Current TV presents 'Dying Young'

[@CysticFibrosisFoundation]

Thank you to all who have watched this video over the past 15 years. Since Current TV’s filming, the Cystic Fibrosis Foundation has made remarkable progress. In the past decade, four drugs that target the underlying cause of the disease have been approved by the FDA. Individuals with CF today are living longer than ever before, and are building careers, starting families, and planning for retirement. However, there is no cure for this devastating disease and there is still more work to do. We are committed to working relentlessly to pursue new treatments, and ultimately, a cure for cystic fibrosis. We encourage you to get involved today by visiting cff.org.

[@annathomas8777]

Siobhan was my second cousin. She was a beautiful, strong, smart, and very well loved person. I cry every time I see this video.

[@adejames1960]

My heart goes out to you, and to Siobhan. I'm sure everyone who watched her, wanted to reach out to give her a hug. I felt helpless watching her. X

[@curtisbemis6640]

I'm sorry and I feel you she was a beautiful person who loved so many and fought hard to stay alive . I myself am fighting and losing . I just hope one day no one else has to suffer !!! I'm close with melissa yeager and claire weinland when she was alive . her foundation is amazing . I'm sorry for your loss. May god be with you and all other c.f. patients

[@LivinLaVidaLaura]

💙💚💛🧡❤️💜🤍🤎💗💓💞💕❣️💝💘💖

[@tristanmason7405]

@ Anna Thomas She was gorgeous

[@amandaford864]

I'm so sorry for your loss. Sending all my love to you and your family ❤

[@CysticFibrosisFoundation]

The CF Foundation appreciates all of the viewers who have taken the time to watch this powerful video. We are especially grateful to a young woman, Siobhan Ryan, featured in this video who lost her battle with CF last week. While bravely fighting for her own life, she generously sought to spread awareness about CF and devoted precious time and energy to the film. It is because of people like Siobhan that the CF Foundation is working tirelessly to find new ways to control and cure this disease.

[@tristanmason7405]

What became of Stacy M.? Thanks.

[@tonygirard3307]

After seeing this video I will never whine and complain about simple ailments again. What these people experience on a daily basis is unimaginable. Such strength and determination to live another day! Your courage is amazing!

[@curtisbemis6640]

if you don't know the frey life is on KZbin there channel is all about cystic fibrosis. the wife mary has c.f and her husband peter is a pastor. its amazing . if your interested

[@DScottWhitaker]

Me and my little girl lost her mommy to cystic fibrosis on December 5th of 2012. RIP Tara Michelle Ball, you are so missed.

[@KimBlaQue]

may she rest in peace

[@dragonink7]

I just turned 30 a month ago and I was diagnosed at birth. After 17 days in the hospital, my longest stay yet, I weigh more than I ever have and my lung functions are the highest they've been in two years! I'm so optimistic for the future and the new treatments and medicines soon to come! We will beat this disease! We will live to fight another day! Peace and love to all my fellow cysters and fibros!

[@jrbknyc8785]

dragonink7 god bless you I hope all the best !

[@jayjenn5983]

dragonink7 Congratulations!

[@paulcommodore4151]

yeeeeesssss!!!!!!!!! your aceing it!!! please take natural herbs prepared by master herbalists.=herbs heal.

[@shaidenaijacameron9260]

dragonink7 you are such an inspiration to me and definitely to others. God is with you every step of the way, don't lose faith and trust in him🙏🏽

[@dommidavros2211]

dragonink7 - Fair play to you! I have so much admiration for people like yourself who have the resilience and bravery to keep fighting!

[@Katejohnson44]

I have cystic fibrosis and it's taken me 24 years to finally watch something online about it. Or read up about it. Let alone watch a video on KZbin!! I cryed so ridiculously much watching this I pray to the heavens that all these women and men on this film live long and happy lives, as well as myself xxx

[@jacknapier8217]

Enjoy your life, and remember that you are beautiful. You are not flawed, and be happy. Stay strong, please.

[@Vincent1996]

+Kate Johnson I too have CF I'm 20 and yeah it's scary but we're all in it together, keep your chin up. there is hope yet!

[@TheKuldi]

Louis Turner what the hell is wrong with you!?

