Decoding Dystonia

Can you imagine a world where something as simple as brushing your teeth, washing the dishes, typing on a keyboard, drinking coffee, eating, and drinking is a daily struggle - an insufferable challenge? For some people, this world is not a figment of their imagination. For some people, this world is called reality.
Through a unique journey, this video aims to showcase the difficulties of living with a disorder the average person is unfamiliar with - dystonia. A first-person perspective will definitely help everyone empathize with these struggles.
The video continues with an overview of dystonia through an animated format. This overview includes information about specific dystonia characteristics, the types of dystonia, its causes, and various symptoms, and treatment options.
The video concludes with an emotional call-to-action; we as a society have a duty to help individuals in these conditions - to create an enabling environment that is accommodating to all types of individuals.
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This video was made by McMaster Demystifying Medicine students Faran Chaudhry, Ali Al-Humuzi, and Denver Della-Vedova.
Music Credits: www.bensound.com
Copyright McMaster University 2021.
#Demystifyingmedicine #Dystonia
References:
Albanese, A., Di Giovanni, M., & Lalli, S. (2019). Dystonia: Diagnosis and management. European Journal of Neurology, 26(1), 5-17. doi.org/10.111...
Bhandari, S. (2019). Dystonia: Causes, Types, Symptoms, and Treatments. WebMD. Retrieved November 11, 2020, from www.webmd.com/...
Defazio, G., Abbruzzese, G., Livrea, P., & Berardelli, A. (2004). Epidemiology of primary dystonia. The Lancet Neurology, 3(11), 673-678. doi.org/10.101...
Jinnah, H. A., & Hess, E. J. (2018). Evolving Concepts in the Pathogenesis of Dystonia. Parkinsonism & Related Disorders, 46(Suppl 1), S62-S65. doi.org/10.101...
Klein, C. (2014). Genetics in dystonia. Parkinsonism and Related Disorders, 20(Supplement 1), S137-S142. doi.org/10.101...
Lohmann, K., & Klein, C. (2013). Genetics of dystonia: What’s known? What’s new? What’s next? Movement Disorders, 28(7), 899-905. doi.org/10.100...
Ohlei, O., Dobricic, V., Lohmann, K., Klein, C., Lill, C. M., & Bertram, L. (2018). Field synopsis and systematic meta-analyses of genetic association studies in isolated dystonia. Parkinsonism & Related Disorders, 57, 50-57. doi.org/10.101...

[@ihtishamahmad7932]

Hmm... intersting video and very informative

[@elizabethag320]

Thank you for helping in bringing awareness to dystonia. I know I had never heard of it until I got diagnosed in November.

[@kaileeeckert7354]

I’m glad I’m not the only one

[@mjsilverfox]

Brilliant video and well informed info.

[@mcnugget677]

The happy music doesn’t fit so well… Also I came to know about this illness when I watched a video called “if you don’t recognise 5 things from this video you’re too young” and something about dystonia came up, very interesting even though I don’t remember it.

[@staceyfuller6078]

I went on Parkinson's medications and Dopamine Inhibitors and it helped a lot

[@dailydoseofmedicinee]

good topic.

[@ricardosaballegue1044]

i have cervical dystonia

[@shrawank.c.8116]

I have dystonia.

[@bryanlloyd1099]

I have Dystonia

[@snappycappy27]

Me too bryan

[@bryanlloyd1099]

@@snappycappy27 I hope that you got your Dystonia under control!

[@marilynv.942]

I've actually been to 3 Drs so far with no help. Here take a pill..that's all I get. My dystonia is pretty new..but painful. I have an appt next with a rheumatologist. Hoping he can help.

[@bryanlloyd1099]

@@marilynv.942 Hope you can get something that helps alot!

[@marilynv.942]

@@bryanlloyd1099 I hope you can too.! Right now mine is mild..but I don't know how it works. Don't know if it's gonna get worse.

[@jeanniebryars1903]

I have Dystonia