Doctors Said She Was Going To Die, But She Refused To Believe It | Sophie Grace Holmes

[@Pool-1232]

As a person who has Cystic Fibrosis, CF effects everyone who has it differently. While what she has done is great for her, its not just a simple mind over matter. The amount of CFers who have passed in their teens and 20s, it wasnt because they didnt push themselves or didnt try as hard as they could, its because CF effects everyone differently. For some its more pancreatic and for others its more lungs, then their are those, like me, who have a mix of both and how badly it effects these areas can be more and less harsh based on their mutations and their genetics.

[@FinneasJedidiah]

Plus her parents were clearly very wealthy when she was growing up, and that also makes it REALLY easy to say "just do whatever you want!"

[@annipsy2185]

This is very important to keep in mind for people with any sort of illnesses that keep accusing others of not surviving/struggling more for not doing this or that to survive...its like, yes you survived but it doesnt necessarily mean it was because of what you did (unless its a scientifically proven method of prolonging ones life)

[@kittenwizard4703]

Yeah it seems that being able to afford medical bills tends to affect peoples ability to cope with illness, who knew

[@ES-fc9cy]

Yes, exactly! There are even different genes involved. I found out I was a carrier for the most common gene when I was pregnant. I was very lucky that I happened to choose a mate who was CF negative. I’ve taken care of babies through teens with CF as an RN, and I have so much respect for people fighting this disease.

[@whyaretheykinda]

glad someone pointed this out

[@montanagirl12]

I think it's important for people to remember that her story doesn't belittle those who haven't been so lucky, but we also shouldn't belittle her struggle with CF because of her viewpoint. CF is a very difficult and deadly disease, and simply having a positive mindset isn't always enough. Everyone's experience is unique and their own, and if mindset is what's getting her through then that's amazing for her. It's inspiring to hear from her, and I'm sure her example has helped many young people with CF.

[@daphnea5447]

100%

[@sidneybuckaloo]

Exactly.

[@saltygem3056]

As someone with Cystic fibrosis, who lives in Australia, with public healthcare, and "Positive thinking" and growing up wealthy, take it from my perspective- I'm 35 and needed a liver transplant at 15. Then a double lung transplant at 23. All the positive things and money in the world and CF still destroyed my body, by the time i was 25. I'm really over these CF patients that just believe that because they did X, Y, Z,, it's how it turned out for them, doesn't mean it goes well for other CF patients.

[@ivands16]

I feel like the message of this podcast isn't just about positive thinking. But using your mindset to live the most active and fulfilled life. Sadly, positive thinking alone doesn't give you that. Action is needed.

[@A---ti3zz]

@@ivands16 don’t minimize their struggle. If they could will themself healthy they would have. Given the little they shared they have gone through an insane amount of pain and suffering. I think people who act like all it takes is a positive mindset are naive and dismissive. Unless you have lived their life you don’t know

[@piquantement]

@@A---ti3zz nobody is talking about willing oneself healthy. They're talking about making the most of the situation that you're in, which looks different for different people.

[@ivands16]

@@A---ti3zz Where am I minimizing??? did you read my message? I'm saying this pod isn't about positive thinking.

[@atharva-naik]

While i agree with you that she's a lot luckier and probably has a milder case of it than you, there is no harm in giving the average CF patient more hope. A positive mindset and less stress are good for general health.

[@katherinegreen8392]

My husband has CF double lung transplant 5 years ago and is turning 45 in 13 days. It has been a rough ride for him at times and I am grateful every extra day we have together. He is only here no just because he is determined to live life, the access to modern medicine and the type of CF he has along with his sense of dark humour and personality traits that help him everyday. He doesn’t talk about it mouth but he has lost countless of friends to CF which I know has taken its toll on him. He is grateful for every day and lives his life his own way.

[@saltygem3056]

@katherinegreen8392 hope he is doing ok, I'm 12 years post double lung transplant 🫁

[@CassetteTe]

I was told that I won't live for long when I was 12. I never told anyone close to me, because I didn't want to cause them pain. I still remember my mom hugging me and crying at the doctors office. I am now 18, doing SO much better, still visiting doctors every month for x-rays and check ups. I am SO SO grateful to all the doctors and nurses that helped me through my issues and are STILL working hard so I could live a healthy life in the future. I had a bad "special" case of IBS, my constipation has been so bad since I was 3 years old that I couldn't live a normal life. I used to pass out from the pain, constantly throwing up, my body would give up on me, and I spent EVERY summer at the hospital since I was little. I'm so grateful for the life I have now, where I can live again as a normal teenager and adult, as my IBS has gotten so so much better. ❤

[@mathildafollend9358]

One of my classmates from elementary school had CF. She was the most energetic and all over the place kid I'd ever known at that time. She trained and was very active all her teen years and a good portion of her 20's, but then the toll of CF really hit. She passed almost 2 years ago at 32/33, leaving behind a child and husband. She truly did live her life to the fullest as much as was possible for her, but you could so clearly see the toll it took on her body. High spirit all the way, but when the transplant failed, she knew that was it. We were never really friends (for different reasons), but I admired her for her outlook on life and how she managed it all, despite knowing she had a very limited amount of years left.

