Congenital Heart Disease: Tetralogy of Fallot (Full Version)

Learn more about our Adolescent and Adult Congenital Heart Disease program: bit.ly/19WOHjn
To learn about Tetralogy of Fallot, visit bit.ly/ULDewt
To watch a detailed video about Tetralogy of Fallot, visit bit.ly/ULF9Ba
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Why would a college student from Buffalo, New York travel 350 miles across 3 states to receive treatment at a children's hospital in Columbus, Ohio? Because Nationwide Children's offered that student something he couldn't find anywhere else. A plan to fix his heart and avoid multiple open heart surgeries over the span of his life.
Meet 20-year-old Mark Morris. Mark was born with Tetralogy of Fallot with Pulmonary Atresia. Tetralogy of Fallot is a congenital heart defect that is made up of 4 problems and results in not enough blood flow to the lungs:
• Ventricular septal defect (VSD): A hole between the 2 bottom pumping chambers of the heart (ventricles)
• Pulmonary stenosis: Narrowing of the arteries that supply blood to the lungs
• Overriding of the aorta: The aorta (major artery that supplies oxygen blood to the body) normally comes off of the left ventricle. In TOF, it sits over both the ventricles and "straddles" the VSD.
• Right ventricular hypertrophy: Increased thickness of the walls of the right pumping chamber (ventricle).
Adolescents and adults with congenital heart disease have different considerations than children. The Adolescent and Adult Congenital Heart Disease (ACHD) Program at Nationwide Children's was created to meet the medical and surgical needs of this unique and complex population, and is comprised of a dedicated team of medical experts who have devoted their careers to the care of these patients.
Join Mark and his family for three life-changing days at Nationwide Children's Hospital. Be there as Mark undergoes testing and treatment, and makes decisions with the help of our ACHD team.

[@1TheREALLYREAL]

Its good he have parents.. I had my surgery at 1 and a final at 17. I had to deal with it on my own being i was adopted and kicked out at 16. I remember being in the hospital alone and jogging around the icu with tubes and the fluid drainage machine in my hand.. I also had to do school work once i left icu. I am now 30 with a degree in Electronic engineering

[@IAm-Jupi]

That is amazing! True strength.

[@MrGuysef]

I also have tof. My first surgery was at 1 second at 11 third at 22. This is an amazing post. To all with tof we've gone it far🙏🏾 Our experience/journey will allow future children with tof to receive bettercare.

[@candycane359]

Hi my son is 1yo and 7 mos. He has tof

[@ddevshri]

It is really a booster to see videos of this kind . A case , a success story where people are really afraid . I am also one who has congenital heart disease and am really afraid to go through an operation . But, i must say Mark's story has made me stronger . I hope to live a healthy life after my operation . Thanks for posting .

[@tinkiewinkie2411]

I was born with this defect and had my first open heart surgery at 6 weeks old. I’ve had two open heart surgeries and countless appointments. A catheter surgery will be my next one. I’ve never met someone with my condition and it’s so nice to see someone with this condition.

[@lesleygeorger119]

Thank you so much for sharing this! My 2 year old son also has TOF with PA, and we also live in the Buffalo, NY area. So, Mark's story has really touched me. I wish him and his family all the best.

[@debbiekilgore6846]

What a wonderful story!! I just love Mark Morris and his family..They are strong people of faith and courage..Congragulations to Mark on his incredible journey to getting helathy and strong..the world is his oyster..The next great Sportscaster of our time!!!

[@NationwideChildrens]

Thanks for your comment, Debbie. We loved getting to know the Morris family and can't wait to see what the future holds for Mark!

[@sandytaylor6586]

NationwideChildrens how long does the melody valve last. I've had mine 3 years. I have tof/w pulmonary Artesia. Pacer dependant.

[@jeanninerobidas2510]

Thank You for posting stand healthy and strong an dGod Bless

[@vohhi3995]

Hey im 29 and im having the same issue im glad to see the journey. I also have tof

[@dreamkatkissart2454]

hi i have tetralogy of fallot i had my first surgery at 15 mouths old and my last one when i was 13 years old im 32 now and start to have more problems with it i fell very alone

[@jennwages5719]

Thank you for this video. My daughter is 19 and has tof. So many similarities

[@corty1980]

I have Tof and had my first surgery to repair the hole in ny heart when I was 9 years old, in total I have had 4 surgeries.

[@lanadelweenie7547]

I'm too have Tof & PA and I too have the melody valve (as of 4/16/10). My friend (20y/o m) has ToF and an ICD; How do we not have a club yet?

[@roberttamburro5066]

+Lana DelWeenie I am also 20 and I have ToF and PA also. I am having my second open heart surgery a month from now. I will be getting a brand new bio-prosthetic valve. Crazy seeing your comment and hearing he had his first surgery at 3 days old, I had mine at 2 days old. What a small world it is.

[@sandytaylor6586]

I had mine at 3 days too. I've had 4 open hearts. I have pacer and melody valve. Does anyone how long the melody valve last.?

[@spleens6885]

I had open heart surgery at 5 days old... I was one of the first to do it this early and now I’m 12 with a 5 % chance for another surgery. I hope I will be able to live a long life like everyone else. My doctor hasn’t really told me my lifespan... Can someone tell me here?

[@vohhi3995]

No one knows anything they just refer me to different doctors

[@1badlr4]

I had my first surgery at 2 days old, in 1988. You are not one of the first.

[@Grxmlvn]

I live in NZ and I have a Melody valve too! I have TOF and am currently on the waiting list to have open heart to have my valve fully replaced again! Was interesting to listen to this story!

[@NationwideChildrens]

We're so glad this was helpful for you, Breanna!

[@sandytaylor6586]

Breanna Peterson how long did your melody valve last? I have melody valve it's been 3 years.

[@mottabbirhossainbappi2956]

I have also ToF with VSD. And still not not Surgery 😔. I'm belong to a poor family. I'm getting sick day by day.

[@sathiyavarukumar1552]

Jesus heals u ,pray to jesus

[@drunkinmonkieez]

Poor guy is gonna get chf...sucks

[@sharoncollins8821]

What a ridiculous (and mean) thing to say. You clearly know nothing about TOF.