cystic fibrosis - Kaftrio update

[@CysticFibrosisFit]

I know the feeling... After almost 3months using it, i went on a check-up and... they told me; We made a mistake in copying your mutation long time ago, you have CF, but not the right genes to get Symkevi... So they payed for the 3 month treatment,and now I'm off for about 2 months...

[@chrislipscombe9179]

Ahh shit man, is there another type for your cf then? What's it called?

[@CysticFibrosisFit]

@@chrislipscombe9179 I can only hope that once they approve Kaftrio, that it'll be available for heterozygotes as well..

[@chrislipscombe9179]

@@CysticFibrosisFit I'm keeping my fingers crossed for you bro 🤙

[@CysticFibrosisFit]

@@chrislipscombe9179 yeah me 2... I realy improved on Symkevi, I was kinda numbed when I heard the "news"

[@chrislipscombe9179]

@@CysticFibrosisFit if it was working tho, why would they tsk you abck off it?