Covid Day 2 - All The Medicines

We're on day 2 of our covid isolation and it's a day when not much was happening. We were both tired and wanted to chill.
Elin is on a lot of medicines to manage her condition, there are multiple seizure medicines, muscle relaxants, reflux medicine etc. And now that she is fighting an infection I add paracetamol and more seizure medicines to help her.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
Instagram: / parentxp
Twitter: / parentxp
Facebook: / parentxp
Website: www.parentxp.org

[@lauralie9658]

Wow Tova your a amazing woman. It has to be so hard trying to deal with COVID, medications, food, medical issues and so very much more. May you both get more rest. Sending my love to you two. God bless!

[@ParentXP]

Thank you so much. It's such a worry having a complex needs child poorly but she's a strong one

[@NZ73200]

Everyone needs mummy snuggles hey Elin. It must be hard not seeing Alice n for dad not to see Elin but it’s gd thing to keep separate n I hope u don’t get sick but totally understand the PPE situation. U r amazing coz u may put smile n laugh but it’s still a hard n worrying situation xxx

[@ParentXP]

Thank you Zara.

[@tiffanispiker8886]

I remember years ago with my little sister faith I always would make her meds for morning the night before as well. I just feel like it's makes it easier. And with my nephew Kanye I always whenever he stays do the same thing except for his his sprinkles meds as he calls it. It's just a capsule that we just put the sprinkles meds in something like an mandarin orange slice, applesauce or yogurt. He has meds for seizures.

[@ParentXP]

It really makes life easier to prep for the morning!

[@maddielangdell6496]

I hope that she doesn’t get any worse sending love

[@ParentXP]

Thanks

[@cherylhoggan19]

Hi Tova and Elin, it was lovely hearing Elin laughing so, while you where holding her. I love seeing her smile, when you sing to her. I hope Elin was able to go to sleep and had a good night, hopefully you also where able to get more sleep.

[@ParentXP]

Thank you Cheryl. By 8pm we were in hospital, where she is currently running a race in bed while laughing her head off...

[@lauralie9658]

@@ParentXP oh no.... Hospital grind. Even harder on you. Mum's should receive cash rewards for just being a mum in all the small and big things and ways. Gold star for Tova!!!!!!!!!! 🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟🌟

[@JamesDavid-kd1xo]

You are my number 1 mommy 😍👌😉 truly amazing

[@sweetluvgurl]

She always seems so happy. 💕

[@ParentXP]

She mostly is. Not always but on the whole she's very cheerful.

[@beckyhammond525]

Good night Tova and Elin xx

[@ParentXP]

Goodnight Becky

[@danina1996]

Tova where do you get the syringe toppers from? I’ve just started on Baclofen 3X a day, my carers give me morning and night, and then I can take afternoon if carers leave it in the syringe ready for me…. Does that make sense 😂😂😊😊

[@slongv1547]

Hope elin feels better soon take care

[@ParentXP]

Thank you

[@laibahhussain1694]

Morning

[@stephaniewinder7125]

How old is Ellen

[@ParentXP]

She's 8

[@laibahhussain1694]

Has she got symptoms then

[@ParentXP]

Seizures, temperature and tired.

[@laibahhussain1694]

She cute

[@ParentXP]

Thank you

[@laibahhussain1694]

Is she in pain

[@ParentXP]

Hard to say, she's very tough and has a high pain threshold

[@BenDavey-xp1cv]

Crisps don't exist only chips do