Dysautonomia / Postural Orthostatic Tachycardia Syndrome (POTS) Success Story at NWI

Patient review of dysautonomia / postural orthostatic tachycardia syndrome (POTS) treatment at The Neurologic Wellness Institute, fomerly known as Illinois Neuro and Physical Rehab.
www.neurologicwellnessinstitute.com

[@bigchungus1924]

A combination of vitamin D and detoxing my body from heavy metals/viral waste matter was what cured my POTS.

[@prathamrballal1229]

How long u suffered

[@bigchungus1924]

@@prathamrballal1229 about 4 months

[@prathamrballal1229]

What was ur heart rate when u stand up

[@bigchungus1924]

@@prathamrballal1229 over 150 bpm

[@prathamrballal1229]

Did u had maigraine fatigue sound light sensitivity stomach issues missed beats weekness dehydration panic attacks anixety thoes days.

[@lov3hurts943]

I have pots except my blood pressure gets really high instead. My heart rate gets high when I stand up and I was bed ridden and couldn't excersize anymore. It happened so suddenly 8 months ago after getting covid and I take a beta blocker now. I'm praying I get better...but it's been 8 months. I miss my old life. I'm praying.

[@laurenebauman3623]

Same! I have been diagnosed with pots last year then I had covid last November and I’m hoping to get better ❤️‍🩹 instead of worse… I’m on meds and I’m not sure if it’s helping a lot…

[@user-tb2jy9lu3d]

I'm a late reply, but there are a few different versions of POTS. Typically those with blood pressure getting really high can be Hyperadrenergic POTS.

[@AshleyLebedev]

Beta blocker can help or make it worse as it’ll inhibit adrenal function Listen to body x

[@kerrysue9280]

Please check out Brooke Goldner!! She is a doctor with a dietary protocol that is helping people recover from long covid. I am on her autoimmune protocol and I feel so much better. I will link the video. Please check it out if you are interested! Good luck and hope you find some relief! kzbin.info/www/bejne/m2qngWZ3lrl2apo

[@RaneBane]

@@user-tb2jy9lu3d i believe this is what I have from post concussion syndrome. I am 180 over 110 and HR is dumb high. Do you still feel like trash when you stand up? I've never fainted but have come close.

[@Jwats96]

Would be great to hear how she's doing now

[@laurenebauman3623]

I hope 🤞 I feel better soon too! I have been diagnosed with pots last summer and I’m getting worse now! I have my appointment next week and I’m not doing well right now!

[@RajivKumar-wx4fj]

When I walk or any physical activity always breathless how manage it i diagnose pots 3 year ago

[@user-tb2jy9lu3d]

What a stunning young lady and glad she is doing much better.

[@joannpike4876]

We bringing our daughter in October. I hope he can help her as well. I enjoyed your video.

[@naNO818ETF7]

Which country doctor live

[@astridjolley4552]

Im here in tears watching this video while my 14 year old os in bed for the past 3 weeks but has had sythoms for 6 years now I havent found somone who is knowledgeable with pots and yesterday the cardiologist ran a EKG said she was fine and stated to intake salt and water we are in colorado and miving to Alaska soon and doing a drive of 56 hours im so lost on what to do for help because no one has knowledgeable and can just do the testing to diagnose her . Being in the military i would think tricare might cover treatments if I need to travel but dont know where to start im just so exhusted. :(

[@spicymama4894]

How is your daughter now? Any better?

[@missdanni1947]

My question is, if this protocol/cure is so successful why can't it be published for widespread dissemination? My twin and I have suffered a combined 17 years of POTS. We could never afford a program like this, particularly times 2.

[@TheNeurologicWellnessInstitute]

Dear Danielle, We totally empathize with the condition that you and your sister are suffering with. While we have had great success with a lot of our POTS patients, every patient is unique in subjective and objective findings and therefore their treatment protocol is different in almost every case. So, it would be difficult to treat a patient or come up with a protocol without seeing the patient and examining their neurological objective findings first. If you have any other questions please feel free to call and set a time to speak with Dr. George and he can explain the procedure in more detail. Thanks!

