Dr. John Baird | Linking hypermobility pain disorders with their multi-systemic comorbidities

[@knockoutsportsgearinc2435]

Very Interesting... Actually Dignifying. I'm a Patient of Dr. Rosa's. This Imaging and Breakdown Really Explains the Serious Potential for Severe Systemic Problems from Something Just Commonly Overlooked. Took me a Decade to Get a Diagnosis. If Only the Techs Scanning Post Trauma Patients Got Training in This..

[@Alyona-ty4pp]

Can you share how you got diagnosis? Suffering for over four years after a car accident and cannot find any help... would appreciate your cues.

[@westsidekasper4860]

Did you solve your problem?

[@Hansen23900]

Where does dr rosa practice?

[@VisionizeTech]

Sorry everyone i didn't see this it was on the account i have for sports research for equipment. I made a mouth guard that is being tested in prototype but is virtually 550-675% more effective at absorbing damaging vibration to the area here and skull then not rattling the brain causing trauma and that "percussive" type action mentioned by the great speaker. I'll get back to you guys individually

[@VisionizeTech]

​@@Alyona-ty4pp i played Rough, but non college sports. Backyard no pads tackle football, varsity ice hockey, and boxing which ironically gave me the least damage. But i did have a severe roll over after being in post concussive syndrome longer than any actual concussion healing should take place I've come to understand it's basically a label for it should be better but it isn't. No root cause found. True honestly. Anyway since Around 2007, 08, I had gradual symptoms progressing into college worse. Mental health a big factor there. I didn't feel like myself. From about 2012 to 2017 i saw almost every specialist you can. I had by the way the "corked tonsils" the speaker, Dr. Baird mentioned. Completely blocked at least at time of scan. But after my rollover, in my truck going to work i hit black ice on a curve about 35ish mph. The drop down was about 10 ft. I knew i couldn't correct it midway losing traction so braced my legs down to floor, back and head on seat and hands pushing on the wheel, vehicle vertically dropped when i hit almost even my seat belt popped off, airbags didn't deploy, and i then did a full front flip with a... I'm picturing how much spin from the memory.. I'd say a 460° spin because i flipped like an Olympic diver into a roll of about 90-150 ft. I got tossed into back like the truck was around me and remember as i hit from momentum the top bracing like rightt boxing block seeing the snow and then broken glass as my truck flip stopped hopping after a couple hits i switched each side blocking like a darn pinball "rope a doping" my Silverado 2500. It became hard to keep track after it stopped hopping and rolling only i just tried protecting myself and landed somehow on all 4 wheels my legs on the center console, a 6th seat folded down my upper back on the back cab seats and looking up at the crushed roof about..10ish inches from my face.. I tried to get out because no one seemed there after i found my phone and called 911 which was on the other seatand bounced out a window in snow. Had to actually turn the engine off the frame and most of body of truck was actually still like lets go to work but I shut the engine, kicked the front door, after kinda opening the handle, open. And it was then i found the phone called my dad and 911. Prior to this i was having much more difficulty focusing, more severe memory issues cognitive fog and just not myself. I checked for anything broken which surprisingly i didn't (go Chevy) and did have a couple contusions. When my seatbelt popped off i cracked the windshield with my head. I'm an Italian originally born in Queens, borough of NYC NY so i guess i am thick skulled. Anyway why i say this is for 1 reason aside from answering your question. I was seen by at least 6 doctors in the e.r. Took an ambulance once some people saw me they helped me climb up. And about 12 to 15, what seemed like medical students. Each one felt my neck opening brace doctors too. My MRI was "Unremarkable.".... My brain, cerebellum tonsils were 3mm through the base of my skull. The area where brain stem passes through skull to spinal cord and this CSF fluid drains, circulates. I had that well put and I've said "Cork in a Wine Bottle." My ventricles weren't enough to qualify hydrocephalus although i was hydrostatic. Meaning stagnant toxifying spinal fluid. After the accident the next 2 years i lost more and more developing early onset of dementia, (i once went to a job i no longer worked at for about 2 years in uniform), some parkinsonian symptoms, extremely almost actually cloudy in brain and vision. I could not create a thought. It's impossible to imagine because to do so reauires thinking. I was empty no thought making. It is bizarre and blurry during those couple years. I either had "Post Concussive Syndrome, Was Crazy, Fine, or Another random diagnosis. It didn't sit right i "was not there, but i was, there." I knew i was not myself something seriously not right. I had to scribble notes to not forget. I had googled "Top Brain Researchers in NY." Amen Clinic came up. I saw them 4 years prior actually. Sorry as i said blurry period. The first time i wasn't as bad but bad. They didn't know what was wrong though. Only clearly something was. I was supposed to follow up a year later i got bad I didn't i almost gave up. I had a 1 year old son. He kept me grounded. 