)

[@molliegreenough2866]

When you said you looked like a bum I was like "damn girl, what do I look like then?" Lol

[@user-hs7ms2qz8q]

Mollie Greenough U LOOK AMAZING BITCH NEVER BRING UR SELF DOWN U IS BEAUTIFUL OK???!!!

[@coffeebean2370]

Mollie Greenough I relate to this statement

[@sophiemitchell6576]

Omg same. But I'm actually ugly, you look so beautiful in your profile pic:)

[@notsafeformiranda4271]

Beautiful. That's what you look like. She is beautiful and so are you :-)

[@glorialambert8995]

My wife had a double lung transplant at toronto general hospital . she has cf and got new lungs on Mother's Day 2013 it's a tough journey and scary at times but it was great success for Gloria .stay strong and god speed wayne and Gloria lambert

[@mellumia]

Gloria Lambert Toronto General has some of the best doctors in the world. That's amazing. I'm so happy to hear!

[@haizekhaze8868]

Gloria Lambert oh w0w..I was beat1ng myself up not knowing how to make my mom happy on mother's day..what can I make her, buy her, take her...? ...and here you are jst blowing my bs out the water..wow. I must always improve and not beat myself up so much about life's imperfections or flukes. #StayINFINITE

[@glorialambert8995]

Haizek Haze you Rock Claire. Keep kicking ass.

[@MeagGallagher]

I just discovered Claire. Wow. I’m going to take better care of myself. She is still making a difference.

[@Steven-lz7on]

Meag Gallagher does my polo shirt look good?

[@Steven-lz7on]

Samantha Cole they should it’s short sleeved and unbuttoned

[@Steven-lz7on]

Samantha Cole that’s harsh. I was kidnapped once for 4 days no food or water, was soo hungry and thirsty I’m still traumatised

[@Steven-lz7on]

Samantha Cole you should care. I got very thirsty. You should go 4 days no food or water, see if you care then

[@Steven-lz7on]

Samantha Cole I couldn’t drink I was left THIRSTY! I wore this polo shirt as well for 4 days straight.

[@Megan-qe4bn]

I just watched the documentary of you with Justin Baldoni and I’m sure you hear it all of the time but you are such an inspiration. I could listen to you talk-about ANYTHING- for hours! Don’t ever apologize for being “bummy”!! You’re beautiful. I will be keeping you in my prayers 🙏🏼

[@adventurecalls4201]

My best friend received two heart transplants in her lifetime before she passed away. It was a long, hard road for her, but it gave her more time to live and be happy. I couldn't be more grateful for organ donors who gifted us that time. You remind me of her, with your positivity and light. Sending all the luck and well wishes!

[@filipe5226]

What a coincidence, I was guessing how you were today while scrolling through my subscriptions.

[@anurse2794]

Nody A me too

[@Maplelust]

well ..

[@filipe5226]

Boris Sheen yeah 😞

[@mariasalales631]

It's always the dying folks that wake the rest of us and remind us to start living! We are all indeed very fragile beings, each day is a miracle. RIP lovely soul.

[@VampFaye]

Claire, thanks for sharing this. Hopefully, all goes well for you. Being on the waiting list is pure hell. Every time the phone rings, you jump.. hoping that it's THE call. A close family member was born with a congenital heart defect. Watching a 5 yr old stuck in the hospital for months slowly dying and waiting for another child to die to save his life was a complete mindfk. Knowing that was the end game, and that a family lost their child suddenly (at Christmastime, no less) so that he could be a healthy, flourishing kid, still plays with everyone's heads. The only thing I can offer is take any counseling that's offered now, and in the future. He's asking odd questions that are being put off, and the parents have just ignored the issue. This is only going to make it worse as he gets older and really realizes the implications of what it took for him to live. Yes, a grieving family made the ultimate gift (6 lives saved, and many more helped) during the worst time of their life (car accident) and I admire their courage. It still doesn't change the facts. Never forget the impact you can make, even after you're gone...

[@dotdotdot3898]

VampFaye hopefully he will realize that the kid didn't die FOR him, but that because someone else didn't make it, he made it.

[@VampFaye]

Dot dot Dot As he gets older, i'm sure it will

[@KrikitKaos]

I sincerely hope that no one in his life (including you) ever does anything to suggest that he should carry even the slightest amount of guilt for where his heart came from. The donor child would have died regardless. The decision to donate the child's organs means that his or her death had some positive outcomes in addition to the devastating one. That is a fact. It doesn't need to change.