[@darrellgarmon4126]

I work in clinical research for CF and it's amazing seeing how far we've come in medicine. I'm always very happy to see how people are beginning to live a life

[@DJBSharpMusic]

She looked death in the eye and said, "I'm kinda busy right now." Inspiring to hear that kind of enthusiasm and determination in such a defeatist-centric world.

[@samsapphirelake5625]

You are so patient and kind. I love how you treat people during your interviews. You let them say their piece and you are a great listener. Your kindness and humility are the reason I watch your videos. God bless ❤

[@donnahenderson8951]

As a person with cystic fibrosis seeing this come across my feed. I honestly just don’t think about it. That this is the truth. I don’t let myself think that this might be the way I die. Today was a harder day for me to breathe. Yet I still lived a full happy day with my boyfriend planning a future I’m not sure I’ll have. And I’ll do the same tomorrow for as many tomorrows as I can. I live my life how I would if I didn’t have CF. Thankfully I am able to work around it others aren’t so fortunate. ❤

[@bethgramkow5225]

I don't have CF but i have really bad asthma that has almost done me in. Even something as simple as a cold can rurn deadly in 12 hrs. As i get older my lungs get worse. I am 62 i know i have lived a full life and i hope to get 20 more. Not being able to breathe is so scary. I wish you the best

[@halimakoug7424]

WOW! how inspiring! I had a friend who died because of CF. He was too tired and didn't want to be intubated anymore , he was tired of the pain and had no quality of life. ( he had already been intubated 8 times prior). while it's great for her that she was able to develop a good mindset about her life and health, I can't imagine how difficult it would be to push thriugh when it feels like you've been slammed by a truck...

[@catH727]

Was a pediatric GI RN for 30 yrs. When I started. Many CF patients died in their teens. When I retired, I knew of several living into their 50s+.

[@Jabafish]

Why do you think that happens? I'm curious to know

[@cathymckay5915]

My grandson has CF.

[@jch9301]

@@JabafishNot the original poster but the answer is advancements in treatments and medication

[@pieterjooste513]

Good evening from south Africa I was born with cystic fibrosis as well I'm 42 now thanks so much for this video

[@tristanbaverstock5803]

I had 2 aunts who died from this horrible disease. Things were different in the 60’s, 90’s and even now. I’m so glad that medicine has come such a long way for those living with this!

[@ajjuney]

My daughter has it. Is on Trikafta now and it’s changed all of your lives.

[@TRADITIONALwife84]

And the new ones coming. ❤❤❤❤ my babies 16 and a healthy athlete. ❤❤❤❤

[@Dayholly86]

My best friend has spinal muscular atrophy (SMA). She was so young when it became evident, her life expectancy was 2 years old. She is now 37 years old and, thank heavens for Spinraza.

[@philparisi9175]

Friend of mine with same diagnosis had a great life through 50 years old

[@mamamiaWAAAHHH]

Good to hear

[@Amanda-zn7ox]

I think I need to adopt her mentality. I have many chronic conditions, and I always fall to the mindset of "I can't." And then I see Sophie, who's basically always on death's door, pushing her limits. I think my biggest issue is that I should have been hitting certain milestones by now. When my sister was 26, she was already engaged and owned a house. Well, she still owns it. I need to find some sort of balance between the two mentalities.

[@ShelliSands]

Setting goals and having a positive mindset is great! Maybe not so much when it comes to comparison. “Comparison is the thief of joy”

[@tastyjerry]

as a queer “late bloomer” (hate that term), all those milestones people talk about and when to reach them are BS. it’s for a very specific type of person who is straight, cis, able bodied, and middle class or above. i struggled for a long time with thinking “im X years old i should’ve done Y by now” too but my therapist helped me realize that life is not about meeting milestones and moving along a specific timeline. in my mind it makes life seem like a checklist to complete, rather than an experience. hope my advice helps at all, best of luck to you

[@Amanda-zn7ox]

@tastyjerry I know. It's something I'm working through in therapy, too. (I'm also, I guess you can say, strongly demisexual. Like, I'm not desiring sex, and I'm waiting to find someone I can trust, first and foremost. I guess kinda bordering on ace, but I digress.)