4 years after seeing the Amen clinic for another "SPECT" Scan, I had a strong gut feeling i had to go back. I thought and actually was dying. I had longer than i should have actually. By about a year and a half off higher end of life expectancy. The second time i went i met after with the same Dr, Dr Lowe. I thought if i went back worse it could show what is wrong more. I am alive so i was thankfully right. He said that prior year they learned of essentially the information in the video. How critical CSF flow is and herniation of the Cerebellum Tonsils, Chriari. It was as if i became a zombie, shell of myself. Like a ghost haunting myself... He said that they found it out 2018 it was 2019. If i followed up i couldn't write this now.. Follow your gut. Said i had to see Dr Rosa, a Pioneer, owner of the Patent for the imaging technique showing upright mri with CSF flow study. I had gone and did that. Told i likely have due to history of sports and added head injuries and their new knowledge Craniocervical Syndrome. Possibility of Herniated Cerebellum Tonsils which i did. And urgently should have Dr Rosa Image me. Long process. About 3 or 4 hours. I don't remember everything that year but i remember he shows before and after photos. The left ones even in video are before he did anything. The right shows the correction he uses imaging to find a 3 dimensional vector which i believe is a Force in a specific direction in a specific amount. To be used by his, i don't know the true name but invented by Late Dr Sweat, an Atlas Percussion Adjustment Table for keeping it simple i laid sideways away, and a chart was on the table he put me in perfect neutral posture. It seemed like i was trying to look backwards i ended up being around 46° of axis avg. Then placed, and after first physically checking "neutral posture tension" of upper neck with precision and experience, to not adjust someone in alignment which not all AO doctors do... Well... I didn't even feel anything i lost hope. Then he called in for viewing the video like in this one. Before and after CSF flow Upright MRI Scan in simple words. The tonsils after 1 adjustment were out of the base of my skull and an inactive spinal fluid circulation and system, 'turned on again.' I couldn't believe it was not simple, but easy to accomplish given you are with someone like Dr Rosa. 4 days later my head began having this intense euphoric sensation like if you work all week maybe don't get time to shower and finally get to. Cleansing like but inside my head seemingly around my brain. It was my spinal fluid system starting to clear the "sludge" that had built up stuck static for years. It lasted almost 2 days Second day decaying to a steady state. I felt... Like i was alive again... There are no words. I never did drugs but i imagine they feel similar euphoria. But it became steady state likely because it was something people typically i guess aren't alive or able to have kick on after having 0 circulation for estimated 4 to 8 years. Can't be sure but seemed worse immediately following accident i described. 1 year later i didn't have dementia. I still am healing my brain and spine. It was as if i had been a zombie but years later given a cure. 0 surgery, at all. Yes absolutely 0 surgery in fact those who get it have been worst in his office in being able to fully recover. Superbowl qb had been there once although i won't say who. Bears. Thats all. Anyway, if you have had "Post Concussive Syndrome" over 2 years even if 1 year and it's same or even worse particularly, you should definitely rule it out. SPECT Scans and some of this imaging i couldn't have afforded if i didn't have help from my Dad. I'd probably be dead about 8 years ago. Now I'm 29. I even had one auditory psychotic symptom of hearing voice at night. which was first to go thankfully along with the antipsychotic i had been on. My brain has been healing now about 4 years and i have never felt cognitively more like myself in my life. Stewart Airport in Orange County NY is about 45 minutes away and since he gets patients from like Africa one time i saw, Europe, all over. Or NJ Airport Newark, NYC La Guardia or JFK. The Office Manager Jaime is very kind and can help set anything up and even recommend hotel etc. All i know is after going through what i still am, mind your posture, and if you have head injuries and it doesn't clear up like i believe 1 year is sufficient. Concussion releases toxins. CSF clears that. Unless it's blocked. I can't honestly fit all my symptoms but the major ones I'll put or ones very associated with the area. Also Temporomandibular Joint Diseases TMJD, HIGHLY IS EFFECTED, AND AFFECTS Craniocervical Syndrome (the cluster of countless symptoms one may have from Craniocervical instability causing acquired damage.). I have a missing Jaw Disc. How beats me i needed a guard. If Dr Rosa Doesn't do something he sees you may benefit from he is very networked with trustworthy Doctors and i trust him truly with my life he saved it honestly. He cares too and spends time truly understanding not just numbers but the cause of injury the why, what, my report was over 17pgs. Thoroughly explaining everything going on. If you have for 4 years i highly recommend it. Be aware imaging truly gets absolute best idea of how the injury is in whole. A dynamic one with many variable creating parts. It isn't that cheap but it saved my life. I had been declining for roughly 11 years

