This is the most profound documentary I've ever seen on HD.
@f3blpcfi6 жыл бұрын
What a lovely documentary. Really beautifully done. Much respect to the families and their carers.
@merileehanson96955 жыл бұрын
My husband is 53, and is entering the last stages of HD. His father drank himself to death at 54, masking symptoms, and we'd never heard of the disease. Only my husband has it out of 5 children, and we consider that miraculous! We had 2 boys before any symptoms appeared and diagnoses were made, one now 22, one 17. The eldest tested positive, and his name was never put to the results; done anonymously. The young one has an appt for early September of 2018 to test. Now, getting to my point...I wish even one person covered in this documentary referred to their faith in God to help them through this disease. I truly would fall apart if I didn't know that i would see my husband, whom I've been with since I was 16 and in 10th grade, again in an afterlife. Or my symptomless child. I know I will, and the suffering is only temporary. I love you, Alex. For better or worse.
@kristinesmart245 жыл бұрын
This is one of the best "comments" I've ever read. You hit my heart like an arrow. I wish we were neighbors so I could talk & help you in any way. My husband is so good with caring and giving. I know what you mean about not mentioning God. I'm very guilty for divorcing my thoughts about Him from my soul. I don't know why I question things and get my Faith back; my Mom was so firm on instilling God in her children's lives. I know this life is for a bigger purpose & I can't imagine the strength & positivity you must have with your love for our Almighty. Thank you for taking the time to share. I worked for a very short time at a nursing home just last month. There was a young woman suffering from Huntington's and her own sister was living on the floor above. I saw no one visit her; but I can't damn anyone by judgement. Maybe they are afraid and somehow feel guilty for their declining health. Now you are educated with this disease. It is cruel; totally passed on by genetics. I respect you & your family. Do all that you feel is best. My humble thoughts & prayers to you all.
@erikd36885 жыл бұрын
God Bless you sweetheart. Youre all in my prayers. Theres more to this world...
@edejong Жыл бұрын
I'm Dutch. For the most part, the Dutch don't believe in God or an afterlife. I don't know anyone who does. I think that (especially) for Americans, not believing is almost incomprehensible.
@godisreal93849 ай бұрын
@@kristinesmart24 It´s not "genetics" it is Daniel 2.43
@TaylorTiree5 ай бұрын
What a beautiful,inspiring documentary. Huntingtons is such a cruel disease,I hope research finds a cure one day❤️🇬🇧
@sarahalbers555510 ай бұрын
So much dignity, love and compassion here.
@karenmurphy51814 жыл бұрын
I had a father that died of Huntington's Disease and have an older sister in the late stages with the disease. I understand how it affects the person who is suffering and how it also affects family and friends. “Be strong and of a good courage, fear not, nor be afraid of them: for the Lord thy God, he it is that doth go with thee; he will not fail thee, nor forsake thee.” - God, Joshua 1:9
@sofiab.91293 жыл бұрын
Thank g*d for Netherlands great health care!
@mmay662111 ай бұрын
Yes, thankful for the use of taxpayers money.
@DJoyceR8 жыл бұрын
A truly beautiful compilation that helps explain the process and the family dynamics of Living with HD,
@rainelady7 жыл бұрын
DJoyceR
@beckbroadfoot42727 жыл бұрын
Wow, beautiful raw perspective. My 23 year old daughter hasn't yet been tested, it is really confronting thinking that this may be her destiny
@hoodatheist5549 Жыл бұрын
you are a terrible mom if you knew and this is your biological daughter.
@atheistmommy37107 жыл бұрын
very intense documentary.
@cpsmenon6517 жыл бұрын
I Curеd ММy Yeаst InfесtionTор rаnkеd Cаndidа рlаn fоr dоwnloadUniquе hоlistiс Systеmtwitter.com/fbce00b274110c038/status/784262969735516160 Doсumеntаrу Оff Bаlаnсe Living with Huntingtоn s disеаsе
@willettej79884 жыл бұрын
So sorry you’re an atheist. God is all around you. Open your eyes.
@kimsordyl8 ай бұрын
Very powerful documentary. Such a devastating disease...I think Anki died in 2017.
@MDHenry48 ай бұрын
Thank you Axle media for covering this
@David-cm4ok Жыл бұрын
Ten years ago. I wonder what’s become of them all.
@LectronCircuits8 ай бұрын
Folks don't live with HD; they die a slow gruesome death. Audience wishes them all the best. Cheers!
@jackie-leeodonoghue96747 жыл бұрын
A true reflection.
@benjaminperez1149 Жыл бұрын
Made me cry.