[@SomeoneIusedtoknow-s1f]

Same I'm right here with you. I'm currently unable to get access to the meds that give me more energy and quality of life, and I'm unsure if I'll be able to, and it's honestly hard to have the mindset of I can and will, when my own body frequently proves I can't midtry... Idk. I'm here with you!

[@pemanilnoob]

My problem with a lot of things “I can’t” do is just not knowing how, and not knowing how to find out. I’ve never thought “I can’t do this thing I want” only “I want to do this but I have no idea where to start”

[@discobean7253]

I meant to only watch the intro cause I was in the middle of mopping my floors, but I ended up listening to the whole thing. What an amazing person she is. I hope to bring all that you guys talked about with me for my days and years to come. Really great episode and conversation 🌻 thanks Mike and Sophie

[@tej4975]

thats exactly what I felt, I was only going to watch 10 mins, but such a high quality conversation, that I couldn't hit pause

[@rorulent]

I lost my cousin with CF at 19 years old, her "living life to the fullest" though became drugs which is what took her. My family still says it was her CF that took her because it hurt too much

[@Dayholly86]

For your sake, I'd interpret it as them living and dying on their own terms. CF must be such a difficult and unpleasant way to live. Sounds like they found an escape, both temporarily and permanently. Truly sorry for your loss.

[@saltygem3056]

As someone with CF, I can say that CF brings alot of emotional trauma that people often hide, and cope with in other ways. I have mental health issues that are stemmed from Cystic fibrosis.

[@kpatterson7]

Not to mention the fact that a particular group of people have something that gets triggered in their brain when they take opioid medications & effects them differently than most people & it is increasingly difficult to stop taking the medication regardless of class, race, sex, age, lifestyle, career, family, religion, etc!

[@saltygem3056]

@kpatterson7 in America, yet. As someone with CF who has been on chronic pain medication for years now, in Australia, the medication I'm on isn't even allowed in America, yet it's allowed everywhere else in the world. Kind of suspicious really, of American pharmaceuticals. Whatever is in the opiods there, is drugging Americans to a new degree. The medication I take is called Targin. Yet America Won't allow it due to "liver issues"" yet I've had a liver transplant and on it fine with doctors in Australia,

[@kpatterson7]

@saltygem3056 TY for sharing that! I'm currently researching the topic. I despise BIG PHARMA!!! They have destroyed the lives of people I love & of course many others! I pray the new CF rx r working & affordable in addition to meds for pain!

[@purplemlonz69420]

Her confidence is something we all need

[@Jennifer-8010]

Being told when you'll die must be the worst feeling in the world! Imagine being told you'll die at 16 it must be so heartbreaking😢

[@ttee6990]

thats why it isnt smart to tell it to the patient. it might affect them how they cope with the disease and its not in the place of a doctor to do. but to be cautious bec so many have defied diseases we never thought would survive. and not play god

[@nancymoore8250]

My nephew just celebrated his 25th anniversary since his double lung transplant. Johns Hopkins says that he is a record breaker 👍🏼💪🏼.

[@7duke77]

My ex-wife had CF (RIP😥), but it affected her so little, and even her doctors said that if she'd only do a few minor life changes (like quitting SMOKING!! yes, really!) she would easily still be alive and thriving. As it is, she beat a lot of the odds and made it to ~40 years old. Sophie however, is an inspiration to ALL of us! If we all would take her attitude as our own, imagine what we could accomplish!

[@HALLOXXxx-50]

were learning about cystic fibrosis in health and social, an op subject for last yr of school, and learning about it makes me realize how hard it acctualy is for people to live with it. im proud of the people who are managing it and sorry to the ones who cant :(

[@MVGB90]

She and Doctor Mike definitely speaks for the upper middle-class. It's easy to say "live your life" if you belong to that class. For poor people who take three or four jobs in a day just for subsistence, life is actually work 24/7. For a person from the Global North, we come to the realization that we need to struggle and topple down a social system that does not allow us to live our life before living it the way these speakers are saying

[@shannon890]

I would add only upper class. The middle class doesn’t exist especially with American healthcare costs.

[@kpatterson7]

​@shannon890 Its all about perspective imo... My mom who is generally healthy says the same thing as you from her house in San Diego to me who has poor health including SLE & currently typing this from my home, my Toyota Echo.

[@Alfimation]

I need her attitude! I’m always bummed out from having paralysis but what she has is way worse and she just gets on with life!

