Covert Small Vessel Disease

[@erock3737]

Since the scans were done for "other problems", how are we to determine if we have CCSVD? It sounds like it would not be picked up by other types of screening.

[@hilaryhill4968]

With no explanations from the consultant or primary care and no obvious reason (no strokes) only possible causes that have not been treated before or after. Might be too late, but they should say that too. What to expect? Anything that could help? Stave off the obvious? What is to be done? On my own. Just left to worry & rot. Left to troll Google and KZbin.

[@AlexM-jd2ro]

​@@hilaryhill4968doctors are business professionals in this country...there is a good reason medicine is socialized in the rest of the world

[@Birdylockso]

MRI can show various changes in the brain that are characteristic of ccSVD, such as white matter hyperintensities, lacunes (small cavities in the brain), microbleeds, and enlarged perivascular spaces. These changes can be seen on different types of MRI sequences, such as T1-weighted, T2-weighted, FLAIR (fluid-attenuated inversion recovery), and susceptibility-weighted imaging (SWI). --This is according to ChatGPT, and I encourage you to use it more, when doctors have no time for us.

[@lillianmcsherry6338]

I was diagnosed with mild small vessel disease...what's the difference plz

[@jakobausterlitz8102]

Mine showed as mild but I am symptomatic.

[@hilaryhill4968]

A year since I had an MRI. Severe S V D. No conversation let alone discussion or help in any shape or form. Don't smoke, used to till 26 years ago! No help whatsoever. I think they just hope I die soon .

[@hannaleigh6975]

@ Hilary Hill Same here

[@hilaryhill4968]

@@hannaleigh6975 Realised they have withheld B12 for 12 months so asked for more - REFUSED by GP but offered Dementia diagnosis instead. Why? Had no help at all.

[@erock3737]

@@hilaryhill4968 The same thing with my mother who has suffered 2 strokes. I asked the cardiologist for a prescription for B12 and it was denied. I made an appointment with a nutritionist and she recommended that she take a B Complex with C. I bought it. If you want help with vitamins or lifestyle suggestions then you have to go to an alternative/functional medicine doctor and most likely have to pay out of pocket. Also even after her 1st stroke I never heard the term small vessel disease. It was never discussed. I would have been researching it myself. After her first stroke I asked her primary care physician what she should eat. She replied "whatever she wants". All the best to you Hilary keep researching.

[@hilaryhill4968]

@@erock3737 No stroke -yet. Hoping it will be quick not slow brain death. But no explanation or help from the hospital (asked to speak to consultant-refused), no help or actions/treatments from GP's either. Just left to stress out and rot further on my own. Nurses giving me B12 so far so feeling better.

[@erock3737]

@@hilaryhill4968 I know what you are saying. I feel like they write off older people. I have been doing all of my own research and when I ask questions I really don't get many answers. I have asked the GP to give us a referral to speak with a nutritionist and she has helped some. I think there are some people who will help but they are hard to find. Thank you for replying. You are not alone in what is happening to you.

[@Karen-dz1gd]

I have an MRI that I have been told indicates microvascular ischemia in my brain. My doctor has dismissed me: diagnose and adios! I have dismissed him! and for a year I have been Google doctoring and KZbin doctoring and I am beginning to understand this puzzle. I am 85 years old and I am not sure whether the doctor doesn't care about me or whether he actually never bothered to learn about microvascular ischemia and how it affects the brain. My next step is to find a doctor who understands and can help me to understand. Perhaps finding a doctor who gives a shxx is no longer possible. This journey has led me to become anxious, angry, irritable, and suspicious and I don't like it. I am trying to get rid of the anxiety so I can overcome anger, irritability, and suspicion. I want to be the kind, compassionate, understanding, patient person I used to be. In my previous life, as a twenty-year-old and a forty-year-old and a sixty-year-old and more, I had a doctor who cared about me. He took the time to help me understand whatever-was-going-on-at-the-time and I was sorry he retired. I hope my dismissed doctor retires soon, before he does any more harm to people-who-are-so-old-that-no-one-cares-any-more. I'm hoping to soon find a doctor who cares about his patients. (How does one become a doctor if he really doesn't care? How did he get to be Someone Who Doesn't Give a Sxxx?)

[@shannawynn7493]

Thank you for sharing, you have a talent for writing! I hope you're doing well. 😊😊😊

[@Birdylockso]

Doctors, like all other people, after prolonged stress, especially in the medical field, will likely become robotic, just to survive the rat race. I've found many of them are regurgitating the stuff they've learned from the previous century, because they are just going by what they've been told by their associations and hospital higher-ups, who are in cahoots with the big pharmas. Sorry, the truth hurts.

[@Nickie420]

Try and find a Doctor of Osteopathic Medicine (a D.O. instead of an M.D.). They actually give a crap...as a nurse for over 15 years I know for a fact that if you feel your medical provider doesn't care, they probably don't. Sad but true

[@lisaderwent]

Given cardiovascular diseases are the number one cause of death and this involves blood flow, it is a shame there is not more focus on understanding how to keep arteries healthy. As the presenter said this area needs more study.