@nicolehoude81823 жыл бұрын
My opa klaas died in 2015 from huntingtons and my mother isn't ready to get tested. 😰
@shemmytoyou3 жыл бұрын
Aan iedereen, die naar iemand moet naar kijken die Huntington’s heeft, will ik zeggen,ik weet hoe je voel, mijn moeder begin met Huntings town ze 44 was, my is ze net 72 en de twee die naar haar kijken is me zus en mezelf,sorry voor mijn slechte Nederlands maar ik heb het niet in 30 jaar geschreven,toen zijn wij naar Australia verhuist.Ik denk echt als die Doctor echte results wil krijgen moet hij ook zien Wie der is verhuist van Nederland naar...... Much love to everyone, you are all in my thoughts❤️
@winros Жыл бұрын
You're Dutch was perfect especially when I use the translator lol! It's one of the worst diseases they said it is like having ALS, Parkinson's, dementia, and schizophrenic at the same time! 😢
@tundrawomansays6949 ай бұрын
@@winrosMy friend, you’re probably right but to anyone who has a chronic debilitating terminal disease (and there’s lots of others!) their disease is the worst one imaginable! We’re just human, ya know?
@me-xx2gl4 жыл бұрын
I may have missed it, but I assume Jordy's father had it.
@hansendesigns3 жыл бұрын
Yes they died within a month of each other
@miarosie10 ай бұрын
Years later, but they were in the same care home. His father was the man saying about going outside together.
@carolynbohannon4602 Жыл бұрын
I wonder if canibus would help?
@margaridabras92817 ай бұрын
❤❤❤❤❤
@karmenfox57407 жыл бұрын
her name is ankie donkers
@janemike34902 жыл бұрын
I recommend Dr Oje Abacha on his KZbin channel for getting rid of my Huntington disease.
@wheatstonebridge Жыл бұрын
What an insensitive comment
@MDHenry48 ай бұрын
Stop selling the Institution and stop buying that is the best Nobody wants to be in an Institution nor embarrassed by missing rings there's something missing and everyone has to quickly cover their asses because of of fear so slow down listen takes us forever to think and so slow down. What would you do has no bearing on our reality. Yelling at him because he missed a meeting yesterday..please give up he feels betrayed obviously. Let him come back home wimps
@bonnieyoung40377 жыл бұрын
genetic testing before you ever reproduce
@RampantArtist7 жыл бұрын
No. Watch other videos... it isn't simple like that. It is not quite so easy to go test or decide the future of another that way. I can't make the argument as well as others have and there are lots of videos on the pros and cons of such testing. Plus, many disorders produce people who are more different than "disabled." I'm one of them. I don't think erasing variation in the genome is wise at all. Then go watch Gattica.... amazing and disturbing film.
@Resonance19197 жыл бұрын
These sort of tests had just become available when my mother was having children. I'm her youngest, and i'm 21. Shortly after that my family members were able to get the genetic testing covered by insurance. For this woman, her parents surely could not have had access to this test. It's not that simple. Even for me, in 2017, with insurance, it will still cost several hundred dollars for me to get tested, and when I do, if I'm positive, that could fuck up my insurance for a long time and make it hard to get a job. Granted, because I have the option and the means, I will get tested before I have children, but my mother and her mother did not have this option.
@wheatstonebridge Жыл бұрын
Of course get the testing before you decide to have a child
@kimsordyl8 ай бұрын
but they are available now.... @@Resonance1919
@kathymullins63587 ай бұрын
@@Resonance1919 The test has been out since 1993
@adairadair949011 ай бұрын
Cannibis
@kathymullins63587 ай бұрын
It does not help the brain is Shrinking in size ! They do not need to fog there brains more !
@RampantArtist7 жыл бұрын
i can't watch captioned videos... it is really not cool to not tell people it isn't in English when the title is in English. Just TELL people, not rocket science.
@NickanM7 жыл бұрын
RampantArtist *In a title? you must joke, how many seconds do you need to click yourself away from this clip? We are a little bit spoiled, aren't we?*
@pupisuci5 жыл бұрын
If you're blind then I understand,but if you're not then it's really sad that you can't keep up with the speed of an captioned video you should read more.
@eileenkelly47604 жыл бұрын
Agreed. I was so disappointed to find this wasn't in English. It doesn't give the full affect to have to read subtitles while trying to watch.
@johndavid15854 жыл бұрын
RampantArtist these people can barely walk, talk and function and you are complaining because your lazy ass won’t read subtitles. I’m sure they would love to switch places with you. Get out of here!