DAY IN THE LIFE WITH A TRACH BABY | DAILY ROUTINE OF A MEDICALLY COMPLEX CHILD

Welcome to our first video! In this video you will meet our amazing daughter Avynn. Avynn was clinically diagnosed with Cornelia de Lange Syndrome at birth in Nov 2020. Avynn was dependent upon a Trach and feeding tube for half of her life. I hope you enjoy seeing what daily life was like raising a medically complex child. Avynn unfortunately passed away in January of 2022. Stick around to see more videos as we share our family's journey to find hope in the midst of life's trials.
Let's connect!
INSTAGRAM | @lifeafteravynn

[@cherisekatzbeck5359]

I cried watching this. The love and care you guys have for your sweet girl is so evident. It’s also just such an encouragement to see the joy that you have as her mom and as you care for her.

[@thegatesofdawn...1386]

What a diligent mother! Just like professional nurse.

[@daisyfriska5]

Beautiful baby girl. RIP precious angel. She is with the angels now and Jesus. God bless her. Blessings to you mom and dad.

[@dianemelton7673]

I love her so much! I wish I could have held her and told her how special she is. Thank you for sharing her life with everyone.

[@megan7833]

Thank you for sharing this, it’s wonderful to be able to see an average day for little Avynn. She was such a gorgeous little girl. You worked so hard for her!

[@LaurieTafoya]

What a beautiful and precious mother you are. I’m so sorry for the loss of your daughter. May her memories comfort you, and may her story inspire and encourage other families, for years to come. 💖

[@Knight_Mode]

Thank you for being a strong mama and sharing this story.

[@janicemiller3144]

What a beautiful baby.... I'm so sorry that you lost your sweet girl... you know how sometimes you log on and a video shows up out of the blue? That's how I found you. And there is usually a reason. I love the banner on the wall. What a powerful message! I'm going to watch your other videos. God bless you and your family....🛐🙏

[@gracehall6009]

I'm so sorry, my condolences to you and your family. How heart breaking. 💐 💐 ❤

[@kwonjiyong9684]

Okay so I rarely get emotional, like rarely, like not even with Titanic have I shed a tear. But this made me so emotional, made me cry like a baby. May the little girl Rest In Peace and I wish you all the power.

[@GabeandHannah]

That is very sweet of you, thank you for the kind words!

[@bellebeauty67]

Hannah, Heartfelt condolences as you navigate life without your beautiful daughter.❤️❤️Your reverent beautiful. courageous spirit is on display in full glory!! 🕊🕊 Blessings upon blessings🙏🏼

[@hixxyted1244]

I'm so sorry your daughter was beautiful ❤❤ Sending you big hugs 💕💕

[@jenniferberry120785]

Beautiful special girl such an honor to have you share her with us. Your amazing love and care sites through the whole video. Such precious moments with your daughter❤️

[@balancinglife_autismparents]

Such an amazing mother 💕

[@cheryl1231]

Precious baby thank you for being such a good mom to her. ❤️🙏❤️🙏❤️🙏🙏🙏🙏

[@aldnd69]

Thank you for sharing your day. Such a beautiful little girl. So many little smiles. Much love xxx

[@ByeByeBelly]

She was such an adorable little girl, her smile so adorable

[@vanessaenglebin7487]

Me and my little girl we just watched your video on a big full screen on tv! What a great job of you! So proud! Love and a big hug from your belgian fans👍🏻🤩

Oh no! I'm so sorry if you get a notification saying I didn't like your video, my finger slipped 😱 Thank you so much for sharing, even after Avynn's passing. Her light is still shining, she is so gorgeous!

[@jo-annajordan2346]

I am so sorry about your daughter wishing your family a blessed years to come

[@carolbitzer6590]

She is so precious and beautiful 😍. Incredible eyelashes and hair!

[@maddex2000]

Congrats on the new channel. Love and miss Avynn so much.

[@elizabethdaniels3127]

You are an amazing woman your family are truly blest to have you as their wife and mother

[@jayarajmaduturi3514]

Ahhh oh my Goddd... It's really heart touching I can't .... You're really great mother...i hope she happy smile in your hearts 💕 and peace upon to her soul god bless you and good strength to you🙏🥀

[@cathleenmurphy9975]

Thank you for sharing. We are proud of you and the way you loved her as Jesus would.

