Dysarthria with Hemiplegic Migraine, Chiari, and Periodic Paralysis

[@kathyruede8319]

I’ve just started having very similar migraines, right side weakness and aphasia. They come on early in the morning and last 3-4 hours. It’s good to know I’m not the only one. Thank you for posting this.

[@1000_Dominoes]

Thank you for sharing. It helps me to know that I'm not alone as well. I'm sorry you have to deal with this. I think it's especially hard in the beginning, when it's all new. I hope you have a support system. Please feel free to reach out.

[@hannahw6561]

Thanks so much for posting this. I’ve had hemiplegic migraines for years but I’ve just had the most severe one I ever did. Thought I was legitimately having a stroke. For the night it came and three days after having movement of hand and getting an eeg on fri to check for seizures. This helps me because the way you are talking in beg of this video, happens to me a lot. I also struggle a lot with my right leg... it feels like i have to tell it to move vs how we normally walk without thinking about it. And my episode was on right side primarily . It makes me feel comforted to see because now I have an answer for that but sorry you deal with it. So sorry you deal with this miserable illness. ❤️ thanks again for this post. Excuse any errors in episode now.

[@1000_Dominoes]

Thank you so much, Hannah. I'm sorry that you are having to deal with this. It is very difficult and many don't understand. I hope you have help and are not dealing with this alone. I plan on making more videos, so if there is some aspect of this you would like to hear more about, please let me know.

[@shannoneheath2325]

You are so brave. Thank you for spreading awareness.

[@1000_Dominoes]

Thank you so much ❤

[@SuperButterfly217]

Thank you so much for sharing this. I don't feel so alone now. I have about 3 to 4 different types of migraines. I hope that you can get some answers. Bless you.

[@spiandbeyond]

Thank you. I feel the same way when I hear comments from others - not so alone. I have learned more about my problems in recent months. I will try to share soon. Hang in there! Best wishes. ❤

[@1000_Dominoes]

Just reading through old comments. The above was me under a different ID. Sorry, I didn't realize I was signed in wrong. I hope you are doing well/better.

[@arwenrivendale]

Bless your heart. I have a chiari as well but it’s triggered from NF2 ❤️

[@1000_Dominoes]

Thanks for your comment. I have not had genetic testing done for Chiari or NF2 but my niece has NF2 and has had quite a long journey and lots of challenges.

[@sandywhat2429]

Terrifying. My NS knows so little.

[@1000_Dominoes]

It is sad that so many doctors underestimate the complex nature of Chiari and other illnesses.

[@sandywhat2429]

@@1000_Dominoes I feel like perm paralysis might be coming, does that ever happen to chiarians? My arms and legs are like dead weight.. For a yr, I can feel something bad coming.

[@1000_Dominoes]

@@sandywhat2429 I believe it can happen, but I have been having these episodes for over 30 years, and mine is not permanent so far. I have had the dead weight happen for 30 years too, but they always come back. Make sure you keep in touch with people who understand.