[@VampFaye]

Krikit Let's hope. I never did. Sadly, I'm not in his life anymore (long story including a divorce that wasn't mine)

[@VampFaye]

Mycel Never said anything about a link other than one gave and one received. It's the ultimate gift and honor, in my option. As a former paramedic, I saw my share of horrors and one thing that always stood out was the ones who gave permission for organ donation. I never understood the selfishness of not wanting to help another live. If it's for religious reasons, that's one thing but I can't tell you how many parents didn't want Johnny "hurt more than he already was." It always stood out especially the patient that gave everything - eyes, femurs for bone marrow, lungs, heart, liver, etc. If mine are viable (I have a chronic illness) then take what you can. They'll do me no further good when I'm gone.

[@katierice9247]

I’ve followed you for a few years now with your illness and everything you’ve been doing, and I really respect you. I myself live with a chronic illness. I have Rheumatoid Arthritis. It’s an auto immune disorder. So, not quite like yours, but your right. It is a struggle. And I think your inspiring to anyone suffering with life altering illnesses. Thank you for being so open about your struggles. For letting the world in on what it’s like to live this way. I appreciate not seeming like I’m alone in this kind of struggle. Your awesome! I love you! And thank you!

[@x3princessbratx3]

Katie Rice Sjögren over here 🙋‍♀️😞

[@roxbuchanan6357]

Rheumatoid Arthritis, Fibromyalgia, *and* Type 1 Diabetes here. I say thanks too, Claire. You give me something to work towards when I'm having a rotten pain day, and that's having an attitude as good as yours.

[@greenpeacesign420]

Rox Buchanan me too, i also have T1D, JRA and Fibro!!!!

[@jiminspinkyfinger9763]

As much as this breaks my heart, it's very encouraging the way you talk about it. You don't seem scared but rather hopeful and at peace at the same time. You're a huge inspiration 💕

[@rayyanshah1267]

Angels like her live a small life and inspire for an eternity.

[@lizbethgonzalez101]

Beautifully said Rayyan!

[@jenlobbins4952]

just found your channel and it’s sad that you already passed away 😭 fly high beautiful

[@Bxxxxxx]

Exactly the same for me. What a terrible loss to lose such a beautiful, eloquent girl that had so much to offer the world... What a cruel world we live in sometimes :-(

[@Steven-lz7on]

jen lobbins you want to feel my polo shirt?

[@Bxxxxxx]

@@Steven-lz7on tf are you talking about?!

[@Steven-lz7on]

Bexxybex just want to know if my white polo shirt looks good?

[@Bxxxxxx]

@@Steven-lz7on look in the mirror. You're a big boy, I'm sure you can work it out 😂

[@copingwithbehcets6947]

Your outlook on CF has changed how I handle my own chronic illness. Everyone tells me when I'm positive in the hospital, that they're shocked. I tell them to go look up Claire Wineland, haha. I follow others now, too, and have my own instagram, and will be starting up a KZbin, too. You've started it all, given me a reason to not live in my illness but instead, use it as a stepping stone to help others.

[@francescafrancesca3554]

Coping WithBehcets You are so strong. What is the name of your Instagram account?

[@sophiemitchell6576]

I'd love to follow your KZbin channel once you get it started!

[@notsafeformiranda4271]

Same here. Is this the KZbin where you'll be posting?

[@libbyt3550]

whatever happens I legit feel like you've changed my life so thank you, all the love

[@tylerdurden1663]

RIP Claire it’s 2020 I’m still watching this.

[@xxxxwolfiezxxxx5004]

Oh my god... I could listen to her talk all day.. she is so interesting.. I wish she was still here.. I love to listen to her voice and her stories, they are so interesting.. her personality is just so lit up..

[@acgillespie]

If only all females could be this awesome... think of the possibility's

[@pv4842]

That's what the knowledge of knowing you'll be dead any minute does to you, and more people should really be like this. We could all die any minute, let's be grateful for all life is in itself.

[@hiryuulegend8825]

I'm new here but let me tell you...You wanted to make a difference in the world, and you've done just that. You're one of the most motivating people I have ever met (or I guess seen?) and your words have greatly changed my views and perspective on life. I can't thank you enough for sharing your life, your stories, your interests, and your beliefs. This really inspired me to do my best in everything I do and love and appreciate everything I have. I really hope for the best for you and your loved one. Thanks again Claire, we love you!!!