[@ellethu22]

It breaks my heart watching this. My baby boy also has lungs issue so I can understand your struggles. Avynn was such a beautiful baby girl. She was a fighter because she has loving caring and strong mom like you. I’m so sorry for your loss and I just want to let you know you have been an amazing mom to Avynn. She was lucky to have your love. Sending you hugs ❤️

[@samanthadolloway7749]

Bloody hell she’s soooooo beautiful 😍 Thank you for the video xxx can’t wait for more I miss her beautiful face xxx

[@jacklyndegray4283]

Thank you for sharing this. It brought me tears also to see how you care for her. One day she will say thank you to her Mama for all this love.

[@margaretconnery7422]

The little one passed away in January of this year xx

[@crazyrobotlady3391]

Hi Gabe and Hannah! I just wanted to say that I am impressed with how strong you guys were caring for yourlittle girl. I watched her story first and then went to this video. Watching her story first it seemed like she was always in some sort of medical crisis, but watching this video I got to see/hear her in some moments of happiness where she could just play and be a little baby. I cannot imagine how hard all of this had to be. Not to mention little Aven’s Strength in having to endure everything that she went through. I was a premature baby, born at seven months. I weighed 1 1/2 pounds and had about a 50-50 chance of living, becoming pregnant, all sorts of other stuff. I came out of it relatively unscathed though. I am totally blind because the doctors did not shade my eyes when I was born and the combination of the ultraviolet light to prevent jaundice and the oxygen they had to administer to help me breathe caused the blood vessels in my eyes to grow abnormally and burst. It’s called retinopathy of prematurity. I also had to be rushed into open-heart surgery shortly after I was born because there was a valve in my heart that pumps blood to the lungs when the fetus is in utero. It did not close so it had to be closed surgically. I can’t have an MRI because I have a metal clip inside my heart keeping the valve closed or whatever. But I’m glad to have seen this video.

[@gracehall6009]

What a beautiful little precious girl. ❤

[@macarenaolivares7205]

Hi Hannah and Gabe! Since I follow your instagram account since the first moment that I saw Avynn Mae I loved her! ❤️ Her joy her shine and all the love that surrounded her ✨🥰 Thanks for sharing your life and family experience.... Much love and blessing for you from a chilean fan 🇨🇱

[@malutv2476]

Iloveyou Avynn !! Thankyou Hannah for sharing this 😍

[@alinajuarez7588]

Thank you! She’s so beautiful! You’re a great mom, Hannah!

[@margaretconnery7422]

Awh she's so dainty and cute xx 💞

[@michellebarnes814]

She’s a cute little doll 😘🥰

[@allistankiewicz2568]

Thank you for sharing, what an absolutely beautiful little girl. Your dedication to her and faith in Jesus blows me away ❤️.

[@judedimatteo8942]

This is just the sweetest

[@mnik8501]

You’re an amazing mom! I love her smile!

[@nhixuanle3405]

Such a beautiful angel ❤️

[@GloriaBarraganGLORIABARRAGAN]

So cute!❤

[@ChristinaCakesIt]

So proud of you and your channel! Avynn is still lighting up the world

[@cappa8]

Awwwwwwww

[@pizzafries]

So sorry for your loss,I can't imagine what your going through. I've never lost a baby myself, but lost Grandchildren. My Grandson died a few years ago,I think they said he was still born but yet the doctor had said he was born alive so he could have a birth certificate,other wise he would of just had a death certificate.

[@ZeldaZelda-RichesToRags]

Your story is very touching, heartbreaking....no parent should need to learn such big medical terms and shouldn't have to suffer like you have. Lord Bless you, your ability to smile gives me the strength to carry on with my own serious health issues....severe anemia,.EDS, Fibromyalgia, Crohns and other complex painful issues and then my husbands oral cancer, heart disease and now Covid for 2nd time, is fully vaxD, but losing too much weight and now looks like is something very serious like Leukemia, he's skin and bones, 130 lbs, 5'10"....its been a few decades long battle with both our having serious health issues. After watching your story and seeing your smile, I know others are having way more problems than we have. I love sewing and find ways to help others....maybe I should sew a few items, donate to those who need them. I love sewing, creating and embroider things such as my personalized pillow cases and blankets I donate to sick children...is something I've done before I became too ill to do much. Blessings to you and your family...Sometimes I believe there's a fate worse than death and that is suffering, especially little ones. The next time you see her she will be healed....no more health issues, Praise to the Lord!

[@lisapl343]

red is her color

[@OnekatSeivwirght-bo4fz]

Rip