[@lechatbotte.]

There was a story of a young man who lived bravely with his CF sadly he passed at 38. But he too let nothing stop him

[@horseceelover]

I have fibromyalgia. Some days are debilitating but i generally try to push myself and not let it control me. You are very motivating! ❤🙌💪

[@Piglet9944]

I have fibro too! Wishing you all the best, and low pain days! We can do this ❤

[@horseceelover]

@ you too! ☺️🙌

[@I_am_Lauren]

Living your life to the fullest looks different for everyone. Chronic illness peeps, don't let unrealistic goals distract from the awesome things you have already accomplished! A positive mindset does help a lot but that alone won't get you through it.

[@ibrahim.hejazi5683]

I grew up in a country where I was denied CF care because of where I was from (Syria). My mother is the reason Im still alive. she bought over the counter medications, antibiotics, nebulizer meds/treatments for me aswell as doing Physicial therapy on me whilst doing my treatments. and without a medical degree, she kept me alive. I was constantly told by my doctors that I was gonna be dead before the age of 14 with the constant lung infections. I eventually moved to the USA 2 years after I diasgnosed with liver cirrhosis and was told I needed advanced pediatric care, and that I would not recieve it where I was. After I moved I got the treatment I needed. Im 22 now and Im currently working as a Pediatric Emergency Department Paramedic in the hospital I was treated at for years before I transitioned to the adult side. My long term plan is to become an Emergency medicine physician with the sub specialities of Pediatric Emergecny Medicine + EMS/Disaster fellowship. I was to build a new generation of EMT's, Paramedics, and doctors so I can train and shape them from the ground up.

[@Me12464626]

Good luck in your endeavors- you will be an amazing provider one day ❤

[@catloverKD]

For anyone else having an issue with this one, you're sensing inspiration p*rn and condescension. Yes, mindset is powerful, but it's not everything. And there is no shame in achieving less than someone else; as long as you're content with what you're doing.

[@piquantement]

Mindset isn't everything but sometimes it's the only lever you have. I don't think this was presented in an unrealistic or exploitative way. She's just expressing how she managed to make the most of her own situation.

[@tom_is_dum]

wow she is so confident. i wish i had that confidence

[@i_existrandomly]

Even if my dumbest moments confidence is key 😎

[@michaelwilkinson5097]

Make confidence a lifestyle choice.. This is how she lives

[@DanielAusMV-op9mi]

She has a boyfriend probably also that's why

[@Kat-tr2ig]

It's narcissism, not confidence. IYKYK. But she made it work for her, so good for her I guess.

[@NurseMadDbee]

Having a purpose greater than yourself, having a strong sense of identity, and being okay trying something and failing are all things that build confidence

[@Duolingo-247]

I can never be that confident or brave at all like her…thank you doctor mike for an amazing vid😆😆😆

[@Magani79]

limiting belief spotted!

[@Tuti23-yt1vw]

You will once you believe

[@kylebartolac7485]

I was diagnosed with atypical or non-classical CF when I was 16, for me it means pancreatitis 3-5 times a year. It has affected every aspect of my life and put my self worth in the gutter. I’m 32 now and regretting not doing so much with my life. So I would like to say thank you Sophie this interview has helped me in ways I probably won’t understand for a while, Keep chasing life, I’ll try myself.

[@BudgetBeautyBabe]

I was told I had a 50/50 hancenof living to 18. I'm now 43 with CF and going strong.

[@jessetorres8738]

I hope Mike does another Survivor injuries & medical evacuations video at some point since he didn't react to some iconic ones & there have been more since that video was uploaded.

[@swasome5821]

When she was mentioned on the meme video to have a podcast with you, I had to check it out. 1 marathon seems terrifying for me to do, but 36!!!

[@Laundrey1]

I love near the end the conversation about it being okay to feel sad about a situation and how that doesn’t mean it’s a condition per se. Right after I moved to a place with no friends or family and into a very closed off community as an extroverted individual who thrives on social interaction, a Dr diagnosed me with manic depression. I knew it wasn’t that so I refused to fill the Rx. It turned out that I ended up having a few illnesses, including celiac, hEDS, and POTS, that was causing the lifelong fatigue and pain, not depression. I also wear my emotions on my sleeve and was honest but had a lazy Dr. Needless to say, I found a wonderful Dr and have remained with him for many years now.

