Documentary: Stem Cell Therapy for Muscular Dystrophy - Ryan Benton's Story

[@lesamilano]

What a wonderful inspiring young man. It sickens me that the US with all its resources is not pushing the research forward. Many best wishes to the Ryan and his family.

[@brizzle77]

I'm so glad people are getting to finally see this! I need a "love" button, the "like" button just doesn't cut it!

[@cellmedicine]

Hi Larry - it's not the same treatment. They will use your son's own fat stem cells which will do nothing to produce dystrophin because they are his own cells. We use multiple applications of umbilical cord-derived stem cells for this purpose. They don't do it this way because in the US, they are forbidden to do it by the FDA.

[@cellmedicine]

@bassam5000 - Please understand that Ryan is not "cured" of muscular dystrophy and the Stem Cell Institute is not claiming that this treatment is a cure for MD. Your email address was passed to our staff who should have contacted you by now. Please let us know if that has not happened yet. Thank you.

[@cellmedicine]

Here is a more scientific explanation of why stemgenix-type treatment is not recommended. (part 1) Muscular dystrophy is a genetic disease. Patients have a mutation in the dystrophin gene for dystophin-resulting in little or no production of the protein. Giving stem cells, whether they are from the fat or bone marrow, or anywhere else from the person with muscular dystrophy will only transfer defective (cells that cannot produce adequate dystrophin) from one place to another.

[@jelenarichter1608]

Hi, I'm from Slovenia and I have a brother with DMD, for more information about the treatment I would like to contact you on e-mail. I couldn't find it on your website. Please give me your e-mail adress I would be very grateful, thanks.

[@MarthitaMera]

hey i LGMD where can i get the info. so can get stem cells too?

[@cellmedicine]

you can go to the cellmedicine web site. just add the .com

[@cellmedicine]

(Part 2) There is no conceivable way that this would be effective. There is nothing in the literature supporting it, and I cannot imagine any review board approving such a treatment given the complete lack of reasonable rationale. My humble opinion is that it is medical malpractice to suggest such a treatment.

[@ryonbenton]

hello, ryan. how are you? believe it, or not, my name is ryon benton, too, and i have muscular dystrophy as well. although, you can see i spell my name with an 'o' hehehe ... i live in watkinsville, georgia. i have an account here. i go by the name, LUNG SUNG HERO. you can check out my songs, but im not very good. i just ran across your story by chance. i was trying to see if i could get to my songs by searching my name, ryon benton. well, i found ryan benton, but it was you lol