Conversation with

[@FionaEm]

What was the name of the researcher who did full body PET scans? That sounds fascinating.

[@JustME-ft4di]

If they had taken a thousand patients and tested them for every finding that a previous study had found ME/CFS would have been solved. They could have done this 10 or 20 years ago. Yet here we are. If they were to do that now and use AI they would have almost instant answers.

[@Gina-dn6xm]

I'm wondering what new protocol a long covid program can give someone already suffering from chronic lyme and ME/CFS. Every long covid program I have looked at, I have already been on.

[@Gina-dn6xm]

High inflammation has always been a problem with me since I became ill. Doctors ignore the numbers.

[@Mark-gp4yn]

She says ''it was good progress (17.40) and yet she tells us she's heard it all before. I found this thoroughly depressing. The first time they have done one of these in four years - why bother if there is nothing to report. Why don't they discuss the fact that the NIH study is almost into it's 8th year, and the papers still haven't been released ?

[@mihakavcic7237]

Mark, so many are working on CFS/ME, somthing must pop up.

[@slovokia]

One billionaire that could write a check for $10 million dollars for ME/CFS research each year could probably get more useful research done in one year then the NIH could in two years.