[@TheKuldi]

can you even comprehend with your peanut sized brain how you talk to a person with such a serious disease? Goddamnit, what a pathetic person you are! Why don't you try to get your self esteem up so you don't have to put other people down just to feel "superior". It's really transparent, It's not really hard to see that you're just a shitty person. Your words doesn't really have any other effect than annoyance on most people so just save it, use your energy and time to make yourself feel less small and insignificant!

[@Vincent1996]

did he just call people with Cystic Fibrosis stupid??? how?

[@SimplyASweetHeart]

I watch these videos and I think I'm gonna change my life, then I go right back to the same Ol me, and I watch them again to remind myself , what I stress over is nothing compared to these people and my heart feels so sadden for them.

[@gingerlee726]

Well said.

[@lulamamie8524]

This video popped up on my feed 9/11/2020. I am 62 years old, and when I was 11 years old my best friend Theresa passed away from CF. I have fond memories of sleep overs at her house. She slept under a tent that covered the upper part of her bed with a constant mist. I was just a child and did not know why she had to sleep that way, but just accepted it as normal. Now that I am older I understand better, and wish that there was a cure for this awful disease. Blessings to all that deal with CF ❤️

[@kaitimusprime]

This is so sad... RIP to all of those who passed, including you, Eva Markvoort & Megmucus.

[@angelasherman4035]

heiress aries

[@cactusjane4737]

and Kina💞

[@itsshaynex7847]

+heiress aries and ashley :(

[@jeansmith1388]

Amy Ruiz

[@mollierose3676]

I'm sorry to let you know that Siobhan Ryan who was awaiting a lung transplant died on June 24th 2008. It breaks my heart. I went to high school with someone who had CF, I wonder if he is still alive and how he might be doing. Siobhan motivates me to get my nursing degree or doctorate so I can help those with CF. There needs to be a cure!!

[@martins1122]

Worst disease, requires a tremendous amount of care, some days you feel normal and then other days you gasp for air - here's to hope 🌱

[@MissAmyLouiseSmith]

i have cystic fibrosis, and watching this video makes me realise, ive got to live every day to the fullest. i will never let CF win.

[@kryan364]

Breathe easy, Siobhan ♥ miss you always 6/24/2008

[@tonino5113]

when we understand that we are all in the same boat and that life is short we should help each other

[@kimstallsworth2246]

My granddaughter has CF it is so hard to watch her when she is having a hard time and its really hard on the parents also the Dr told them with them being so young it would be hard for them to stay as a couple and it is may God continue to bless them 😢 and watch over my granddaughter 😭🙏😤

[@caroltrevers7647]

Stop moaning about trivial shit and be very thankful for your health it's so not fair that people have to suffer like this

[@LauraLawler_LaurasLife]

Thank you to everyone who sends us all your inspiring words. My heart goes out to all of my fellow CFers in the video and my prayers and love to Siobhan and the boy who died too young ): Breathe easy angels. -Laura;19;CF

[@tristanmason7405]

Praying for you Laura.

[@thugger-vandross]

@@tristanmason7405 Laura’s comment was left over 11 years ago.. there’s unfortunately a high possibility that she’s no longer with us due to CF’s propensity to get progressively worse over time.. 😢 If she is alive I hope she can see these comments and is staying strong while living her best life

[@muhdaliff754]

@@thugger-vandross U right dude...

[@BarryWeeks]

It breaks my heart when I watch Siobhan Mary Ryan holding on for life. I wish there was a memorial for her. What an Angel.

[@Anonymous-n8i2d]

please god...cure them all

[@JamButter123]

Deepthi Prabha I recently have cf like 3 months... I have been pain inside my back lungs for 3 or 4 years... turned out I was told that I have cf from hospital.

[@JamButter123]

Deepthi Prabha I am will be strong but I am scared because I think I will be dead...

