Early onset Parkinson's

Shamsa is a 29-year old young mum with Parkinson's. In this six-part series, she talks about what having the condition has meant for her and her family.
Shamsa talks about religion and Parkinson's • Religion and Parkinson...
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[@BiornBear]

I’m 48 and my own family look at me like I’m making this up eventhough I was diagnosed with Parkinson’s and they have seen the DaT scan report. It’s really frustrating when people don’t believe you when you can’t help it. 😢

[@jareno5496]

My dad was diagnosed with parkinsons in his early thirties, just before I was born and had to move into a care home when I was 2. Its been so upsetting to see how it affected him, people use to make fun of me for it and now as a 19 year old I'm terrified of having the same fate. Thank you for raising awareness about the reality of this illness

[@vickytravers3937]

parkinson's is rarely passed to children. im a parkinson's nurse and out of 600 patients i so very rarely see it

[@elizabethrose4487]

I found your videos incredibly inspirational and warming. My boyfriend has early onset Parkinson's and he is 31 now. He has had it since 2010. He is progressing through the medication stages for treatment but it is strain for both of us. Adapting, learning to live with it, seeking treatments that improve his quality of life. If you have any tips and advice for living with Parkinson's as a young woman and treatments that have helped you I would be so appreciative. It is very hard being young with a condition that is associated with old people. Please keep making your videos with your inspiring attitude to life with Parkinson's it is so uplifting to feel we are not on our own with this. Thanks, Lizzie

[@parkinsonsuk]

Hi Elizabeth, glad you're finding our videos useful. For living with Parkinson's as a young woman, we recommend checking out Emma Lawton's P365 project kzbin.info/door/9E0F9eSoW5eA83YnfWszhQ

[@madarathebigboss23]

Hello ! What was your boyfriend first síntom ?

[@jameshunt5316]

Please, what was the first year like for your boyfriend? I am scared I may also have Parkinson’s.

[@gamikeproductions4143]

I was 35 year old, 20 year ago, when doctor told me that I had parkinson deasease. At the begening i fealt like you , uncontroled mouvment... 2 years ago , I had the surgery ( DBS ) Deep Brain Surgury. And I feel a lot better now, i would say that I feel around 80% beter than itwas before, especialy in my condition (ON,OFF) NOW IT IS CONSTANTE AND REGULAR. At the beginning it is long before they find the medecin (cocktail) for you. They have to try different pills , the quantity, etc. I wish you a lots of nice things , as your baby, to help you, day by day, to cross over it, COURAGE, stay stronge.

[@just.8797]

Hey how have you been lately?

[@bettyblue101265]

I have had the pleasure in meeting Shamsa in person and I concur with everything she has said in these videos I was diagnosed at 47 so a lot older than she was but like her I don't fit the stereotypical mold of the public's perception of a Parkinsons suffer that does not make us frauds it makes us unique.

[@Rotorqueen]

You are amzing. I love your video !!!! Yeah people who dont have it dont get when ur on and off and dont understand fluctuations. I was having symptoms before my 50s. Got diagnosed at 53 on my birthday. I'm 62 now. Thank you for your hard work in posting the video I look forward to more......monica

[@jenniferlim2250]

U go, Gal!! Never give up! 👍🙏♥️

[@funkyflights]

Such a pretty lady, and strong 💪 keep up the fight !

[@woodysmum4471]

I've seen a lot on medicinal marijuana controlling jerking and tremors.

[@Letik3x]

i hope one day we can find a cure for this disease.

[@danielprose5878]

And please find a cure for RLS too.

[@ashlax]

God bless 🙏 🙌

[@uthpalagodakanda6605]

Hi Shamsa, now how are u?Hope u are still doing good.l am Uthpala.living in Sri Lanka.l got parkinsons when i was in my 15.Now l am 48.yes Shamsa over 33 years.When comparing me you are lucky .well ...l have to stop typing...my hands do'nt let me to do .l will wright you other time .God bless you Shamsa!!

[@josefaarroyo7377]

I have the same problems with my feet the way i can kind of slow down the movements by deep breathing and relaxation

[@johnnovick1643]

Did you ever try or consider trying propioception exercises to strengthen the mind body connection ?

[@stephanierising4368]

Ty you’re awesome.

[@உலகத்தமிழன்-ய8ச]

Hi u sffer parkinson's pls help me out

[@leeroy14r60]

iam 16 and i only have postural instability, i donno if iam lucky or worse.

[@nooralshehabi5487]

Do you mean that you have parkinsons ?

[@leeroy14r60]

@@nooralshehabi5487 Yes but iam not sure, iam might have dystonia but i take carbamazepine and it works like magic for like 3 days or soo, i will go to i specialist soon to take a brain scan

[@nooralshehabi5487]

I have been noticing some twitching and tremors in my hands and legs for about a year. And I went to a neurologist two weeks ago and when I asked her if I have pd she told me that I dont after doing some tests. I still think that I have juvanile pd that is undiagnosed.( I'm 17).

[@tylerpool5464]

@@leeroy14r60 try and be easy on yourself and take your life day by day. Makes it a lot easier

[@indiegamedevelopment]

@@nooralshehabi5487 same ☹️☹️☹️

[@vandanmodi4616]

I am in same both. I am 65 year old. My Parkinson’s is ok I leave nj .

[@samjhanadevkota8520]

Hi how u r doing now I think u feel better when u got this disease after having baby because I ask u I have mouth movement after having baby some time my shoulder shake my body shake while sleeping I don’t know some say tic I can’t care my baby I wanna know about ur health condition