[@morningwithgracie7870]

@@TheNeurologicWellnessInstitute how about me. No money to fly in your place.. Pls share your treatment/protocol so that you can help those people who are suffering with this illness...

[@user-tb2jy9lu3d]

@@morningwithgracie7870 The problem is that it varies vastly with each patient. One treatment doesn't work for all. Some have POTS, some have Dysautonomia, some have Neurocardiogenic Syncope. Some got Dysautonomia post-Covid infection, some got it after a stomach virus, some got it from a ton of other conditions that cause it (Ehler Danlos, etc.). Some get it from cervical instability in the neck.

[@ericagfly]

Very interesting! I believe I may have POTS, as a few years back, I was hospitalized with ventricular tachycardia and kept fainting. My EP could not find the cause (no structural heart abnormality) and I failed my tilt table test. My blood pressure is always low, heart rate always high and I live exhausted daily. He told me to get on a high salt diet and that I may have POTS syndrome but it was never confirmed. I don't know what to do for this chronic fatigue and chemical sensitivity. Does it sound like I may have this? I am in Houston and not a lot of doctors treat this. Thanks so much!! Great video.

[@TheNeurologicWellnessInstitute]

Hello Erica. You should definitely come in and get evaluated. We have worked with a lot of POTS patients. 630-766-1552

[@morningwithgracie7870]

@@TheNeurologicWellnessInstitute sir do you have email? Im here in the philippines its difficult for me reached out

[@Addisonwellness]

GRACE GEMINO Hello. Yes, [e-mail]

[@killmydreamdorothy8800]

How do eye movements help blood vessel constriction? I'm curious...

[@TheNeurologicWellnessInstitute]

The mechanism for horizontal movements is located in the middle part of the brainstem called the PONS. This is close to the same region that the brakes for the sympathetic nervous system are in. By doing horizontal gaze stabilization exercises, in many cases you can decrease the sympathetic firing and subsequently increase vasodilation. Vasoconstriction in general is sympathetic. So if you have aberrant eye movements, you could potentially have a sympathetic response and subsequesnt vasoconstriction.

[@danide8287]

How would eyemovements cure faulty collagen ( POTS caused by EDS) ?

[@TheNeurologicWellnessInstitute]

It doesnt. What therapy can do is optimize the neural control over your body and vascular system. Unfortunately it has no impact over curing "faulty collagen". We have many patients who have significant improvements in symptoms with POTS and EDS, despite our therapy not curing "faulty collagen".

[@TheNeurologicWellnessInstitute]

Feel free to call the office for treatment strategies....

[@chambria]

George Michalopoulos what is the office number?

[@Addisonwellness]

ChamBria Henderson I am sorry for the delay. 630-766-1552.

[@morningwithgracie7870]

Can we call you tru skype? Yo learn the strategies

[@TheNeurologicWellnessInstitute]

GRACE GEMINO Hello Grace! Unfortunately, we can only treat patients in person. Treatment is not the same for everyone and we need to examine everyone before developing a plan.

[@amandaschu3157]

I was diagnosed with pots syndrome recently. They told me to go and take salt tablets and drink extra water. I'm also on a pill that slows my heart rate but also lowers my blood pressure. I feel sick everyday. And I have a newborn I take care of. I wish there was a pill that would care of this syndrome.

[@TheNeurologicWellnessInstitute]

Hello Amanda. Please call our office and our doctors will be happy to answer any questions you have. We look forward to hearing from you. 630-766-1552

[@emilyloveday2407]