[@Anonymous-n8i2d]

I have type two diabtes for three years.And i was scared when i was diagnosed. Its ok to be scared. But dont let your disease define you. And yes everyone will die one day :). bt atleast we will die fighting this disease:)

[@JamButter123]

Okay and thanks! :)

[@southyorkshireghosthunters]

its because of god they are dying he created death. He said when adam and eve sined that people would die and all there children would die meaning us. So please dont ask god cure them ask god why bring such a evil thing to the world. He loves us that much that he will let children die of cancer and let people get old does not sound like a kind loving god to me. And then you will hear the bible thumpers say god needed that child what about the poor parents that will live in grieve for the rest of there life did he think of them before he did such a act of evil

[@braylinkeel5496]

hi.. this is sad... my mom has Cystic Fibrosis and she was born with something and she wasn't suppose to live up to 16 but she did and recently she is 36 and we just found out that she has some kind of mass in her stomach and that she has Cystic Fibrosis. we learned that like last month and she started to get weak and sick. then we found out that she is bleeding internally... she has to get surgery tomorrow... anything can happen.. so I'm going to pray for her and all the other sick people out there..

[@hannahberry6014]

+Braylin Keel aww thats so sad hope you and your mum are ok x

[@FartMcGwire]

what happened?

[@whocars]

+Braylin Keel what happened?

[@de-vine2168]

Oh my goodness! If I may ask how old r u?

[@brandentheultramangofighter]

Yo is she dead

[@newreleaseblitz]

To everyone living with CF, this video has really opened my eyes to what you have to go through. I really hope they find a cure for this horrible disease soon. Keep your heads held high, keep your faith alive and know that someone like me is praying for you. I really wish you all the best and know that you are loved, encouraged to be strong. God bless you!

[@raar668]

Its such a terrible disease I have just lost my beautiful girl, we had such wonderful times and she was strong. I miss her every moment of every day .To all the people out there struggling with cf be strong and love life like my Beloved Sheila.Miss you always . Rob . rip 21/01/2016 aged 54

[@chrissycallaway5073]

WHAT HAPPENED

[@starlightbaker9366]

I'm so sorry for your loss. I am heartbroken for you..

[@AddiePeterson]

I was diagnosed with Cystic Fibrosis when I was 1 year old. Now I am 13 and my lung function is unfortunately 47% I have been in the hospital all summer except 2 weeks. There isn't much you can do about this disease but lately it's been really scary. I've had multiple surgeries and I can't breathe very well at all. I'm scared I won't get through this. I'm hoping I will be able to but I'm just not sure anymore. Stay strong lovelies. Don't give up.

[@bananasplitit]

Hope you're still able to fight this and things are better for you x

[@holly9464]

I hope you're doing okay, I am sending so much love to you ❤️

[@weenz05]

this made me bawl my eyes out!! although i dont have CF i do have a rare mitochondrial disorder!! it breaks my heart to see others suffer!! god bless you all!

[@ceerez1002]

just lost my little cousin to this, 16 years young RIP Antoñio Gonzalez love u bro

[@destinymw]

I am a 28 yr old Cf I lost my very last living friend on Aug 29th. I am looking forward to meeting other ppl with this disease to share and learn and grow with. I stumbled on this video, and I am glad i did. I wish everyone healing in Godspeed!

[@booognish]

I’m sad no one commented on here, I’d gladly be your friend!!

[@aleciagirdler6878]

My Step dad had CF, in 2006 he was on his deathbed weighing just 35kilos he was fit as he had his weights that he did. just before christmas in 06 i took a phonecall that said they had new lungs for my dad. when i handed the phone to him we both cried. called our family and went to the hospital. 2 hours later he was being prepped for a double lung transplant. after a 11 hour operation and a 2 week hospital stay he was allowed out for Christmas day. now it has been 6 years he is 50 in March

[@drobile]

She was beautiful. Hearing her say how she wonders if she'll ever get married, ever have kids, broke my fuckin' heart. This video,and the one titled "Alexa died waiting on the list for a transplant" are the reason i'm an organ donor today. I encourage anyone who is moved by this video to become an organ donor. You could save a beautiful life.

[@taissilva3784]

Hey, yeah it's one tough thing to live through.. Where I was from I didn't get diagnosed till 6!!! I had Constant fever till I was finally put on the sweat test. I am doing great though I am now currently 14!!!

[@emilym8741]

I lost my cousin at age 25 to CF in 2010. I miss her, and seeing the progress medicine has made makes me both sad and happy.

