Dear JDRF, can you win me back?

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5 жыл бұрын

Thank you to the Juvenile Diabetes Research Fund for shaping my life with type 1 diabetes.
Juvenile Diabetes Cure Alliance research report: thejdca.org/
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My name is Erik Douds and I am an adventure filmmaker and educator living with type 1 diabetes. I create content for top outdoor brands like REI, Pearl iZUMi, Arc’Teryx, Revo, Adventure Cycling, Sea to Summit, and BioLite. Trips include biking the Trans America Trail, running the Copenhagen marathon, and touring Alaska.

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@mrmallon8 5 жыл бұрын

Erik, I love what you are doing for the T1D community and badass awareness that you are raising across the country for T1D. I got to meet Cassidy at our JDRF Young Leadership Committee Silicon Valley happy hour the night you were at Open Insulin and it was great hearing what y’all had done on the tour so far. I loved following the Diabadass Tour to see what y’all did after. I understand and agree with the points you are making about JDRF and what needs to be done to continue to engage our generation that had JDRF right there when we were first diagnosed but has not necessarily continued to stick with us as we mature. JDRF is trying to do this but being such a large organization it takes time for these changes to set in and be learned/discovered by those outside the organization. Taking the Juvenile out of JDRF is a great example of this. JDRF is now just JDRF as opposed to Juvenile Diabetes Research Foundation, much in the same way that big 4 accounting firm EY is no longer Ernst & Young but just EY. They did this because T1D is not something that is diagnosed in juveniles or just impacts juveniles and subsequently outgrown. Similar to going from Juvenile Diabetes Research Foundation to JDRF, the big fundraising walks that are put on are no longer called Walk to Cure Diabetes but One Walk. This hits on your point that JDRF doesn’t just help research for a cure but also helps research for prevention and treatment and that’s something that people should know about. The overall goal/vision of JDRF is still to have a world without T1D but they know that there are steps along the way that should be taken to improve the lives of those impacted by T1D. Keep showing the world that having T1D doesn’t make you any worse than anyone else just more diabadass than everyone else. Thanks, Will Mallon JDRF YLC Silicon Valley Co-President

@ErikDouds 5 жыл бұрын

Will, thank you for this. I continue to connect with JDRF and would love to collaborate more to get these announcements out there. As someone who is pretty darn engaged, if I do not know about these changes and decisions then promise 90% of the audience most likely does not either. This is the benefit of taking a pulse on the diabetes community across America and figuring out new ways to get messages out. I’ll aim to send you an email. Also, will pin this comment so people can read it as well!!