Coping Strategies Living with Dystonia, Pain and Chronic Illness - Tom Seaman, Life Coach

[@wheelchairgeek]

Thanks Tom. You made a comment on the Facebook support group on my question and I thought I ought to check your stuff out. Thanks for taking the time to share.

[@TomSeamanCoaching]

Thanks very much for checking out the video. I hope it was helpful.

[@jkay6070]

You are always very encouraging.

[@TomSeamanCoaching]

Thank you

[@victoriaanderson4637]

Thank you.

[@frances3764]

Thanks for sharing

[@margaretjoyce]

Thank you

[@sivaram9654]

You are such an inspiration sir

[@TomSeamanCoaching]

Thank you

[@tyronecriss23]

Hey, I just figured out I have Dystonia. I have been dealing with it forever and no one cares or believed me. I lost my job, finances, family members, friends and like you I would just roll around on the ground for hours in pain. I don’t know what to do I’m so alone but this helps. For me was the opposite I lost all my weight. Also was a competitive athlete I can’t even play basketball anymore.

[@TomSeamanCoaching]

I glad you found out what has been going on, but really sorry you have to deal with this also, especially at the severity level you are. I hope you can find some helpful treatments and start to put the pieces back together. I know how hard that can be so let me know if I can be of any help

[@cindypoole9595]

Thank you. Your a God send.

[@TomSeamanCoaching]

Thank you!

[@farkhondehrezaie7725]

Thank you. It’s helpful. I have cervical Dystonya too.

[@TomSeamanCoaching]

I am glad this was helpful. Thank you

[@Snoopy-mo4hw]

Thanks again Tom for yet another great video! many takeaways. I believe I will be listening to this one every so often. Your positive attitude always shines through what you say. I feel like I am getting better with dealing with Dystonia but still have to use sensory touches to my face to stop the pulling. Do you have to do that, or are you able to keep that at bay with the exercises, etc. that you use?

[@TomSeamanCoaching]

I really appreciate that very much. Thank you. I still use sensory tricks, but not all the time.. Only in certain circumstances when the contractions are beyond the point of my control doing other things

[@su4914]

I do the sensory touches to my face a lot too.

[@averyalyssa4279]

Will I eventually become crippled? I’ve only had it come and go in phases everytime I got stressed but it’s only ever been in my arm and leg (always left side)

[@averyalyssa4279]

It also only happens for a few seconds whenever I stand up or walk too fast

[@tomseaman5543]

I hardly think that you would become crippled by this. When you say it comes in phases, can you expand on that in terms of how long face’s last and how is manifests? Also, have you been diagnosed with Dystonia? It’s very rare for it to happen the way that you described where it’s only for a few seconds after getting up or walking to fast. It’s definitely possible to manifest during those times, but this condition usually is not something that happens for a moment and then goes away for a while

[@jamiewilliams5451]

I am having some serious breathing issues did you have this

[@tomseaman5543]

At different times depending on the severity of my muscle contractions. Early on when they were really severe I had a hard time speaking because I was always gasping for breath because of the pain. I never had actual breathing issues. They were related to the muscle spasms and contractions and pain

[@jamiewilliams5451]

@@tomseaman5543 I guess that's what mine are also