[@wendyhowell3249]

My daughter's friend had c.f. told life would be to approx 18 .. she's had heart and lungs and been in ànd out of hospital all her young life but st ormands street London UK done her surgeries now she has 2 grown girls teenagers a job and is travelling all over the world so there is hope xxx

[@1WickedAngel1]

I wish that I could hug each & every one of you. I love you all. R.I.P. My sweet Eva Markvoort . I miss you so very much. You will never be forgotten. Your courage was amazing & your story inspiring. For those of you who never knew or heard of Eva, she was a true CF Warrior ! Please google her, enter her name or 65 Red Roses to learn Eva's inspiring story. She will truly touch your heart forever. She has mine. I love you, sweet beautiful Eva. R.I.P. Angelique

[@mark31781]

I Love Siobhan! She is just perfect!!!!

[@SepherStar]

Unfortunately I think she passed away in 2008.

[@kryan364]

SepherStar she did pass in 2008

[@stephwalford7292]

I just discovered Claire Wineland and the Clairity Project. Her KZbin vlogs have really helped me. I also learned a lot from Mary Frey (The Frey Life). Hope someone else can be inspired by these two awesome ladies.

[@BuchsdrN]

I love Mary and Peter. Such a great couple, always positive. And I have learned so much from them.

[@maryem8263]

Rest easy, Claire. 💜

[@charliecharlton9782]

RIP Claire Wineland. Beautiful soul.

[@kanena3]

As for my daughter I have no dought! she is with Jesus! She love the Lord and served him well.

[@limer342]

It’s been 11 years since you commented this. I don’t know you but I love you like a brother sir.

[@adrianajimenez4342]

Sir, you can count on that.

[@paigemartin3673]

i miss you grandpa he was 72 the ultimate trooper

[@davidlabelle361]

72 with CF?! HOLY SHIT!!!

[@Davieed2727]

I hope I can live that long

[@Davieed2727]

thank you so so much

[@maryem8263]

?

[@OllllllllllllllliiiililiillilO]

I’m 15 and I’m pretty sure I’ve got it but haven’t been checked, and I keep seeing how it kills pretty quickly

[@benjaminhuguley1371]

Cystic fibrosis runs in my family. My only niece died a week before her third birthday. My cousin died when she was 23. They were absolutely beautiful inside and out. The government and people don't put it a priority because you do not see it as much as other diseases but it is a horrific disease that needs more funding to find a cure. They are so close but that doesn't bring comfort to the patient or family until a cure is finally reached. R.i.P Kathrine Elaine Thomas and Joy Burnam. Please pray for these.

[@SepherStar]

Benjamin: I'm sorry for the loss of your niece. Knowing that cystic fibrosis runs in your family, I think it's advisable that those in your family who wish to have children be tested to see if they are carriers. Your niece's parents are both carriers. There is a 25% chance that each child they have will have CF. If they choose to have more children, they can not only avoid this risk with IVF, but make sure that the child is not a carrier. You may be a carrier, as well as any other siblings and cousins you might have. Everyone should be tested to determine whether or not they are a carrier. If they are carriers and wish to have children, the only way to make sure the gene isn't passed on is to conceive through IVF so the embryo can be tested before it's implanted.

[@cleocatra9324]

Please dont have biological kids

[@xx_trashpandagaming_xx3482]

I'm 16 diagnosed at 3 months own lungs never been healthier with function at 101%

[@starlightbaker9366]

Carli, how are you doing sweetheart?

[@PoliticallyInCorrect1]

I. Proud of u

[@quinnard9750]

How are they at 101%?!

[@xx_trashpandagaming_xx3482]

@@quinnard9750 my scale they use measures up to 130%

[@kryan364]

thank you everyone for your wonderful posts. I pray for everyone with this disease God Bless you all, may we find a cure soon, very soon!!1

[@TomAndJerry87]

I have Cystic Fibrosis and was diagnosed at just a few months old. I'm currently a 16 year old full time high school student and a member of my school's marching band (I'm on drumline). I amazingly have lung function just below a normal person's, my symptoms almost feel like regular asthma. That can be attributed to the 11 years I played soccer. My advice to fellow CFers, STAY ACTIVE! It worked wonders for me, and I bet it will work for you too :)

[@DamianFinch12]

After watching this I went and signed up for organ donation..why do I need my lungs after I'm dead? Everyone should sign up!

