Coping with prednisone, Dr Mazen Dimachkie

  Рет қаралды 22,661

The Myositis Association (TMA)

The Myositis Association (TMA)

Күн бұрын

Пікірлер: 36
@kpkbkpkb7768
@kpkbkpkb7768 5 жыл бұрын
I really like hearing him speak. Steroid Taper is a very challenging thing, fraught with flares like wild fires all over tendons, facia, and muscle....good point to "wait it out" and see if it resolves. I wonder if while on the bone thinning prednisone, if you take biphosphonates, will the bone density improve, and more importantly, will the incidence of fracture decrease?
@Exodus26.13Pi
@Exodus26.13Pi 4 жыл бұрын
Audio?
@francesgillotti1378
@francesgillotti1378 4 жыл бұрын
Was put on it five days ago . Have had no sleep am hungry and can’t stop crying I’m not able to finish it off . It is awful.
@vattguntasrinivasulunaidu2665
@vattguntasrinivasulunaidu2665 4 жыл бұрын
Thanks a lot
@lf7065
@lf7065 2 жыл бұрын
These are my side effects: Headaches, blurry vision, dizziness, severe fatigue, anxiety, hot flashes, chills, night sweats, tremors, memory loss, heart palpitations, digestive issues, nausea, muscle soreness, anxiety, very emotional, insomnia, moon face, weight redistribution to belly and thighs, increased appetite and osteopenia. 😐
@lf7065
@lf7065 2 жыл бұрын
Oh, and high blood sugars and air hunger also. It's crazy!
@ENIGMA111-c2w
@ENIGMA111-c2w 2 жыл бұрын
how long have u been taking it and what are the doses?
@lf7065
@lf7065 2 жыл бұрын
@@ENIGMA111-c2w I've been on Prednisone for the past 16 months. Started at 40mgs, now I'm down to just .5 mgs. The lower I'm getting, the tougher it is.
@ENIGMA111-c2w
@ENIGMA111-c2w 2 жыл бұрын
@@lf7065 I can't imagine the pain Yiu are going through, I was only on it for 2 weeks
@lf7065
@lf7065 2 жыл бұрын
@@ENIGMA111-c2w Awww, thanks. It's not pleasant, but I'm managing. I feel that eating a pretty clean diet and taking supplements like Vitamin D3, B1 and Magnesium Malate help me a lot. That, and prayer. 🙂
@StylezbyEmily
@StylezbyEmily 3 жыл бұрын
I need help…I had been taking 60mg a day then tapered to 40mg a day and once I was on 1 of 20mg a day…I forgot to take it one day and my blood pressure went up and I was in the ER. They claimed it was anxiety. I couldn’t sleep and etc. So the next day I decided I should just stay off it since I had missed the dose and my body went into shock. It was the worse and I have been dealing with flight or fight mode for over 3.5 years. 😔😥 I tried to go vegan, go on a fast and my body will not allow it. I take natural supplements for adrenals and cortisol support. Only one dr said I have “Cushings like” syndrome because of the prednisone. Anxiety, anger, mean…all those side effects and insomnia. I just want my life back. 😥
@mv8908
@mv8908 3 жыл бұрын
I'm so sorry to hear that. You could try CBD oil and then work out. Also try to add as much more fruits into your diet as you can. I took 10mg today since I have inflammation on my ear. I was thinking of taking 20 mg tomorrow but probably I'll just take a low dose and see how it goes. Reading the comments here give me more anxiety. 😓
@StylezbyEmily
@StylezbyEmily 3 жыл бұрын
@@mv8908 Thank you very much. I’ve used CBD oil in the beginning but I will try to incorporate it again. I walk a lot and that does help. ☺️🙏🏽 Thank you
@OBS.Rey__
@OBS.Rey__ 4 жыл бұрын
Thanks i think thats why my dog was tripping out maybe lower the dosage ima try
@zelenplav1701
@zelenplav1701 3 жыл бұрын
Fosomax altered my voice box, negatively, just 1 pill. Boniva etc does not prevent bone breakage but increases fractures.
@jaytay8637
@jaytay8637 Жыл бұрын
That's sounding familiar, my voice is getting much lower.
@trafficjon400
@trafficjon400 5 жыл бұрын
If YOUR DIEING . BUT DEADLY FOR JUST A RASH
@shirleyhoward8438
@shirleyhoward8438 6 жыл бұрын
Can barely hear!
@irinatubutiene9411
@irinatubutiene9411 8 жыл бұрын
Thanks
@margoclarke9921
@margoclarke9921 2 жыл бұрын
W2
@carynhivner1834
@carynhivner1834 5 жыл бұрын
What about thinning skin
@ellenorbjornsdottir1166
@ellenorbjornsdottir1166 4 жыл бұрын
Stress does that.
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