Dystonia - The beginning, progression and exercise schedules.

[@blepharospasm-myjourney]

My routine was like this: -630-7:15: yoga with breathing -Morning 7:30 before work : 20 min breathing -8-4 : office work. In between when I can, I used to do 2-3 min exercises. -4:00-4:30 : dance -5:00-6:30- walk in the parks -7:00-8:00 relaxation and meditation -8:00-9:00 Dystonia specific exercises -9:30 sleep When you do this, you’ll automatically remember to do them even when you did not specify a time for an activity. It becomes natural eventually.

[@anastaciaillidge7943]

Wauw! I am so glad that you can explain this . This is what is happening to me for the past 11 years.

[@blepharospasm-myjourney]

I saw there is not much discussion about this anywhere which motivated me to bring out and let people understand what is happening with them.

[@KurtSKnight]

Very helpful! Thank you!

[@ruthquitugua2148]

Wow, it’s like you’re telling my story! I will try your technique. Thank you! 🙏

[@valbishop8885]

Thank you for sharing, your story is so familiar to me

[@blepharospasm-myjourney]

Yes. This is how it progresses. There are many who share the same story. We are all in it together. We rise together. Power to all!

[@onelove7069]

Amazing journey, thanks for sharing it with us. I can share that for me what really helped was a combination of acupuncture, meditation, aikido, and climbing which tired out my muscles, cutting out gluten.

[@blepharospasm-myjourney]

Thanks for sharing!!

[@HighTen_Melanie]

Hello. Firstly, I’d like to say thank you so much for taking the time to share your story. I’m still waiting on a diagnosis but some symptoms seem to point to dystonia. I wish you well for the future.

[@blepharospasm-myjourney]

Hari Om Thank you for the kind words. And not all symptoms are Dystonia. So stay positive. Even if it is Dystonia, you're one step ahead by knowing it and entering the world of bliss and beginning to know yourself. I hope you well too. 🙏

[@blepharospasm-myjourney]

whatsapp.com/channel/0029Va5BrKqKWEKkaXfhhN2Y

[@shikharagrawal1797]

6 months waiting for appointment with neurologist, can’t imagine

[@swapnilnikumbh5681]

I'm trying understand if my situation is matching with yours or not, I sense a slow, strong and constant pushing, pulling (upar, niche, all directions, 'mostly upar though') in my face, especially on the right eyebrow muscle, right cheek muscle, right jaw, ear everything, touching for you is nightmare whereas for me actually touching the face is miracle, all the pushing pulling just melts the moment I touch my face, everything is relaxed, meditation seems helping. Neurologist says it's not bells palsy nor stroke, which i suspected it to be. Did MRI of my brain and found no tumor, no clot not any damage with cranial nerves, so Now I'm leaning more towards oromandibular dystonia, its been more than 2 years and it's affecting my quality of life, we will get over this though...I wish you well akka. We will get over this !!!

[@blepharospasm-myjourney]

1. Watch at what times you have the sensation like when you’re stressed? Or thinking or talking etc.. 2. Yes. Touching was a nightmare for me. Now touching is helping me stop my cheeck muscles from being pulled up. It can be either way 3.MRI for me was absolutely normal too 4. If meditation is helping, practice it and then do some face muscle exercises to make brain understand the normalcy of the muscles and their positions.

[@swapnilnikumbh5681]

@@blepharospasm-myjourney 1) it's all the time, while working, (I have a bad habbit of multitasking) scrolling social media, youtube, any content consumption; the pushing/pulling is more intense though. Except situations where I'm inclined to be totally involved; it's not there.... like...while driving. 4)Trying to curb my phone uses, uninstalled all the social media, trying to develop a tendency of doing one thing at a time. And practicing meditation, stillness, break from world, whenever possible, also there is something I came accross called "inner engineering" a spiritual, meditation program/prctice I guess, designed by Sadhguru... I'm going to give it and myself a try soon, U too give a try. And yes will try exercises too. Thank you

[@blepharospasm-myjourney]

1. We dystonia warriors.... Want to multitask and excel. Do many things, anything... Perfectly. Do all and never say never is our motto. Good you already realized that this is creating a stress inside us. It's an overload for the brain. One thing at a time helped me a lot to control my Dystonia and manage the spasms. I'm very successful so far 4) yes. I'll definitely try. I'm still discovering myself and in the path, I've almost cured my Blepharospasm. Thank you

[@deepikaselvaraj1071]

Thank you for sharing.. this was what exactly happened to me around the same time on Aug 2020 when I was pregnant and I suddenly got this eye twitching and then the blephorospasm with my eyes full shutdown during delivery and few months after that... but eventually it went away and I dono how.. I could literally feel the pain about the facial spasms and eye twitching, it's really worst time..