[@perfectclick6232]

Dam true

[@BecD1983]

I’ve been an organ donor for years

[@angieruiz6999]

I completely agree,I'm also an organ donor

[@Melly241000]

Take a breath for CF #support# you all are fighters

[@andrewharrison1318]

Thank you to the families for sharing this testimony of your loved ones who were lovely - inspired to go on with my condition which is different but the glow they carry I want to be like them

[@etcetcetcetcetceable]

Wow, incredibly moving. My heart is with you all in your struggle :(

[@hfliebenowdakar]

I have a daughter who has epilepsy, which of course, well managed, is by far not as bad as this, but I know that not knowing if your kid will have a normal and long is the most terrifying feeling in the world and I am happy to give her a hug every morning. I hope all these people have a long time in this world.

[@updownstate]

I have been very close to death [not CF] and have spent a great amount of time with people in the last days of their lives and I tell you this: Don't be afraid of dying. The closer people are to death the more most are ready to go. There's no reason to fear anything, you won't be sad, you won't be in pain. It's just time to go on. I've never seen people struggle or gasp for breath. So don't be frightened. This is my experience only, and that of those I've known.

[@FCSmajor]

There is not many videos that can make me cry but this was one of them. I guess it hits home. Thanks to all of you for making this video and giving of yourself.

[@MzYankeebreeze]

i know exsactly how the girl at 3:21 discribed. it really scares me i feel like i wont live to be 20. im currently 11 and i live with cf. it really scares me

[@jasonwebb9044]

Poor baby...

[@wilmagregory8967]

May God be with you always. Peace and love.🕊

[@mikey420100]

Wow this makes me feel so thankful about my life, seeing what these people go thru everyday really opens your eyes. :)

[@lynnenyc5037]

My sincere condolences on your loss. My prayers are with you and your family.

[@MMBinNC]

God bless the people who raise awareness about this terrible disease. I am 18 and living with CF- my condition is not that bad yet but I have seen some of those I know die already. This video is very powerful and hopefully evokes the same emotion in those ignorant of the disease as it did in me. Hopefully they can find a cure so that I (and the many with worse symptoms) can live a full life as God intended of all of us.

[@IAMdevilwomen]

I started crying when he said he could protect his son from bullies but not from this disease, I lost my mom last year, not to CF but to ALS, I had to watch her go downhill for 3 years, I also watched friends go downhill from CF and honestly I'm such a soft hearted person that it hurt so bad I closed down, alot of people in this area were so mean to my mom and to my friend for the slow walking, the wheelchair use, claiming they were just lazy...if only that was their problem I'd still have my best friends...to everybody that does have it, I'm so sorry, I hope you stay healthy for as long as possible and pray to god that some day they find a cure for both als and cf....

[@jessicaannaa]

I feel so sorry for all these people who have CF and everyone who have lost their child or friend or whoever to that awful disease. This video really touched me and also made me appreciate my life in a new level and knowing that there is no cure just makes me sad, but we can only hope for a better tomorrow and try to help by donating for the search of a cure.

[@selmamonson3073]

Thank you for sharing your personal lives; pain and suffering. Life really is too short to waste on things which really are not important!

[@Jasonross2108]

I also have cf. I was diagnosed at three months. But I have a much more mild case than most. I was 26 first time I was ever hospitalized. I am now 37. And I've been hospitalized 7 times in the past 11 years. I can year by year life quickly going downhill. Up until about two years ago I never watched a single video on here with other CF patients. I don't know except one other person who has CF. And the fact that I'm now becoming a quote-unquote typical CF patient it is starting to get to me. This video made me cry and I'm not the type of guy who cries. It is it's starting to get to me physically and emotionally in a big way. I don't really even know what to say. this disease sucks. bc of thr CF I've developed 4 other diseases. 3 lung and also diabetes. for all u brothers and sisters out there what want to talk I am all ears. I will prob be back in thr hospital within a week of me typing this bc I am not doing good right now. I'd love ppl to talk to who understand CF. and thr only ppl who truly understand it are those of use that have it. if u want to talk fell free to email me. [e-mail]

[@edwelndiobel1567]

5:05 poor baby knew she was close. Horrible feeling, the worst feeling, an indescribable feeling. Thats when you know you and everyone else is all alone. No one can save you. No one can save themselves. Philosophy has helped me a lot with this most paramount of problems.