[@KateCarew]

Claire, I pray you get your transplant and that your body accepts it with minimal disruption, I'm hoping you remain a fighter as you face the inevitable that we all must face...to know we gave it our all, to feel like we aren't trapped, that's all anyone wants. The absolute worst, most devastating thing to hear is "there's nothing more we can do" I pray you never hear that. I empathize with the thinning out of options and feeling like you're in a corner, a transplant is terrifying but I'm rooting for you along with everyone else touched by your eloquence and perspective. You're an intrepid fighter and I know, if nothing else, you'll keep going as long as you can and we all benefit from your example of how to confront mortality with grace. None of us are exempt and I for one am grateful, so grateful for your wisdom and insights so freely shared. Thank you Claire, you're in the hearts and minds of all of us, let's hope there is power on numbers ❤️🙏🏻❤️

[@KateCarew]

Ugh In not on

[@ahoodm8213]

She was full of hope..why do I cry every time I watch her videos You are gone in your body, but you are not gone from our hearts Everyone will die and be forgotten, but they are rarely in our memories and hearts like Claire peace to your soul

[@heatherclark2701]

Good luck, hope you end up having a successful lung transplant. Thanks for updating us, wishing you the best and more time 💙

[@adriianbacha]

Sadly she passed away due to a stroke just after she had her lung transplant 💔

[@leiseboswell9848]

Hearing her say less than a year really jarred me. Rest easy angel

[@troy2478]

I wish you all the luck in the world on your transplant. If it can buy you 5 to 10 years that is huge. Science is always moving forward and there are break throughs every year. No one has a guarantee on life. The best we can do is try to keep the game going as long as possible. You are an inspiration to so many people.

[@jessicah3450]

Thank you for communicating how having a terminal illness FEELS. It's difficult to even sort out my own thoughts about it. I wasn't born with my illness, and it's very rare, so there's no one I can relate to about it. So, it's especially hard to explain to people who don't have a terminal illness, even close friends and family. I hope I can get my Port soon, goodness that would make a difference. I have 1 vein that still works, and it was stuck 3 times this week. But try to convince the doctors and especially the insurance company that it's necessary to improve my quality of life. Those little things like having a port and finding my nebulizer that make my breathing treatments twice as fast mean a lot right now when I know my time is limited. But they seem to only be for people who can pay for it out of pocket, but still such blessings when you manage to get it. You're still a gift, Claire.

[@rheagalarneau1366]

You inspired me. I wish you were still here. Just remember you are loved even in death. The lives you touched, the people you’ve changed.

[@notbad4-45]

. When you turn a certain way you look a little like Angelina Jolie

[@brennat124]

misty howell I agree! I also think she looks like Kaia Gerber

[@annabellj.54]

True

[@thenextresponseiswrittenby2853]

misty howell I was thinking the same

[@sonyvalencia]

misty howell I think she reminds me of Hillary Swank and a tiny bit like Angelina.

[@rachelgarcia5697]

misty howell I agree

[@bethgardner2252]

"Let alone what it's gonna look like a few months from now" this gave me chills ☹ rest in paradise claire

[@Steven-lz7on]

Beth Gardner my polo ok with 2 buttons undone?

[@Bxxxxxx]

@@Steven-lz7on you're under multiple comments here asking about a fu©king t-shirt ya wierdo... These are comments paying respect to a girl that suffered for years and has now died... What the honest fu©k is wrong with you?! Get a grip, and have some respect,,, jheeeeze.

[@Steven-lz7on]

Bexxybex its a polo shirt actually

[@Bxxxxxx]

@@Steven-lz7on which IS a t-shirt u idiot... U think ya slick trolling a dead girls comments.... Oooooh aren't u edgy.... Fu©king clown.

[@jacksonb1001]

I still can’t fully fathom that she’s gone, she brought me so much comfort just a few years ago and I remember feeling scared but excited for the chance for her to have a better quality of life when she said she was getting the transplant and when I heard everything went well I was so happy, I still want to think she’s just recovering and will post a video any day now. RIP Claire, you’d know what to say during a time like this

[@elegory]

The way you described not wanting to make your illness central to who you are, but failing anyway due to the reality of chronic illness resonated so much with me. I have a disorder that, like yours and like most, affects me every second of every day. And I hate that it is so central to who I am but how can it not be when it affects everything I do? It's a difficult balance to maintain, and this whole conundrum is one of the reasons I 'left' the chronic pain community recently. I find a lot of people in that community *do* make their whole lives about their illness, and thought I understand it's hard not to, its so counterproductive to living your best life. I don't know, I don't really have a point or any answers, but I just am so content to know that I'm not the only one that feels this way.