[@SciFantastic]

The confidence that she has is admirable 👏

[@Kardall]

Her attitude is astounding. I want to watch the rest. But I had a good friend that passed from CF and the conversations are just the flip-side of the coin of what they did. It just brings back memories. It makes me feel like they gave up on life early on, and just kind of let whatever came at them happen. Gave up the ghost. But before they had the diagnosis they were a fearless person in any activity they did. I do appreciate the interview at least to the 18min mark, but it started to get real. Really fast. But 11/10 would recommend for others. Thank you Mike.

[@nattysam94]

Strong woman. Very good for her. Thank you for sharing your story and your mindset! You’ve created a beautiful life for yourself despite the challenges thrown at you ✊🏾

[@beverlystraus9300]

Lovely, confident, diligent woman!.🎉

[@cryptocred5754]

She is such a beautiful woman, inside and out.

[@DipshikaSarki-z3g]

A absolutely inspirational stunning women with a great legacyy!💕 SO PROUD AND HAPPY FOR HER GOAL BEING SUCCEEDED. absolutely.

[@jithenin]

Thank you Doctor MIKE for this conversation with SOPHIE GRACE 👍❤️

[@Itgirl98-ct7zh]

Please share more people with chronic illnesses ❤

[@A87-p1l]

Wow what a rockstar!!! She’s amazing! This was truly motivating❤❤❤

[@georginalacayo5795]

Sophie is Emily Blunt's doppelganger!

[@andrewhegstrom2187]

We have people with CF living into their 40s and having children. Which is pretty wild compared to just a decade or two ago. I read some medical journals on it for an L&D rotation and didn't even realize they could survive a pregnancy, wild stuff.

[@katherinestormont3600]

Great interview. Such good questions and observations.

[@hotrodgirlie7028]

What you said about chronic health having negative repercussions is so true I have a bald spot on my head bigger than a half dollar because of the past six months being unrelenting stress, anxiety, and panic!

[@cowmath77]

2 take aways for me so far. 1, mindset backed up by body can take you amazing places. 2, money is everything.

[@AaronBong-t7b]

She really proved that mind is a POWERFUL FORCE

[@DarkMidnightDreamz]

This is super cute! I’d love to see more of these! I love when you two get new outfits and share them! 🎉

[@pinkerbot]

What a wonderful conversation. You both are inspiring people!

[@LucasCarter2]

It’s basically just luck. For some people tripping is fatal. For others they live with a terminal illness for far longer than they’re supposed to. Stephen hawking shouldn’t have lived as long as he did, but he’s the outlier, the exception. These lucky people shouldn’t advocate for their lifestyle in people with the same illness as them because frankly speaking it’s irresponsible for them to tell others that they just need to mind over matter their situation.

[@ItsJennNotJenny]

I think both sentiments are true tbh.

[@osseous42]

I think I understand your point of view, but I’d like to share a different perspective. I have cystic fibrosis, and for many years, I’ve fought incredibly hard to stay as healthy as possible. My main driving force has always been my love for life and my curiosity about so many different things. I want to make the most of every moment, you know? If I hadn’t given it my all-training hard even when it felt like I was starting from scratch after every cold, flu, pneumonia, or even things like pneumothorax-I wouldn’t be here today. I’ve lived longer than I was expected to, and I truly believe my mindset has played a big role in that. :) Of course, I recognize that luck also plays a part, and some people face even tougher challenges. But for me, choosing to fight and embrace life has made a huge difference. So yes, I think advocating a lifestyle focusing on the importance of mental resilience, curiosity, positivity and a love for life is important. I don't think it ever harms, only helps. An excellent advocate who just refused to let CF break her spirit and love for life was Claire Wineland and many, many people have her to thank for helping them see life with CF differently.

[@Jabafish]

​@@osseous42 wow you're so resilient. I can't imagine being like that myself! You're very impressive 😆

[@sora15151SomethingAppropriate]

Mindset, and putting great effort into fighting your illness and doing what you can to improve your health, is incredibly important.

[@lindaherrick1147]

Fantastic episode! It led me to adding more quotes to my home office to keep focused and motivated 😊 Appreciated the perspectives (and reminders) on understanding risks, controlled suffering, the power of hope, and how doing hard things makes life easier.

[@JamInABigJar]

Love the vids.

[@ElahehDaisy]

She is an outlier, and I would love for us to remember that CF is still a fatal disease. We need to acknowledge the fatality to be able to feel the pain that the patients and their families go through when dealing with this disease.

[@ElahehDaisy]

I am happy to see her being so brave and strong. However, I am worried some may misunderstand the difficulties of this disease.

[@Beckles-kq1vs]

Agreed. I had a childhood friend with CF die at age 25, and another friend's husband died at age 34.