I hope you have found some relief somehow. I’m looking for help everywhere. I’m supposed to get monitor on today. What gets me is they act as if this disease is just a fainting disease and they under play how bad it makes you feel. It has messed my GI I feel it, because I’m living it. I feel that by our upper body not getting the blood it needs in the upper body, after some years of living it does a bad number to your upper organs because your body’s not getting the proper blood to them they work harder therefore causing damage to some more so than others. I’m living this disease I know how I feel & what I & don’t do. The simple eat more salt & drink plenty of water that don’t help. I constantly eat pickles to help. I’ve done everything I can think of to help myself. I’ve changed my whole lifestyle and I’m 45 still going through hell. I have about 2 good days a month. That’s when I can get dressed & go maybe to eat half the time I don’t make it that far. I’m dying to live. If you’ve found anything that helps please share your information. I’ve been trying to document mine. Once I figure out how to put on here what I know I will. I seem to know more than the drs do about POTS

[@emilyloveday2407]

@Ali Ali I have not found a cure. I seem to be getting worse, stress adds to this tremendously for me. I’m finally going to be tested for veds, that with pots. I know I have pots I’m for sure diagnosed with that but my cardiologist said that their is a underline issue that causing me to stay so symptomatic and he has narrowed it down to lupus and veds. Veds fits more than lupus. We need so much more awareness brought to POTS. It causes so much more damage than the drs even know. I’m teaching them more so. I’m 46 now and I do good to clean my own home now. It’s ridiculous

[@ebradley8057]

I need someone in Houston to help me. My POTS is debilitating (exhaustion) and has robbed me of my ability to work. You'd think in a city this big with a world renowned medical center that someone would understand this syndrome. Nope.

[@TheNeurologicWellnessInstitute]

Hello, I am so sorry for what you are going through. Please feel free to call the office to speak with one of the doctors to see how we can help. [phone] We look forward to hearing from you!

[@TheBushRanger.]

Update Bradley?

[@jessielanzetti9420]

Someone please talk to me about this . I have pots and fibro myalgia . I need to find a good doctor

[@TheNeurologicWellnessInstitute]

Hello Jessie. Please call our office and our doctors will be happy to answer any questions you have. 630-766-1552

[@prathamrballal1229]

How is ur pots now?

[@TheNeurologicWellnessInstitute]

Please learn more at www.addisonwellness.com

[@simeonkobzar1290]

where can I get those eye exercise??

[@TheNeurologicWellnessInstitute]

Simeon kobzar, as you are probably well aware of the various symptoms of POTS and dysautonomia, there are many treatments that we implement depending on the symptoms. Patients may have tachycardia, some orthostatic intolerance, fatigue, nausea, or breathing problems, impaired neuromuscular dysfunction etc.....so as you can imagine there are also many different therapies that we implement based on the findings. As for eye exercises, we first have to determine the part of the brainstem or cortex that is dysfunctional before we can put together eye exercises or even a gaze stabilization protocol. They are almost always different for each patient., so to give a single or one size fits all treatment for patients that may have one, some or all of these symptoms would be not only be inappropriate but potentially detrimental. I would be more than happy to discuss potential treatment options that we other patient, over the phone, but please note that these treatment options may be different than the ones we would use for you. Please understand that this is a multi factorial approach and that it depends on the current examination findings that you have. I discuss these options with many patients suffering with POTS and dysautonomia, every week on Tuesday and Thursday mornings if you call and schedule a time slot. I do NOT charge to talk to patients over the phone, and I will try to guide you the best I can toward recovery. We have had patients from more than 1/2 the states in the country, Great Britain, Europe, Mexico, Canada, and the Middle East, either come to the office for treatment or call the office for a consult or correspondence through email. Please feel free to call and I will explain as best I can you you and your doctors for your SPECIFIC dysautonomic dysfunction.Hopefully this helps you...

[@morningwithgracie7870]

@@TheNeurologicWellnessInstitute pls help me sir George im here in the philippines. Pls help me.. God bless!

[@Addisonwellness]

GRACE GEMINO I am sorry you are going through this. Please call my office and schedule a free consultation to see how I can help 630-766-1552. I look forward to hearing from you!