[@francois3116]

In kyphoscoliotic EDS, spinal misalignment is genetic. It comes with the package. A doctor asked me if I had had a whiplash until he realised it is part of my pathology. Indeed, cervical vertebral misalignment is like an "inborn" whiplash in Ehlers-Danlos. The misposition of the neck vertebraes also affects the related part of the throat with permanent compression and, thus, difficulties to swallow. Add this to reflux and the oesophagus is permanently at risk.

[@Fuphyter]

Wow you're comment is like me life. My neck is in bad shape. I always get asked if I was in a car accident.

[@Fuphyter]

I used to be a singer until GERD burned and scarred my vocal chords and voice box!

[@staceypollack6526]

Best AO EVER. Super smart.

[@Chloe-iq7-help]

I feel like the weight of my body pulls me in weird positions if I'm not consciously constraining movements. It's really tiring. I exercise loads but it's hard to constantly try keep myself in check around form and posture. As soon as I'm too tired muscles give way and I flop :c

[@claire5399]

When the weight of clothes start to hurt…bad

[@Smile10XEveryday]

Look into Dopamine Responsive Dystonia.

[@VisionizeTech]

​@@Smile10XEveryday was that in reference to the clothes. I know it's important in a lot of neurological pathways if you will. With norepinephrine too. And i have not heard of that and also related to the symptoms. Thanks

[@VisionizeTech]

My AO Doc, Dr. Rosa calls that the stress point. It really is virtually impossible to every moment be both in physical perfect posture and even just the being aware of it you are not all day everyday but it is so crucial. Sometimes, from a prior athlete, i have heard people exercising too much particularly around neck shoulders, back. I feel you. I am revisiting some beginning symptoms from a long story but i also have similar "perception issues" I've been working to fix and i definitely would like to hear more. Maybe one of us or both have an answer for each others messed up riddle haha

[@Smile10XEveryday]

@@VisionizeTech No nothing to do with the clothing. How the body twists in response to the vertebra being rotated, or maybe it is the other way around that the body twists and that causes the vertebral shift. Don't know. But do recognize the description above of the body pulling into weird positions. Think it is a dopamine responsive dystonia.

[@TheDrDraft1111]

Now that we can see the link . What type of treatment can someone get? Who do they go see ?

[@dustyfeller]

15:00 Dentate ligaments (an attachment of sorts between each vertebra and cord) pull the cord with them when the spine is twisted. Axial tension and stretching, affecting perfusion of fluid; drying of cord.

[@lizmerrick6883]

I wonder if this could have applications for ME/CFS patients with hypermobility issues

[@Truerealism747]

Yes the atlas I have fybro hypomobilty bingo found it

[@dustyfeller]

16:30 upright hydrocephalus w/concusssive/zslapping on the cortex seen in MR cisternogram before after AO C1 adjustment showing significant flow improvement.

[@Fuphyter]

My cervical spine is in bad shape. 4 discs have connected by spurs and arthritis. I had an intolerable headache and went to ER. They did an MRI. The first doc wanted me transferred to a hospital for a neurosurgeon! A neurologist decided not to. My discs look like the leaning tower of Pisa. It's so close to the spinal column. There is only a thin line of fluid getting through.