[@ElahehDaisy]

@@Beckles-kq1vs that's devastating 😭 I am so sorry for your loss, praying peace for you and their families

[@HeavyMetalKittenx]

This was a wonderful podcast Doctor Mike.

[@betterthenyourFeathers]

My conditions aren’t terminal, but as someone who is disabled and has been in chronic pain since childhood. I get this, I understand. I’m getting my black belt in Taekwondo soon, and that’s with legs that don’t always work and a body that doesn’t always function. You just keep going, some days it’s not 100% but it’s never 0 unless you physically can’t manage.

[@1cure4cf87]

Thank you for this video! As my name suggests, I have CF as well. I am in admiration at The 36 Marathons in such a Short amount of time. I appreciate the ability you have to spread awareness to this little known but widely suffered disease.

[@1cure4cf87]

Fun fact, when I was born my liver was so enlarged it made it into a hospital textbook.

[@Besties_Unleashed]

You are so amazing dr. I love your videos thank you for them

[@Magani79]

she is very inspiring and very bright!

[@Luvhsstar]

I love this video !

[@Sarahpurple12]

Doctors should NEVER say things with full certainty - "you are going to die to your condition" "you will never be able to do x, y, z again" Change it, do better - "you will likely die to your condition, but you could die to an infinite list of other things" "you will likely struggle to do x, y, z, again and that's okay, but if you can do it that's okay, too" My brother had a spinal AVM when he was 14(?) and was paralysed from the waist down. He was told that he would never walk again. Two years later, he was walking with crutch support. He is now 30, and walks with a slight limp, can't properly feel sensations in his feet, but he can walk with no support at all. If he had taken the doctors words on blind faith, he would still be in a wheelchair through lack of trying. I understand that, 16 years ago, a lot of things would have been considered permanent or a death sentence, but we still get it today where doctors will say things will definitely happen or definitely won't. Start empowering patients - tell them the likely reality, but remind them that there will ALWAYS be exceptional circumstances.

[@priscilahurtado9980]

Oh my gosh you guys actually got her on!

[@connorsmith2622]

I think the message of this episode has been somewhat misunderstood. I also have CF, I’m 30 and I’m also from the UK. I’ve had friends that have passed away at a young age due to the condition and the complications it causes so I’m fully aware of how badly it can affect others. For me, the overall message of this is deeper than just ‘positivity beats all’ - which is something social media is guilty of now - but one of finding YOUR limits and pushing them. If yours is only being able to get to the end of the street without needing an inhaler, cool. Tomorrow can you go another 10 yards? Then another 10 the day after. The fact CF affects everybody differently is correct which means we all have individual needs and limits just as we are all dealt different hands in life. It’s easy to sit there and say how lucky she is to have a ‘milder’ case of CF (as some people are calling it) and be able to do what she does but instead, why not take some inspiration and see what you’re capable of? I run, I hike, I cycle, I train, I lift weights and have done countless physically demanding challenges. I raise money for very small Cystic Fibrosis charities and document it all along the way through Instagram. But these are just things that work for ME, they give me drive and discipline and they’re the best things to supplement my treatments and the mental strain of everything. Experiment, find what works for you and go with it. You don’t have to run marathons or break records but you’ll almost always surprise yourself of what you’re actually capable of.

[@kendallbeckloff3110]

This was an awesome and amazing podcast. I love hearing other people's health journeys. Even though I can't do some things anymore, I need that reminder to keep going, and that it's going to be ok. So inspiring. Thank you.

[@aboynamedjayy]

All I’m hearing is that wealth improves quality of life no matter the diagnosis. I haven’t finished the video yet but it would be a disservice to gloss over this fact and focus on just her “mentality” being the key. It is and was wealth.

[@ttee6990]

yes the replier above either isnt a doctor who observes her patients well and doesnt understand that there are plenty of variables to diseases. and people in general want to live. except for those very few individuals who dont. or have severe mental disabilities. which are not the general population. anyway its not use to argue with people who see things with just one lense. but maybe if they read the comments below will actually realize it. and yes the medical professionals in the usa are going down at this point. the few that are so good are very expensive and lots of money is needed. for the average person it isnt attainable.

[@tastyjerry]

yeah same thoughts here. im halfway through and she hasn’t once mentioned having a job currently or any of her medical expenses

[@danadentremont7233]

Wealth in such circumstances usually leads to substance abuse and much worse health... not the amazing things that she's accomplished

[@Crystall1961]

@tastyjerry First of all she, like myself is British so the NHS takes care of ALL of our medical expenses so no medical bills to worry about and second she actually mentions "her clients" so it seems she does have a job and is probably self employed.