[@Sixty_Five_Pronghorn]

As a CFer, I fight everyday. I do tons of research to figure out how to attack the disease the best way I can. I’m excited when doctors and scientists discover new ways to fight CF, and maybe even cure it one day, but the truth is, they can’t save me from everything. God has been very active in my life, and thanks to Him, I’m tremendously healthy for my age and condition. I haven’t worn an oxygen tube since I was 6, and I haven’t seen a hospital bed since I was 12. I am now 17. When neither myself nor my doctors couldn’t save me, God did, and because of that, doctors have nicknamed me the “miraculous freak of nature”. I take pride in that name, but also know that name was only given to me because God worked on me. Miracles do happen, and I’m proof of that. I’m well aware of the problem of evil and stuff like that, and I often wrestled with that, but eventually, I realized that without CF, I wouldn’t have been blessed with the experiences and the life that I have lived. There is nothing in this world that could convince me to live my life all over again without the challenges I’ve been faced with. If a pill came out tomorrow that cured CF, I would take it, but I’d never live a life with CF erased from my past. Truth is, God allowed me to suffer so I can see the world in a way people rarely do. My survival has relied on more than just the regular stuff. I’ve had to take major risks and make major sacrifices to survive. People will never know what a dilemma is, until they’re a child faced with two choices, each of them with their own dire risks but amazing treatments if they work. I’ve lived my whole life being a human science experiment for doctors and family members alike to try new medicines, exercises, treatments, and more on. I’ve casually turned my kitchen counter into a chemistry lab, and taken whatever I’ve come up with just to see what happened (under the advice of doctors and supervision of my parents of course). I’ve spent a life participating in sports like MMA, hunting, and endurocross to stress out my lungs as much as they can, while also doing things that I love. I have a lot of treatments that I take with me everywhere I go. A weekend-long trip away from home requires me to take at least 80 pounds of stuff with me. I pray every night hoping for a miracle, and my favorite biblical stories involve the ones where Christ heals, since I can personally relate to them. I do so much to stay alive and well. Even then, sometimes I just can’t be saved. God has pulled off some amazing miracles in my life, from raising my pulse-ox to 100 when I was supposed to be hospitalized because it was at 85 and dropping a few percents every hour, to curing Pulmonary Atresia, which is an incurable heart defect that should’ve given me more heart surgery scars than I have. I’m the only person to have ever been cured of PA. I used to be an atheist, that was until my pulmonologists and cardiologists told me that I really shouldn’t be alive or healthy today, and they don’t know why. Treatments aren’t actually that effective, and there’s obviously something else at play. People like me don’t go through what we go through, and come out pretty much unscathed, unless a miracle happens. Of course, those who haven’t experienced the world like I have won’t understand what I’m trying to say here, but I guess the message is: there’s more to this life than what meets the eye.

[@annasarfu3006]

I also have CF . May God cure everyone.

[@Passionatekisses2008]

アタリンズ smart ass!

[@starlightbaker9366]

I hope you are well currently. So sorry for all your pain. Ignore the trolls.

[@stabulouskoda834]

Anna sarfu scientists are working on it

[@Dstagz]

So do I but sometimes its not a burden, but a blessing in disguise. The way I look at it if there are those who can't take it... Then we can be the warriors who can

[@darkphoenix8814]

God aint gonna do shit

[@mariadelosmilagrossciarril3249]

This is why I want to become a doctor.

[@jaberaljasim456]

@Andrew Gossard You're never too old to learn

[@Frky_Mky]

@Andrew Gossard Cystic Fibrosis IS NOT a over production of salt in the glands. If that were the case we wouldn't need to replace so much of it in our bodies, that we lose everyday. Im sorry & dont mean to sound rude but your statement very off.

[@Ailuj234]

Maria, are you in med school? Hope so👍🏻

[@lindabphoenix]

I can ONLY imagine how difficult this is, and appreciate your sharing this part of yourself with everyone...May God Bless you and give you some measure of health and GOOD DAYS!

