Do I Have Cyclic Vomiting Syndrome?

[@PersonalCOO]

Can't thank you both enough for this podcast. I have a loved one who suffers from CVS and this is the first bit of information that gives us hope for treatment.

[@GastroGirl]

@@PersonalCOO thank you so much for the feedback. I hope you and your loved one are doing well. Glad we could help in some small way.

[@scottburke8402]

I literally just got finished with a episode earlier. Wouldn’t wish it on my worst enemy.

[@dnice1996]

There are no options. My daughter has had this for 7 years & nothing works! My daughter had a 2 month episode. Vomiting with just a sip of water! She is so mentally drained! Now she is just waiting for the next episode!

[@salmapatel_]

has she gotten celiac tested?

[@GastroGirl]

Has she been diagnosed with CVS? Often times this overlaps with and/or is mistaken for underlying issues (gastroparesis, functional dyspepsia). While we cannot provide medical advice, we encourage you to consult a healthcare provider who specializes in this area. Here are some interesting articles you may find helpful, www.ncbi.nlm.nih.gov/pmc/articles/PMC5102760/ www.ncbi.nlm.nih.gov/pmc/articles/PMC6326193/ www.niddk.nih.gov/health-information/digestive-diseases/cyclic-vomiting-syndrome/eating-diet-nutrition#:~:text=Eating%20certain%20foods%20such%20as,Adults%20should%20avoid%20drinking%20alcohol.

[@kaohsiung99]

Prayers for your daughter.

[@stephaniebrodie5743]

My granddaughter was just diagnosed with this. She is 18 and just entered college in August 2024. She has had 3 episode since. Seems like they are coming every 2 months. She loses so much weight during these episodes. She has to go to the emergency every time to get fluids. Doctor prescribed anti-depressants, which she had to stop taking because she said it makes her feel weird. They also gave her nausea medication which doesn’t do any good cause it comes back up. I’m praying for another med that her doctor can prescribe to her. I have to watch her closely. She says at times she is tired of living like this.She needs HELP.

[@stephaniebrodie5743]

My granddaughter does the same thing.

[@nicolet4429]

It's awful to live with. Nothing you can do to control it.

[@GastroGirl]

@@nicolet4429 thank you for your comment. Have you seen a gastroenterologist?

[@Britelifemonarch]

I had CVS for 17yrs and eight years before I was officially diagnosed. It just so happens that the worst of my abuse lasted 17 years as well. The episodes were debilitating from 16 to 33yrs. I had my daughter at 33 and never had an episode. I live like a sick person for five years after afterward, though always terrified that my next episode with around the corner. It never came.

[@birdy-numnum6321]

🎉🎉🎉 This is the BEST! ❤ Thankyou for it!

[@GastroGirl]

@@birdy-numnum6321 you’re welcome! Thank you for the positive feedback!

[@jaimeclose6885]

I've lived with this for about 7 years. My teeth are destroyed. My body is destroyed. I'm skin and bones. It's miserable. When i told my doctor what i thought it was and she laughed at me. She didn't believe me. I never went back to a doctor.

[@kardonay]

I feel your pain. I'm 53 & had this condition my whole life. Had my gallbladder removed, accused of drug seeking, mental health issues and work avoidance. When you have a few "outbreaks" close together you start waking up each morning waiting to be smited again

[@scottburke8402]

I just want to know if this happens to anyone else. I know when I’m about to have a episode because I’ll wake up super early in the morning, and my mouth keeps filling up with spit, to the point where I guess I swallow so much, it gets the vomiting going. Them for hours I throw up spit and stomach bile for hours, i usually pass out after a while and wake up fine.

[@robertwatson4943]

@@scottburke8402 yes most mornings 🤮

[@leighmichelle9585]

Yes,me ,every few months, always early morning,non stop vomiting green & yellow bile and extreme nausea, feels like I'm dying, also a song on a loop in my head...last 48 hours 😢

[@Uberrimaefidei]

We just need funding, funding, funding for research and medicine. We need breakthrough now. Enough of the suffering!

[@deirdrereynolds8301]

I had my first cycle when I was only 3

[@GastroGirl]

@@deirdrereynolds8301 thank you for your comment

[@jodievandemark9268]

My husband had a stroke 5+ years ago and finds himself having this issue 1-2×s a month... could the stroke have something to do with it? Where can i find a neurogastrologist?

[@GastroGirl]

Thank you for your comment and sharing a little of your story. We cannot provide medical advice and highly recommend you consult with your husband's healthcare provider. As for neurogastroenterologists, they can often be found at many large GI centers. Where are you located?

[@jodievandemark9268]

@@GastroGirl Liberty, NY. I am taking him to a gastro dr this week. I'm hoping he can offer some help.

[@GastroGirl]

@@jodievandemark9268 excellent. All the best for a productive visit and we hope you get the expert guidance and insight you and your husband need.