[@javeedahmad8858]

if you know the treatment why don't you share it , lots of are suffering from it even I'm suffering from it since 2009 now I'm 25 😢😢😢 if you can help people why don't you make a vedio on treatment plzzz

[@TheNeurologicWellnessInstitute]

Javeed , I am so sorry to hear of your suffering for that long. As you are probably well aware of the various symptoms of POTS and dysautonomia, there are many treatments that we implement depending on the symptoms. Some patients may have tachycardia, some orthostatic intolerance, some fatigue, some nausea, gastroparesis, breathing problems, sweating dysfunction, impaired neuromuscular dysfunction etc.....so to give a single or one size fits all treatment for patients that may have one, some or all of these symptoms would not only be inappropriate but potentially harmful. I would be more than happy to discuss potential treatment options over the phone, not only with you, but with your physicians that have been treating you and anyone else that reads this post. Please understand that this is a multi factorial approach and that it depends on the current examination findings that you have. I discuss these options with many patients suffering with POTS and dysautonomia, every week on Tuesday and Thursday mornings if you call and schedule a time slot. I do NOT charge to talk to patients over the phone, and I will try to guide you the best I can toward recovery. We have had patients from more than 1/2 the states in the country, Great Britain, Europe, Mexico, Canada, and the Middle East, either come to the office for treatment or call the office for a consult or correspondence through email. Please feel free to call and I will explain as best I can to you and your doctors for your SPECIFIC dysautonomic dysfunction. Hopefully this helps you... All the best, Dr. George

[@javeedahmad8858]

George Michalopoulos how can I contact you for my pots treatment

[@javeedahmad8858]

George Michalopoulos plzzzzzzzzz help me I'm from India here no body knows what pots Is so I need ur help

[@javeedahmad8858]

George Michalopoulos I tell you about my syemtoms I have extreme fatigue, some times low bp, And brain fog anxiety ah dizziness fast heart rate, Oh one more thing heat and cold intolerance, And right now I'm on beta blockers, ofter 8 year's I have been diagnosed with pots 😢😢 I need help this makes my life mesrable, If you give me ur contact that will be most kindness thank you

[@morningwithgracie7870]

@@TheNeurologicWellnessInstitute please help me im. In the philippines.. What is your email add..?

[@amandakephart2544]

Did she say Eye exercises?

[@TheNeurologicWellnessInstitute]

Yes. We perform eye exercises along with a variety of other sensorimotor therapies to promote neuroplasticity.

[@jainendramishra6855]

You have any medicine or therepy who cure dysautonomia

[@prathamrballal1229]

Do u know ?

[@jainendramishra6855]

@@prathamrballal1229 know what ?

[@prathamrballal1229]

Treatment

[@yomama8873]

🤩🤩🤩🤩🤩🤩💖💖

[@Johndoe-kw5zr]

What's the office number?

[@TheNeurologicWellnessInstitute]

Sorry for the delay Barii. Our office number is 630-766-1522. We look forward to hearing from you. Take care.

[@morningwithgracie7870]

@@TheNeurologicWellnessInstitute doc im. In the philippines pls help me. Im dealing the same.

[@TheNeurologicWellnessInstitute]

GRACE GEMINO Hi Grace! I’m sorry to hear you aren’t doing well. Please call the office for a free 15 consultation with one of the doctors. 630.766.1552

[@morningwithgracie7870]

@@TheNeurologicWellnessInstitute do u have email add doc?

[@morningwithgracie7870]

@@TheNeurologicWellnessInstitute do u have other access to call like Viber pls?calling ur number is so highly coated doc

[@emilyloveday2407]

This disease has been around since the 1800’s it had a different name then. I have it I’m 45 it’s killing me, literally, my GI is so messed up. No meds seem to help. I’m in desperate need for help as are all of these people. If it’s something so simple you should share it. What could it hurt? We’re living in hell now?!

[@TheNeurologicWellnessInstitute]

We are sorry to hear about your situation. There is nothing simple about dysautonomia. It is very complex and can be multifactorial. We suggest you try your best to find a trained specialist in dysautonomia as many health care providers are not trained specifically in dysautonomia.

[@kmb1704]

Look into thiamine vitamin b1

[@morningwithgracie7870]

@@kmb1704 b1 can help?