[@dustyfeller]

35:00 pannus - degenerative change on alar due to time/instability; result is pannus on ventral/anterior side of canal, causing stenosis, possibly in combination with posterior/dorsal tonsil herniation; all of which may not be visible on supine imaging. Upright MRI imaging, DMX, MRI flex/extend, necessary in cases that are orthostatic and/or involve degenerative conditions and/or congenital curvature (see dentate ligament comment, à la MS cadaver study, aka drying out cord, low perfusion cord)

[@blessingfarm3674]

It's hard to disagree with this. I was diagnosed with migraines and developed cervical dystonia in my 20s and stenosis over time. A precipitating event was possibly being rear ended on an interstate at near full speed at age 22. I was more recently struck in the face and had my nose smashed and was given a TBI by an Oldenburg mare who got bitten by another horse and then threw her head back into mine which knocked me out (it was an accident and I do still ride her, dopey as I am about my animal rescues). I also have been told I have "military neck." In any case, more recently I have started experience tingling in my hands, feet, and can even wake up with numbness in my face and a headache in my brain unless I sleep on my back propped very firmly. I have noticed NOT having a headache until I move in the mornings for a long time. I have also more recently developed definite "system based" vs. situational anxietal moments, though sitting with a racing heart and no worries is not an uncommon experience for me or several of my kids. I am currently receiving steroidal epidurals in my c-spine for the pain and limited movement in neck due to the stenosis and dystonia, and have had BOTOX for some time to help with the off balance pressure of my upper back, and neck, then in my face and head to help with the migraines. Anyway, since I am 54, I can deal with this if necessary, but my 16 year old son who has Ehlers-Danlos (as do I) has an upper back and spine that is beginning to look like mine...slight s-curve around C-5 to C7 and beyond, muscle knots, pain, etc. and in spite of excellent PT to help with a strange vertigo, dizziness, and brain fog, I am at a loss as to how to get him help so his youth and the years to follow aren't taken from him as my second half of life seems to be disappearing in a cloud of procedures and pain. He's already given up his dream of ever achieving black belt, as have I (my six kids with EDSh and I started karate together and he's stopped, while I am considering it in spite of the fact I find it keeps me in shape and I absolutely love it---we don't do serious contact sparring BTW---mostly kata, weapons, and bunkai). I wondered if anyone can recommend anyone in the Tidewater, VA, USA area who could help my kids and possibly me. Uneven trapezius (oh, that spot that always hurts!), tilts of the neck in spite of good posture, injuries, impingements, and the like abound in our family, if anyone is looking for a case study FAMILY (8 kids, 2 grandkids, 2 parents, and no, we were not aware of the EDSh until the kids were diagnosed, AND the last two kids were adopted WITH their EDSh). Is there help out there? Anyone? We are very interested in anything that could help and we are able to travel since we home educate. It was a very enlightening lecture, by the way. Thank you.

[@pamelabrown7368]

Have you tried the provider list on the ED society website. I found a very helpful nuerosurgeon in Roanoke Va (Dr. Nicholas Marko) through this list. God bless you! Praying you ALL find the best help!

[@Serenity7250]

Have you looked into csf leaks? Your symptoms sound like they could be one.

[@KaylaofBunnys]

Thank you for this . My wife is very sick and these doctors said she had lupus, SFN, chronic lime , Fibromyalgia and more . She has Dysautonomia, POTS, Mast Cell Activation Disorder. Is there somewhere that offers low cost to test ?

[@ldsjen0227]

@@AnomalyArcana I am going through Genome geneticists consulates they set me up with www.invitae.com and even though I am self pay, and on Medicare and CHAMPVA, In reality they have an agreement and my testing is covered, I only am paying for the Genome consultants which is the cost of a doctors visit about $150 and that is for the initial consult and them providing the results, so I am not alone in this.