[@amirae9594]

My name is Naomi, I am 23 years old. I was diagnosed when I was three months. My parents were told not to expect me to live to five, then seven, then thirteen. I was told I wouldn't have children. I have two beautiful sons. My lung function is at about 68% but I am working to get better, I have two small people who love me and are fighting with me. They need me. I will keep fighting. I will live, I will watch my sons thrive.

[@lovingthis07]

God bless each and every life affected by this tragic robber of life (CF). I have two children who suffer from this, their striggle is a valiant one, but when I look at them I wonder why. I will never get t he answer to that. but I do know that they are, and we are so blessed to have whatever time that we have with each other. Keep up the fight until the CURE!

[@janeteaton3240]

My five year old granddaughter has CF. , so far her lungs are not really involved . Hers is mostly digestive at this point . We do have the vest and nebulizers , enzymes etc . Today she is real actively healthy , we cherish each day with her , we live in today and try not to worry about the what ifs of tomorrow . Praising God for Ariana , she is strong , smart , beautiful , friendly, loving little girl . Praying for the cure .

[@mitsuevo8mr]

i was watching some other videos and something brought me to this video and it made me cry, sometimes we don't give life the value it deserves,but you guys do, like me i smoke a pack of cigarettes a day, since today,i'm quitting now, and i wish you guys the best in life with tears in my eyes from the bottom of my heart i wish u the best and always keep u in my prayers, god bless u and i hope the government gives more attention to what really matter,life it-self use our funds to give life no take

[@Tsuki23189]

I found this so moving. Im 21 and have CF and I always worry want the future holds for me but we need to face each day with a smile on our faces.

[@Chetbadboy007]

Sometimes it feels bad that when u're enjoying, someone else is in pain!

[@khananme]

Yes!

[@cassadrian1]

This video had me in tears, i loss my brother to CF people with cystic fibrosis are born fighters..... dont give up fight with every breath!!!!!!!

[@eilrahc101]

My friend had a double lung transplant when he was 14... unfortunatly he never came of the vent... he did live in the hospital on a trach for nearly 2 years but about a year ago when i went in for a check up i found out that he hadnt made it. I think its so sad that some people with CF dont make it to adult hood but I also think that for the people that do it should be or the more special. Good luck to everyone in this video and everyone out the with CF. x

[@anthonychristensen452]

Your so strong God bless you. 😘😘🥰 Love You

[@GreenDayisAmazing]

Thanks for posting! I did a walk in middle school for CF, but never really knew what it was or what people with CF have to go through. I hope one day CF will have a cure.

[@drobile]

Siobhan Mary Ryan born on November 30, 1981, in Santa Clara, CA, and passed away peacefully on June 24, 2008, after a 26 year battle with Cystic Fibrosis

[@Requiem4Defeat77]

I's amazing how much determination and tenacity you see in these individuals who persevere and stand up to this Illness on a daily basis.It astonishes me when perfectly healthy people lament and complain "I had to drive 5 miles with no A/C!" or "I had to stand in line for a whole 45 min, i'm gonna die!" meanwhile people with CF are saying on the inside"I can't breathe" or "Why Can't I just be normal" and yet they will come and greet you with a smile. I have so much respect for these people!

[@timmymayastone]

This was a touching video. My daughter is 11 and has CF, recently diagnosed with Cirrhosis of the liver too.- another complication-. I was really touched by this video and pray for all the patients and their families. God Bless!!!

[@Silbereiseva]

My daughter is 2.5 now and has CF. I'm a single mom. It's definitely hard...but she's so beautiful

[@boysnmom6376]

My son is 2 years- 5 months and has CF. We've been so blessed he's never been sick. He's so healthy and we're so thankful.

[@RefinedRuth]

be encouraged, with every struggle we all learn and grow, even from other peoples situation, be blessed, and i pray the funds increase for more research on this disease and better treatments

[@MauricioDelisio]

Lawrence man, those words hit deep... 3:22

[@tristanmason7405]

Ryan Siobhan was gorgeous inside and out(my impression), I wish she had realized her dreams.

[@marleeelaina]

@Requiem4Defeat77 when did siobhan pass away?:( my amazing cousin lauren lost her cf battle last december and this video makes me think of her because she looked and sounded just like siobhan

[@hollyfisher8811]

Sadly, Siobhan passed in 2008❤🌠...

