That is exactly the way I felt and the reason I said to have someone to stand close to you so that they could keep you from falling . I am now to the point where my tremors get extremely bad and I cannot close my eyes when showering for fear of falling over but the strange thing is all I have to do is to touch the wall of the shower and I’m OK!
@positivelyParkinsons4 ай бұрын
I exactly the same! Washing my hair is a nightmare, my balance is so bad. The joys hey!
@clofireblade4 ай бұрын
Hi Lisa What is your worse symptoms and how do you fight it I am on medication for Parkinson’s but have to see a neurologist soon
@positivelyParkinsons4 ай бұрын
Hiya! My worse symptom is still my tremor in my dominant hand. I am on medication for it but also use the Vilim ball to try and reduce the tremor. What medication are you on? The other tough one for me is fatigue but I fight that with meditation, breathing, exercise, good diet. Drinking lots of water really helps too! Make sure you see a movement disorder neurologist. Keep me updated. Lis
@pigbin10662 ай бұрын
🙏 thanks 🙏
@positivelyParkinsonsАй бұрын
You’re welcome 😊
@iCanHearUSign2 ай бұрын
I have YOPD a genetic type. I have the clawing and inversion of the left foot. It’s a focal foot dystonia which is a symptom of Parkinson’s. I have tried Parkinson’s meds that didn’t work for the Dystonia. I have a brace that helps with walking. In a few weeks I will see my Neurologist for Botox injections into the foot to relax the overactive muscles. Fingers crossed it works ! It wears off so needs to be repeated every 3-4 months by a qualified Neurologist specializing in Botox injections.
@positivelyParkinsons2 ай бұрын
I have heard botox can make a difference. Would love you to keep us updated! We have to keep trying different things until we find something that works!
@iCanHearUSign2 ай бұрын
@@positivelyParkinsons I will keep you updated 👍
@positivelyParkinsons2 ай бұрын
Thank you
@Karlos-743 ай бұрын
I recently turned 50 too 🎉 I try to walk 5-10 minutes a day with bare feet. Walking on an uneven surface barefoot makes all the smaller foot muscles work. Which in theory ( hopefully 😂) will help with balance. It is also a good way to ground the body to earth. Grounding is also good for PD, but haven’t noticed any difference yet. Loving the content!
@positivelyParkinsons3 ай бұрын
Love that! I just try to move my body as little or as much as I can everyday x
@ron4jon3 ай бұрын
I have CLAWING FOOT also which interferes with sleeping due to cramping in that foot. And several other PD symptoms'.
@positivelyParkinsons3 ай бұрын
PD really is the gift that keeps on giving isn't it! Sending you my positive energy for a great day ahead
@SuperAbebaby3 ай бұрын
thanks for Sharing
@ronpreece34294 ай бұрын
Have you tried the Vilim Ball for Parkinson’s and Essential Tremors ? Blessings
@positivelyParkinsons4 ай бұрын
I have thank you. I just purchased one and think it is amazing! It only gives me a little bit of relief but I will try anything to give my hand/arm a rest!
@danrussell11834 ай бұрын
Have someone stand near you and close your eyes and extend both arms forward and see what happens. This is a test they gave me to determine Parkinson’s disease.
@positivelyParkinsons4 ай бұрын
Thanks. This is one test I have not done. I did it yesterday and my dominant hand tremor goes crazy and I get dizzy and feel like I am going to fall over. Is that how you felt?
@psychlife793 ай бұрын
I also developed hammer toe. It was the first sign I had Parkinson's Disease rigid dominant. The tendons that are connected to the top of the toes became rigid and pulled the toes up. I went to doctors for 4 years before I was diagnosed with Parkinson's. Once I started the Parkinson's Medication my toes went flat to the ground for the first time in four years.
@positivelyParkinsons3 ай бұрын
wow! I have not heard of that symptom before! That is the hard part about PD isn't it.... everyone has different symptoms and treatment. Think that's one of the reasons why it can take so long to be diagnosed. I am glad your toes are flat to the ground now!
@iCanHearUSign2 ай бұрын
What was the medication?
@iCanHearUSign2 ай бұрын
@@psychlife79 what was the medication that helped your toes go flat to the floor again?
@mohabatvirk2133 ай бұрын
I had this issue probably in its worst form,when I had a viral attack. I could not sleep. I used to tie with a foot support which I bought at 😂Walmart. But there was no relief. Since I m ex military , I went to see my Nuro physician at Military Hospital. I was admitted for five days but no relief except when the evening Nurse used to pass a painkiller and I could sleep. After discharge from hospital,One day a friend who is general physician came to visit me , he prescribed some medicine which was essentially vitamin and found my night was better. Later on he prescribed some anxiety medicine. Both combined have reduced my pain but I do get cramps and claw foot at times.
@positivelyParkinsons3 ай бұрын
I feel for you! We all just have to keep trying different things don't we. Not only are symptoms different for each person but so is response to medication or solutions. At least we now have each other xo
@MummyJo14 ай бұрын
I often feel like one of my feet are crawling
@positivelyParkinsons4 ай бұрын
I feel for you! It is a weird sensation isn't it! Does yours cause you pain?
@MummyJo14 ай бұрын
@@positivelyParkinsons Yes it does cause me pain
@positivelyParkinsons2 ай бұрын
Ive just started using magnesium oil in the middle of the night when I am in pain. Not sure how much it is helping but I shall keep going! Has yours settled?