Dandy Walker Syndrome - Causes, Signs & Symptoms, Pathophysiology, Diagnosis

[@melodyrice6684]

Thank you i am 50 years old i was diagnosed with Dandy Walker Syndrome in 2004. Your videos are very very educational .

[@melodyrice6684]

Do you have any material that i can read because the medical words are hard to understand and im trying to follow along but i am getting confused .

[@RW-ik6ij]

Melody this site seems geared to medical professionals. There are tons of other sites that explain things is layman's language.

[@Dr_Zoe_]

Hi... Pls do vedios on epilepsy, Alzheimer's,parkinsonism,stroke, multiple sclerosis, motor neuron disease

[@suliemansy2715]

You are the best❤️

[@Jant574]

Thank you

[@Sue_Me_Too]

I just found out that my unborn niece has Dandy-Walker syndrome. Her brain and spine are severely deformed and she may not have eyes. My sister is 20 weeks pregnant and it's too late for her to get an abortion. I have no clue what I can do to console her or what advice I could offer. Dear anonymous internet people I pray that my sister has a miscarriage/stillbirth because my soon-to-be niece is going to be born into a living hell. This child has a very slim chance of seeing her first birthday and if she lives she has no chance of experiencing anything approaching a normal life. I cannot imagine the emotional trauma of bearing a child halfway to term and finding out its only future is suffering and death. I just don't know what I can possibly do or say.

[@JimmiAlli]

Nathan Witus hello - I hope that things are going better for you. It is very sad about your niece.

[@Sue_Me_Too]

@@JimmiAlli Thanks for your well wishes. Since my original comment the fetus had been determined to be unviable (WAY worse than Dandy-Walker) and my sister was able to get an out-of-state emergency abortion. She's totally distraught and I still have no idea if there even is anything I could do or say.

[@JimmiAlli]

Nathan Witus - it sounds like it was very serious and I am convinced that everything happened for the best. I do hope that your sister will feel better soon. It is good that she has your support and I am convinced that this is a huge help. Take care.

[@JessieI]

This is a late message, so I will instead direct it to those who might wonder what they would do, by sharing what I did. Not to direct you, everyone has their own mind, only to say that Love directed me unexpectedly. I chose to support my Son and his Girlfriend in whatever choice they decided was right for the three of them. Any, every, choice was going to be heartbreaking. My grandchild would not live, or would be vegetative, also this mother was a highly at risk pregnancy, I would not ever have her die. Of course you want to know why I chose this position. The next 16 hours of that tale would make this too longer story, cutting to the chase, I believe that I was very literally "CALLED UPON" to suspend all judgment and Support my Son and his Girlfriend in Unconditional Love. My eyes were opened wide 12 years ago. Then I shared the news and my choice to support with my part of the family and a few very select close friends. Some were unexpectedly cruel. I would never call myself pro-life again. To my Son and his Girlfriend I offered/they accepted, to drive them to Planned Parenthood that day, so they could take care of and hold each other, not have to think of traffic. I helped out with a few expenses, just the small things they would let me. My daughter and SIL helped them plan a memorial and my SIL ordered/arranged flowers. Every year these dates eviscerate me, even as I am 100% certain that the best decision was made; I miss my grandson, not in the same way that I miss my Dad and my second Dad, I miss the "Grandson that Would Have Been". My Son and DIL are married now, they've been together 12 years. I am so glad they found each other in this crazy world and made a love strong enough to carry each other through something so painful. SUPPORT THE PARENTS in WHATEVER THEY DECIDE. This is the most important thing you can do. (if you cannot, Please, just walk away, do not speak at all) They hurt far more than you do. I will never forget the sound of my son sobbing as he ran into my arms and the feel of him as he collapsed his full weight onto me, "SOMETHING IS WRONG WITH MY BABY'S BRAIN".

[@Farooha112]

I delivered my baby before 8 days ago and they are saying he is having this syndrome I am so worried😢????

[@promovisionYT]

my mri says i have dandy walker. i m 35. sometimes i feel like loosing control over body/flying feeling when travelling on bus/bike. I also feel head spinning and balance issues for around 10 seconds. loud music and large empty spaces leads to seizures sometime. if anyone can relate and can help me here @everyone

[@siddhantdev9744]

Nicely explained

[@medtoday]

Thank you so much 🙂

[@asliibrahimova9543]

Is it possible to occur the first pregnancy then the next one? Genetic inheritance?

[@medtoday]

Yes. There is a possibility. But not always

[@asliibrahimova9543]

@@medtoday Thanks for reply. My daughter was dws. She died at her two years old. Now I'm pregnant 16 weeks. Again it is diagnosed as dws. Is it possible to diagnose in 16 weeks? And is it important genetic test?

[@medtoday]

I'm sorry for your loss. Well, yes. Fetal ultrasonography can detect abnormalities of cerebellum before 18 weeks of gestation. If you want to do a genetic test, you can do a "Karyotyping". Anyway, refer a consultant for more info.

[@asliibrahimova9543]

@@medtoday thanks a lot

[@Sue_Me_Too]

My soon-to-be niece has been diagnosed as DWS at 20 weeks and it seems to be a really severe case. My sister hasn't had an MRI yet (everything is slow because of COVID) but the ultrasound has shown major brain and spine deformities and my niece may not even have eyes. I don't know if I'm trying to ask for advice or if I'm just trying to vent but I have no clue how I could possibly comfort my sister or if there is even anything I could do to make her feel better

[@bashairalhidri5955]

Thank you!

[@medtoday]

You are welcome ❤️❤️❤️

[@javicolomi7331]

tengo una duda... las enfermedades connatales van degenerando según la edad de la persona y pueden variar según los factores sociales? (Sobre todo para el sindrome de Dandy walker)

[@juanangelcarrero1009]

Yo, como portador de esta malformación congénita, Dandy Warkers, te puedo decir, que no, solo que como a mí, en cualquier momento la sobre presión intracraneal te puede producir un derrame cerebral.

[@the_true_medicine]

Great Thank you

[@medtoday]

Most welcome

[@lisabullock9665]

How's your sister and niece doing

[@glendawhite4477]

I just found out I have this I don't have any deformatys I had more behaviour problems

[@donnabyrnes1837]

My son 26 has a lot of behavior problems and has Danny Walker what do you do to decrease the behavioral issues that you have

[@mr.meeseeks9566]

Hello,..I have dandy Walker I am 28 years old ,when I was born I was givin a 3%chance of survival.,and as of now i want to find out more....out of all the doctor s i been too...only a handful have heard about this...

[@brycethoreson9216]

I am 27 and just finding out I have this, I want more information, what can be done to counter this

[@AngelicxSt]

I am 19 and was born with encephalitis. And today was just diagnosed with this after going through many neurologist my whole life.

[@damienluedtke9276]

Have it too, stay strong.

[@damienluedtke9276]

@@brycethoreson9216 Vc shunt inserted into brain, it drains fluid into abdomen so you piss it out. I'm debating if I want to get it.

[@damienluedtke9276]

@@AngelicxSt sorry beautiful, welcome to the club. We got you covered with info.

[@darshanilakmali3523]

👍