[@tikiduck]

Seeing this makes my own health problems seem trivial, but I can relate in the desire for simple health.

[@bendornoff4370]

wow I feel sorry for whoever has this illness I'm praying and thinking about you guys

[@davidolson7651]

What a powerful video and incredible way to reach out to the world about the devastation that CF causes. Thanks to everyone involved with the production

[@Godslillamb]

My brother died in 2011 from CF. He was diagnosed at birth, and was not supposed to even live till he was a year old. He was 22.

[@diamondgirl828]

No government funding? That is insane!! This was so beautiful, so sad, so heartbreaking, so vulnerable! You are all so wonderful and I pray that there is a cure for this disease! All of you, please know that God sees every tear you cry, He knows every hair on your head, He knew your name as you were knit in your mothers womb! God knows the cure for this disease..PRAY PRAY PRAY!!!!!

[@alexneil9116]

it is always sad when you lose someone, that is true. but i look at life a totally differently way. to me it is a blessing to see the one pass away, because now they are at peace. we all die, as we all know. so in the mean time let every one you know how much you love them now, for one day will be to late. but people die all the time all around the world and when you don't know that person you really don't think much about it, until it happens to someone you know. this is why death don't bother me as much. so saying that i am sad that person is gone, is only because i knew them. love to all, to who i do know and have never met.

[@tina.raines77]

My sister Althea passed away in 1996 at the age of 28 of CF. It's a horrible disease that needs a cure...PLEASE LORD!

[@davidsitzman7799]

Can't remember what movie I heard this line, "Death is the greatest adventure", but it gives me a more comfortable peace of mind.

[@TotalTech_]

5:58 I am sick to. This is also a great fear of mine

[@sliat1981]

Unless it would save my life I wouldn’t have a lung transplant. If I’m going to die regardless, I wouldn’t take a long away from someone who can survive by it

[@mustseenow991]

this the best doco ever

[@alexajones2331]

Iv got cystic fibrosis, fortunately I have it mild, this video litch freaked me out so much “dying young”? i wish there was videos on mild cases too

[@c140pilot]

Thank you for helping me understand this disease better.

[@collegesnareboy]

i cant believe this. i really prayed for her healing and im so heartbroken i am hearing of her not making it. I am so sorry for your loss. I have always had her in my prayers. I am so sad right now. I am so sad. But she in a much much much better place now. I will keep your family in my prayers.

[@mikegyoung]

I don't have CF but I do have CHD aka Congenital heart disease and I hope that you those who suffer from CF can find a cure and hopefully have a organization like the CHD people have so you may have support and get cured you deserve to have a normal life!!!!!

[@xpinkpixiedollx]

my heart goes out to all of the people who have this illness i had a friend called leah who had it and unfourtunately died waiting for a lung transplant :'( R.I.P leah sleep tight darlin xx

[@debraouellettr3709]

GODBLESS ALL WHO SUFFER FROM C.F. MY HEART GOES OUT TO THEM AS WELL TO ALL WHO LOVE THEM CARE FOR THEM !

[@MC-et7rm]

This is the most heartbreaking thing I've ever seen, especially when I learned Siobhan had passed and so soon after being in this video. Don't pray for these people, get out there at do something. If everyone that viewed this video shared it on their social media their would be a surge of CF awareness and funding and get one step closer to a cure and preventing the deaths of these wonderful people and angels like Siobhan Ryan.

[@SimplyASweetHeart]

What do u mean Dont pray for them? That's the best thing to do

[@catherinespark]

* Don't JUST pray for them

[@Mystiekal]

this video had me in tears... i lost my best friend to CF... but he has changed my life in such a big way... and thats why i walk every year to help donate to find a cure for CF... stay strong everyone and keep looking forward.

[@eclkt]

Thank you for your education.

[@deborahgoodall698]

my brother Harrison and sister Stacey passed with cf..they were both so so strong in spirit.i miss them both so much.i know it's a few yes since your vid was uploaded but I really hope you are in good health at minute.merry Xmas. x

[@caroltrudgill5564]

Bless you xx

[@SaraWiley]

i do too and i just got out like last fri.. my brothers in right now. tell her to get better!