[@kpatterson7]

I definitely think wealth & beauty can improve your opportunities but aren't the only factors!

[@ookamiblade6318]

Honestly, I know it’s a more in-depth explanation, but explaining the math behind life expectancy for conditions might help. Everyone says the doc told me I’ll be dead by such and such age, when it’s really 50% of people with your condition are dead by then, or 90% of people with your condition are dead by then. It gives you the reality of your situation while also allowing for hope of beating the odds.

[@bokgaming6645]

So inspirational! That is absolutely amazing of her! WOW!

[@devrarobertson8179]

My nephew was diagnosed when I was a young teen in the 90's. He got his diagnosed because while at the hospital with my sister and nephew, my mom was reading a Reader's Digest that featured a story about CF, she recognized the symptoms he was experiencing and insisted that he get a sweat chloride test before they leave. He was only about 6 months old and clearly starving and suffocating, hence the hospital visit. Within a few months he was doing better and everyone in our family got genetic testing to see if we were carriers. Both his sisters, myself, and all my siblings were carriers. Now, nearly 30 years later the medical community has identified more genes that are linked to CF and it turns out I've got 2 and likely have the actual condition, it takes 2 genes, 1 from each parent, to have the actual condition. My sweat chloride tests have all come back abnormal, but not quite enough for the actual diagnosis, but enough that they've started treating my CF symptoms.

[@purvisutrave3200]

Hello Dr. Mike!! I've been following your channel for 4 years now, and I'm always amazed by your ability to make complex topics so easy to understand. Your passion for medicine is truly inspiring! I've learned so much from your videos, and they've helped me in biology.. Thank you for sharing your knowledge with the world. Your videos are not only informative but also incredibly entertaining. Your humor and personality make learning fun! Once again, thank you so much Dr. Mike ❤❤ Sending love from India 😄😄

[@ttee6990]

i do think its important to have a postive attitude and it does help in regards to how we view things in life. but just a positive attitude isnt the answer to disease all the time. there are plenty of variables to if we succumb to disease and if we live through it. like access to good doctors, family support, god runs the world and if its destined for someone live nothing stops it from happening including severe deadly diseases. as we have all witnessed. and some can fall and die because of the type of outcome. clearly we need positivity but its not the only thing. lets have a broad picture and not look at things in black and white.

[@graciaspalma7507]

In life there are challenges that must be overcome, limitations are in the mind, you have to do what you like the most.

[@yellowcatmonkey]

🙈watching this, as a runner, from my comfort zone that i rapidly sank into after experiencing too much stress that caused me to eventually break under pressure, gradually stop running and gain a lot of weight is so confusing..like my motivation to do anything vanished.. i've run daily for years and now i can barely make myself run once a week i feel like i've lost myself..and there she is 🌻🙈eerie..watching and listening her as if looking in the mirror and yet..my soul left me. i feel nothing and no words help me because all i want is to eat, watch movies, do nothing, sleep..i feel like i failed even tho technically i still have my muscles and all that's changed is weight (+10kg) but my brain just says "i don't want to and i see no reason to do it now. i want to eat persimmons, sweet creamy cottage cheese, watch series and sleep".. 🙈i used to wake up at 5am every day workout then run for years..now..nothing..i don't even want to wake up.. anyway.. she's..thank you for inviting her 💖🌻🙈i hope i'll get back and be strong again like her🤝💕🤗

[@tamberjune]

I hope you can find out why and push through if possible ❤

[@ParadymShiftVegan]

You might be experiencing the symptoms of some kind of mental health condition. There might be treatment options available. I would maybe talk to your PCP about getting a psych eval.

[@yellowcatmonkey]

@@tamberjune trying my best🙈did wake up at5am today, worked out a bit and ran a little.. i know the reason tho.. starting a new relationship(after being single and happy for years)+several checkup appointments bloodwork and such spanned over two months+a very restrictive diet prescribed by my doc+daily long distance running(20km+)+lack of sleep+changing seasons+breaking up TLDR stress🙈thank you for your kind words💖🌻 i'll keep trying to get back one day at a time✨

[@yellowcatmonkey]

@@ParadymShiftVegan i don't trust local mental support🙈i live in russia..but i'll try to find a doc online thank you 💖

[@thebalancedplanner]

Read Atomic Habits !!!!

