Dr. Fraser C. Henderson, MD: Differential Diagnosis of Headaches in the EDS and Chiari Population

The EDS & Chronic Pain Learning Conference | Nov 4-5, 2017
The ILC Foundation

[@tracyd7746]

Thank you so much for this. My son had Chiari surgery at 14 and went downhill afterward. Bed bound for a few years with a constant severe headache. Oddly, his severe headache entirely disappeared once when he needed an anti coagulant to unclog his port, the jugular compression description now makes that make sense. 5 years later he was finally diagnosed and treated for a CSF leak. His daily level 10 headache went away but he still deals with a lot of headaches and neck issues. If he bends his head back he’ll have Neuro issues for a few days, stopping things, tripping, etc. he also has EDS and PANS. He’s 5 years into ivig. That with the blood patches have given him his life back although he still struggles. Thank you for all your research and dedication. No one should have to go thru what he’s gone thru ti get treated for all of this and there just aren’t enough drs willing to help.

[@aislingmurphywall5528]

thank you

[@laurenthomson6530]

How common is it to have a combination of the above? The UK is so far behind whilst I’m left struggling adding more neuro symptoms as the years pass

[@theresageiger584]

WHAT ABOUT HORMONES