[@blepharospasm-myjourney]

Sorry to hear that. And glad to know that you've healed. 🙏

[@shikharagrawal1797]

Does lifting heavy weights aggravate hand dystonia ?

[@daisyk.742]

Thank you for sharing your journey with us - that is really brave of you! I've been watching a lot of your videos as I've been experiencing symptoms and I've recently started Dr Farias' program. I was wondering if you could elaborate on what you meant when you said upon starting training you noticed how new symptoms popped up one after another. I feel like I've been experiencing the same thing as well...I feel like as I start the training even as one area improves I feel like some other symptom will pop up in another area. Is that just a sign of neuroplasticity and our brains constantly changing? I'm finding it really hard to not be anxious or panic when a new symptom shows up. Could you please share how you were able to deal with that? Thank you from Vancouver, Canada :)

[@blepharospasm-myjourney]

Hari Om This is a very sad scenario and interesting that you brought it up. I cannot answer in a sentence or two here. I’ll make a video on this soon. But until then continue to make a note of your symptoms and keep doing what you’re doing. You’re on the right path. That’s why you see these extra symptoms pop up. Also join the channel t.me/BlepharospasmMyjourney

[@daisyk.742]

@@blepharospasm-myjourney thank you! I'll keep being optimistic and stay the course :). Looking forward to your video on this topic!

[@mjain2957]

Hi I am from India and am suffering from Oromandibular Dystonis since Nov 2020.. I tried all sorts of natural therapies like accu puncture , Homeopathy for nearly a year With homeopathy I had full recovery in Sept 2021 fr 3 to 4 weeks and then deteriorated after I got Dengue and Covid ..in Feb 2022 I started with Botox inj ..uphill now have taken 3 Am extremely determined to be fully recovered after seeing your video..every morning I hear one video and have saved it..Determined to follow your routine towards my recovery Can you help me as to how can I access Dr Faraqui online movement platform .I would like to see the exercises... Appreciate and immense gratitude to your sharing the videos

[@blepharospasm-myjourney]

The Farias platform is listed on the description of the channel Meeta. Hope you recover soon. May Lord Aditya help you get better and live a normal life. 🙏🏻

[@mjain2957]

@@blepharospasm-myjourney Thank you so much I have connected and now am.part of his programme ..Have just started the Introductory Oromandibular exercises and am already feeling a 20% difference in clarity in speech and less pain and difficulty . Am so grateful the day I came across your video ..thanks

[@blepharospasm-myjourney]

Please see the channel description. The website is listed there.

[@Drsatarupasarkar]

Hlo

[@blepharospasm-myjourney]

Join the telegram Channel t.me/BlepharospasmMyjourney

[@vanessaharling1957]

Do you get an head tremor? If so how do you manage this please?😊

[@Anchal__thakur__213]

Hi i suffering with cervical dystonia which exercise you suggest for this

[@blepharospasm-myjourney]

Hari Om 1. Did you watch all the videos? 2. If yes, Are you able to identify the cause of Dystonia? 3. Who said it is Dystonia? Did your doctor mention that? 4. If you did not watch the videos, go ahead, be patient and watch them. Then please come back and ask questions because then, your questions will be more focused with enough knowledge.

[@Anchal__thakur__213]

Yes I see your videos

[@blepharospasm-myjourney]

Join the telegram channel: t.me/BlepharospasmMyjourney. I can talk directly

[@pankajsharma-hr4hp]

Hi is there a way to connect with you? Your video is hope for us and I wanted to understand how to get in this path.