[@pammywilly]

My brother was born with Cystic Fibrosis. He was told he would die as a teen. He played high school baseball - throughout high school. He went to and graduated college. After collage he played semi pro baseball. Was always athletic. He had his first bout of pneumonia at about 22. He didn’t have pneumonia again until 30. Not until 30 was he continuously sick and in and out of the hospital. He was put on the list for a lung transplant at 32. He had an hospitalization where he had to be put on a ventilator. After that he decided that he would go DNR. He died at 33. The day after his death, his wife received the call that there was a lung available. I wish he hadn’t decided to go DNR. That was 30 years ago.🙁

[@iwwiieieqwpwpow]

such a warrior if she can do it, you guys can do it too so inspiring.

[@koganeitou]

Ah he really did get her on the podcast! I've been looking forward to this discussion between these two (: I'm sure I speak for everyone when I say this

[@TobyMavros]

Bless her and everyone with cystic fibrosis

[@kimmyk3640]

My 82 year old Mom attends a boxing class for Parkinsons and it has been a game changer.

[@Eclectic-Sheep]

She’s definitely awesome. And also, let’s not forget survivorship bias here

[@pinkerbot]

Interesting. Could you elaborate?

[@bobhawkey3783]

Good for her but is it confidence or just late manifestation of symptoms? Let's not assume a positive attitude can change physiology. I hope she enjoys life no matter what.

[@ksc743]

It absolutely can affect and therefore change your physiology. Look it up.

[@bobhawkey3783]

@ 'can' is not 'does'.

[@ksc743]

@@bobhawkey3783 it does

[@ksc743]

@@bobhawkey3783 it does change physiology bc happy thoughts create serotinin which impacts other organs in the body.

[@mlrs21]

You should do a video on school food and why they are good or bad for you

[@kristinaarp9144]

“You’re really a non-compliant patient.” 😂😂😂

[@jaclarawhite9706]

I'm such a big fan of your videos doctor Mike 😊😊😊

[@yellowcatmonkey]

she's wonderful 💖 thank you, dr mike🤗✨

[@VanessaR87]

Truly inspiring! Please keep doing content like this because we all need be reminded of what is possible even when someone might have the mindset that one can’t do something (meaning the naysayers in society who tend to think that just because someone has a chronic and/or terminal illness they can’t do certain things when in fact they can and quite well speaking from personal experience here and in no way I’m I trying to undermine the fact that there are different factors that play a role in the overall success of an outcome in terms of treatment, especially when taking in account one’s overall health in relation to severity/type and access to care) due to a health condition/challenge that would otherwise create a roadblock and not allow someone to lead a meaningful life. As always, thank you, Dr. Mike for all you do and for continuing to help change the conversation for those of us who deal with various health challenges. I say this as someone who has dealt with the daily struggles that stem from having been diagnosed with cerebral palsy at birth. That being said, I am well into the 37th year of my journey, and have never found a challenge that I haven’t been willing to overcome. Cheers to all the warriors out there that have continued to defy the odds. You got this! 💪🏼 💚

[@arivontrapp]

I have CP too!

[@VanessaR87]

@@arivontrapp nice to meet you fellow CP warrior. 💚 💪🏼 Best of luck to you. 😊

[@arivontrapp]

@@VanessaR87 💚

[@rebeccaxx]

i binge watch ur videos, how am i so early lol

[@EmiliaOliveira-l9s]

I love this video ❤❤❤

[@uditasatish.01]

I've never been this early!! Love you vids!!

[@ukaserex]

Had a childhood friend die of CF at the age of 40. At that time, that was pretty much an incredible feat to survive that long. It's just a shame that despite having the human genome CRISPR technology, we can't use it to just fix this. (didn't have it then) What's really irritating is this woman, like so many others, has a fantastic will to live - and not just survive. And reproduction has got to be a terrifying reality. Her parents have got to be incredible people for her to have this attitude.

[@xojacquie7356]

I'm sorry for your loss. Every person I've ever met with CF are truly incredible people ❤.

[@JanaTernonva-m5x]

Been subscribed to your channel for a while, keep it up!

[@Capt_Caveman205]

We ALL have a limited time on this earth and every day brings us that much closer to the end. So make the most of everyday and push yourself to achieve those things you want that you believe are to hard. Because thats when you can lay on your death bed with much fewer regrets. I learned this from this lady. Now as a quadriplegic i need to find a way to apply this to my life.

[@kathrynreilly3377]

What an inspiration 🎉

[@rebeccaxx]

can u do virtual operation again? i just watched that video and i almost choked on a popcorn 😄😆

[@Timmah200]

I work with elementary students every day. One of the hardest things for them is being told they made a mistake...they take it personally; they think they are a bad person because they made a mistake. First lesson: it's not personal. We are going to let you know when you make mistakes so that you can learn and grow.

[@Beau4824]

Hey I have cf too