cystic fibrosis - Kaftrio update

  Рет қаралды 144

chris lipscombe

chris lipscombe

Күн бұрын

Пікірлер: 7
@CysticFibrosisFit
@CysticFibrosisFit 3 жыл бұрын
I know the feeling... After almost 3months using it, i went on a check-up and... they told me; We made a mistake in copying your mutation long time ago, you have CF, but not the right genes to get Symkevi... So they payed for the 3 month treatment,and now I'm off for about 2 months...
@chrislipscombe9179
@chrislipscombe9179 3 жыл бұрын
Ahh shit man, is there another type for your cf then? What's it called?
@CysticFibrosisFit
@CysticFibrosisFit 3 жыл бұрын
@@chrislipscombe9179 I can only hope that once they approve Kaftrio, that it'll be available for heterozygotes as well..
@chrislipscombe9179
@chrislipscombe9179 3 жыл бұрын
@@CysticFibrosisFit I'm keeping my fingers crossed for you bro 🤙
@CysticFibrosisFit
@CysticFibrosisFit 3 жыл бұрын
@@chrislipscombe9179 yeah me 2... I realy improved on Symkevi, I was kinda numbed when I heard the "news"
@chrislipscombe9179
@chrislipscombe9179 3 жыл бұрын
@@CysticFibrosisFit if it was working tho, why would they tsk you abck off it?
Trikafta's Impact
5:16
Cystic Fibrosis Canada
Рет қаралды 3 М.
Cystic Fibrosis - future plans
8:47
chris lipscombe
Рет қаралды 35
бабл ти гель для душа // Eva mash
01:00
EVA mash
Рет қаралды 3,4 МЛН
ПРЯМОЙ ЭФИР. Золотой мяч France Football 2024
4:41:06
Yay, My Dad Is a Vending Machine! 🛍️😆 #funny #prank #comedy
00:17
7 Weird Facial Expressions of a Narcissist
12:22
Danish Bashir
Рет қаралды 454 М.
Mike Greyell | Discover Stories Episode 60
18:16
Re-Imagine Radio
Рет қаралды 57
Aspirin and cancer: the emerging evidence
54:01
Cardiff University School of Medicine
Рет қаралды 1,4 МЛН
EMDR Therapy Session
23:42
Kati Morton
Рет қаралды 350 М.
Approach to the Exam for Parkinson's Disease
18:46
Stanford Medicine 25
Рет қаралды 1,3 МЛН
Sauna Benefits Deep Dive and Optimal Use with Dr. Rhonda Patrick & MedCram
1:21:29
MedCram - Medical Lectures Explained CLEARLY
Рет қаралды 2 МЛН
My CML: Episode 4 - Tips for dealing with fatigue (and depression?)
21:41
My CML Experience
Рет қаралды 1,6 М.
Cystic fibrosis - up and coming events
8:46
chris lipscombe
Рет қаралды 15