[@Aurora292]

Adele I really relate to you. It was a shame because I thought joining the community would help but it just seemed so focused on all of the negative.

[@jammiebaker4811]

I take my life for granted I abuse my body I poison my body I'm a shit I'm going to change my life

[@shallandavarpainterofsouls9509]

you go do that. you are an important person and you can make a change.

[@kryptoblade501]

you better

[@penguin-IDK]

@@kryptoblade501 dang that got bossy

[@4ntifreez]

dude i also felt like a piece of garbage by watching her in her situation being so determined and comparing it to the whiny ass that i am, its definitely time for some changes

[@mazzaj89]

@@4ntifreez same.

[@amyrivers9792]

I understand you 100% because I'm in a similar situation. I have different medical issues but I was given 2 years to live 8 years ago and I've had to fight every day to stay alive. I'm mostly bedridden but I like to focus on what I can do instead of what I can't do. It's hard for people to understand that our life is basically centered around our illness. The last time I was in hospital I had a lady with cystic fibrosis in my room and we really connected and have stayed in contact. It's really important for me to talk to and try to help other people who are sick. I hope that you keep fighting and you get transplant.

[@atreju305]

Thanks for sharing your story and view with Claire and us!! 👍🤗💞

[@kathysherman501]

Amy Rivers ❤❤❤❤❤

[@amyrivers9792]

Klara Christine thank you.

[@amyrivers9792]

Kathy Sherman thank you for the hearts.

[@ytbabbler]

Stephen Hawking was expected to die at 25 but lived to 76 so there are exceptions. The big hope here is stem cell research, the less it's halted by religious reason the faster it may produce treathment for many fatal condisions. Just hope it goes fast so all of us that have a timestamp on our parts can get help.

[@lexusgarcia1486]

Did this pop up in anyone else’s recommended :/

[@nornilamsari]

I see this after 'Five feet apart'

[@madixxoo]

Before I got my kidney transplant and was still on dialysis a little over a year ago I was in your spot (except kidney wise lol). I was in college and my mom had just died and my partner was about to leave for the military. I was on treatments for two years before I got the kidney. For christmas, all of my friends came home for the break to come be with me after my mom’s passing and just make it fun and make me feel better. I remember everyone holding me especially close but I didn’t realize (and they didn’t tell me until after I got my transplant and was healthy) that it wasn’t solely because my mom died but because I looked gravelly ill all of a sudden. My health went from doing okay to near death in about 6 months. I was suddenly in the hospital all the time and sick constantly and too tired to finish my treatments. I was always in pain and exhausted. My friends and nurses and family were all terrified that I was going to die. Then, January 27th, 2017, I got the kidney, and it saved my life. Perfect match. Still functions amazing to this day an entire year later. But you are so right!! It’s not a cure, just a treatment, and a lot of people don’t know that. However, I’m grateful for the extra time and really think it was worth all the risk and struggles at the beginning. I wish you nothing but the absolute best of luck and I hope you get any and everything good in the world xx

[@atreju305]

That's great!! Encouraging story!! Thanks for sharing it with Claire and us!! 👍🤗💞

[@IfYouMeetAWolf]

You have a wonderful, big smile :) So happy you get to give people some of that still ^^

[@psychedellictoxin1195]

SHE RETURNS! Whooooo!

[@rosesrosie8564]

We really do take time and health and life for granted 😢

[@maxmustermann1455]

Because it is. Until it isn't anymore.

[@marlabroussard689]

Absolutely .....

[@saintelisaiasthegreat1021]

It’s so weird, she popped on my recommended, I really liked her and watched almost all her videos. Suddenly I realised that she hadn’t posted for three years. I cried and cried over a person I hadn’t met before. She was an incredible person♥️♥️♥️

[@majolie2426]

I've always admired your choice of words when you speak, you have a great vocabulary. I wish all the best for you Claire, your very inspiring and I think about you often.

[@betsybabf748]

I watched this last night. I haven't wanted to do much of anything, even wake up each morning. My husband of 23 years died suddenly shattering my world and my life, with a second blindside of my mom dying shortly after (my entire support team gone at once). Then as a result, we lost our home and all we worked so hard for since we were teenagers. I face everyday because I have our 5 children to raise, but surviving has been all I could handle. This hit me so hard last night feeling guilty because I can physically do things (just have been avoiding), that tonight I took the kids to grab dinner and have a picnic on the beach, watching the sunset.