[@joylox]

I'm wondering about stuff myself. I've been diagnosed with POTS, multiple chemical sensitivity, ADHD, and joint hypermobility. I see a physiotherapist, but I'm on the wait list for a connective tissue clinic. What's unfortunate for me, is that there seems to be only one connective tissue specialist in my whole province. I could go to a private clinic about 3 hours drive away, but I'm hoping to get seen this year. I've been waiting just over a year at this point, managing only with manual therapy and physio to reduce my pain. No medications help for longer than a few months, and pretty much everything gives me side effects. I'm hoping this clinic can help as an orthopaedist couldn't help, neither could a neurologist.

[@ariansafavi4971]

What is the treatment

[@westsidekasper4860]

What doctors can you see for this

[@Smile10XEveryday]

Atlas Orthogonal Chiropractors.

[@ЕвгенийКуставин]

Спасибо огромное.

[@loristout157]

I have EDS , at least 24 migraines a month, suspected Chiari malformation, found a brain tumor

[@dustyfeller]

31:30 (why no slide ?) Xray, DMX, upright mri, spect scan,

[@lisamarie2353]

How are the "adjustments" done? Please anyone who knows, reply.

[@staceypollack6526]

They use a programmed machine where they place a pointed styloid (metal) up against the back of your ear and you hear a click. You feel nothing.

[@Hansen23900]

an upper cervical chiropractor but they don’t use image guidance. You usually get an expensive X-ray before but not after

[@Hansen23900]

Upper cervical chiropractor

[@joylox]

I see a physiotherapist that does manual therapy and had to do manipulations and adjustments on my back and neck (what happens to me is that my bones slide out of place by turning too quickly or sleeping wrong and it usually ends up pinching a nerve). I should send this to him and ask about it.

[@Serenity7250]

Alot of these sound like a CSF leak.

[@theresageiger584]

WHAT ABOUT STOMACH ACID

[@amandahudson6348]

Where is this doctor located

[@Smile10XEveryday]

Markham, Ontario, Canada

[@YoYoMaN87]

So if I understood clearly. The cerabellum tonsils block the flow of blood and spina fluid, making it harder for the brain to functions as normal. This is also proven links to worsen Autism and is also a risk for Alsheimers. Then I guess ADHD brains is also at risk?

[@francois3116]

Following.

[@MrsPaulaTorres]

Can someone suggest a worthy to visit Dr in south Florida who can diagnose me properly that takes Cigna insurance? First geneticist I saw as a condescending moron who wouldn’t diagnose me with hEDS with “if you didn’t die from covid you didn’t have it” attitude

[@claire5399]

O please. I’m sorry. Been there myself.

[@Hansen23900]

Go to dr Ross Hauser in fort Myers at Caring Medical! He has tons of videos on KZbin

[@Hansen23900]

Caring Medical doesn’t submit directly to insurance but you can take the paperwork and submit it yourself and hope they pay for some

[@MrsPaulaTorres]

@@Hansen23900yes I do see Hauser but he’s not diagnosing anyone, I do prolotherapy with him for my neck. He did say “likely ehlers Danlos in childhood” but he does his own thing, not diagnose anyone

[@MrsPaulaTorres]

And insurance doesn’t cover his services, for one claim it paid $125 from $6k 😂 insignificant

[@staceypollack6526]

Is this Dr John W Baird from Ontario ? There are two John Bairds DC

[@ToffiTube]

Yes

[@bhupendrasingharora6183]

How you get appointment of doctor

[@liannemarie2504]

So, were all basically falling apart in our own skin

[@bhupendrasingharora6183]

Please help sir please 🙏🥺🥺

[@AmyThePuddytat]

That is definitely not how the Greek word _diastole_ is pronounced.

[@karencarney7595]

He is explaining that cervical spine misalignment in any severity can and usually causes cervical spinal fluid imbalances, cerebral blood flow issues, neurodegenerative effects due to compromised blood flow and fluids/chiari malformation, etc can be TREATED w the CORRECT alignment through imaging, cervical video taken by a professional. You'd be surprised how many chiropractors with X RAYS in their office, aa longest you explain at length, can help. Save your money now, guys. P.s. I have crappy nj medicaid I can't see a geneticist or rheumatologist, my doctor didnothing, left hosital after stroke w no meds, nothing, noe xolanantion othe than two old TIA's. Intermittent fasting and keto saved my ife. Hot yoga, lighter weight training. Cortisol manager supplements, lots of water and supplementation. You have to be your own advocate.