[@blepharospasm-myjourney]

Hari Om Please find me Neuroplasticity for Blepharospasm Facebook page. I can text from Messenger. whatsapp.com/channel/0029Va5BrKqKWEKkaXfhhN2Y

[@blepharospasm-myjourney]

Join the telegram channel: t.me/BlepharospasmMyjourney

[@monicamurishwar5186]

In my case I have more spasm when I try to sleep or meditate.Did you ever feel that? How to tackle that?

[@blepharospasm-myjourney]

That’s the mind monkey playing the trick of taking you away from meditation and not letting you sit still. Continue the sit-still-to-meditate or relax and eventually it’ll go away. Mind will understand it has nothing to do but focus and get better. Think of Dystonia-affected-mind as a toddler refusing to listen and act.

[@blepharospasm-myjourney]

@monicamurishwar check out the latest video on relaxation and meditation

[@monicamurishwar5186]

@@blepharospasm-myjourney I will try this during meditation.Hope for the best

[@Akr.2001]

Mam can i use homeopathy my left eye twitching since 10 day because without any reason my face swelling 30 day before and now days mera face phle se sudhar gya hai lkin eye me twitching hai kbhi kbhi

[@blepharospasm-myjourney]

Hari om I have not tried or cannot comment on if you should take it. Sorry about that. All I'm saying is, in my opinion, we all need medicine for a short period for recovery. But not for the rest of the lives.

[@blepharospasm-myjourney]

Join the telegram channel: t.me/BlepharospasmMyjourney

[@nehajoshi878]

Hello mam Have u taken any medicine to relieve the symptoms.....my neurologist suggested me anxiety pill and nervit gsr....

[@blepharospasm-myjourney]

I started with the calming down anxiety pills which made my condition worse. But that’s me. I couldn’t handle the pills. So i chose a safer technique of meditation and relaxation

[@nehajoshi878]

@@blepharospasm-myjourney thank u mam.. Actually mam I am suffering from early symptoms of blepherospasm...like supraorbital nerve fasciculation around my eyes.can it be better with meditation and relaxing techniques without any medicine????

[@blepharospasm-myjourney]

This is totally stress related and medicines do not help in any way. Trust yourself that you can get better with only meditation, keeping calm and relaxing completely. At any time of the day, you should be relaxed and not in anxiety. Even in an earth quake, you should be able to stay calm and think what can be done. This is difficult but possible for stronger minds. So keep meditating and start relaxing. You’ll get better soon.

[@nehajoshi878]

@@blepharospasm-myjourney thank u mam...talking to u gives me positive vibes..... actually mam I have severe dry eyes..that leads to blepherospasm....dr says..

[@blepharospasm-myjourney]

Dry eyes comes from excessive phone usage and computer screen or tv watching. Cut on these. And start on using a eye drops for dry eyes. You should be good in a couple of months.

[@moumitakargupta5170]

Can u please share one excercise video specially for oral dystonia. My 5 years girl is suffering from severe dystonia. And recently this facial attacks are started. When she gets the attak she can't shut her mouth. It's so painfull. Please help

[@blepharospasm-myjourney]

What are her symptoms

[@BharatMalashiSaud]

Please make videos for writers cramp also

[@blepharospasm-myjourney]

Hari Om Please share your symptoms. I can share my thoughts.

[@junaidakhter8699]

​@@blepharospasm-myjourneyin writers cramp there's involuntary extension and flexion of fingers only during writing.. How to completely recover from it...

[@blepharospasm-myjourney]

Hari Om After 1. Breathing, 2. Relaxation and 3. Meditation, sit in the same place calmly and quietly and try to open close open close fingers. Repeat every day after meditation. This build the nerve path connections and slowly gives you control over your fingers. And there’ll come a time when if they open involuntarily, you will successfully be able to manage them. Do it as many times as possible without using force. Meditation helps do this calmly with less force and ease.

[@junaidakhter8699]

@@blepharospasm-myjourney u didn't understand my question... I dont have any problem with my hand, only it triggers during handwriting,, it get involuntary movement with hand writing only,, I can do everything norm apart from handwriting

[@blepharospasm-myjourney]

Hari Om I know and understand. For Blepharospasm, sometimes we don’t have any problems when we sit alone. But spasms are triggered only when we are talking or in bright light or eating etc. similarly, the same exercise I mentioned above will help you get control of the fingers while writing. Start with open close of fingers and slowly add writing slow and small with light weight as an exercise