[@reesewitherfork6142]

BA BF my heart genuinely goes out to you. I know it doesn’t mean much from a total stranger, but wow.... you are stronger than you know and I can see that clearly just through your one comment. You get up and you take on the day even through the darkest time in your life and that alone is truly inspiring. Just getting out of bed each day and putting your feet on the ground will make you stronger one day at a time.

[@aureazucenaa7058]

BA BF Keep it that way you have five reasons to live for and they need you more than anybody else stay strong Gid Bless you

[@maddieisreallycool2433]

Aurea Avila 6 reasons..

[@RafaelzJuicexD]

BA BF Don't feel guilty. Suffering mentally is just as valid as suffering physically, even if other people can't see it. I'm so sorry for your loss and I hope you stay strong.

[@jae3252]

BA BF, as you miss your husband and Mom in the physical, know that they are always with you in spirit. They send signs and will continue to send signs. As you find peace with their transition, the signs will become more evident. Love and light to you. 💜

[@youfoundwaldo77]

You are a true inspiration, and I don't mean that in just a throwaway compliment kind of way. The person you are is someone I dream of being. I'm terrified of dying, so much to the point that I get daily panic attacks about it, but your videos about staying happy despite an illness, despite a constant looming of death is incredible. You are and always will be awesome.

[@jeremysmith54565]

sophie m yeah for some it can be scary but when you've once either died and come back (which does happen occasionally) or I was rather very close to once and me I've got a dark sense of humour plus have a chronic illness ontop of that a whole load of things

[@annak3325]

i feel you, i also get panic attacks about dying, usually in the middle of the night without my control. it sucks because i dont want to focus on something that i can not prevent.

[@alyssawashington1493]

I get panic attacks about dying every day too!!! 😭 I thought I was alone

[@nataliedenton1299]

Hi Sophie, I used to be stricken with this. Once I found Jesus He took me into His arms and gave me rest. God bless you.

[@GiftedLife]

sophie m hey lovely, do you have CF? I have CF also and am 8 years post transplant x

[@stungbyahoneybee]

This video was just recommended to me today, 2 years later. I'm so sorry and may you rest easy, Mrs. Wineland.

[@marthadineen565]

Good luck with the transplant. I genuinely hope it gives you a great quality of life after it ♥️

[@millennialstray4215]

Claire, I'm sorry for what's happening to you. My dad just lost his battle with cancer (never knew why people said "battle", thought it was annoying and dramatic) please keep doing these videos, tell your loved ones how much you care about them, please let them know what you wish for them (if / when) you go. You beautiful girl, I hope you get better. But if your path is to leave this world, I will smile for you knowing you are hopefully in a different reality where you are free of this disease and can use your shiny personality. This universe works in weird freaking ways, your paying with your health, I hope what your purchasing is something you cannot even grasp how amazing it'll be.

[@frogy4813]

Keto Rose beautifully said! (Although scary as I have terminal cancer as well.. 37 and young kidds😢) But I believe in accumulated karma, and her next life will be filled with an abundance of all things blessed and beautiful ❤️❤️

[@millennialstray4215]

R.D. S. To be honest the scariest thing for me was wondering if my dad was scared to die, if he didn't want to. Because that would truly have broken my heart. The fact he was ready and willing to go honestly is the only reason why I'm not destroyed inside. I hate that this is happening to you, I hate that your kids have to tell the story of losing a parent without any say in it, but dammit if there has to be a bigger reason for why you are having to give up your health. I'm not super religious, but I honestly would be ignorant to think we are here simply to exist and then go. I hope you find peace.

[@scarletunknow1565]

Keto Rose ikr I hate when people say battle because really the only one fighting is the doctors, but I’m sorry!

[@doctorinadaze]

Millennial Stray i smiled so big reading this comment. rest in power, Claire. she was the most inspirational person ever to have been seen by me, and I believe I can say the same for others. ❤️

[@doctorinadaze]

Jeremiah Tassinari Amen.

[@thomasstelling9793]

I will never get over her passing. She was such a lovely human being

[@laurenward256]

She was so beautiful inside and out. I always come back to hear her wisdom and courage and wonderful way with words but I wish she was still here and there was some cure for all of these awful illnesses in the world. I like to think there is something out there when you die and they needed her there because she was just too amazing for this universe. RIP Claire.