Deep Brain Stimulation

Hi, Welcome to Dystonia & Me. I'm Jordan and this is my first video showing how my DBS stimulator improves my dystonia.

[@bnavdez]

Awesome and informative. Gracias.

[@ritah.6752]

I imagine the continuous symptom relief of the stimulation keeps your function at a higher level even with the stimulator turned off. I remember your symptoms being much more pronounced especially when you were tired. Nice video!

[@MLM1011]

Great video, Jordan! Thanks so much for sharing! 😊

[@ritah.6752]

A video about how DBS surgery is done would be interesting!

[@johannahutchison8779]

Thank you for sharing the details of your dBS. It’s very helpful.

[@plutovenus4101]

Thank you. ❤

[@jamiewilliams5451]

My writing is so bad I used to keep a journal but can't anymore

[@dystoniame]

I'm sorry to hear that, I tend to prefer to type whenever I need to journal.

[@pusing010492]

​@@dystoniameare u ok right now .. i have dystonia also but its cost here 1.8million pesos in the philippines

[@dystoniame]

@@pusing010492 I'm doing well, thanks for asking. Some days are better than others. I was lucky to have insurance cover most of the cost of surgery, I hope you can find coverage also.

[@pusing010492]

@@dystoniame i cant work since i was 7 years old i was diagnosed cant go to school thats why i take exams only .. i try college for 1 year but didnt graduate