EDS & HSD Top Tips & Hacks || EDS & HSD Awareness Month 2021

[@ALLIKA9231]

Hack: Squish mellows so cute and also helps you to have your body surrounded by something super soft when pain is being awful!

[@melissafarrugia9531]

Oh my! That hair dryer stand! Thanks so very very much

[@robinhahnsopran]

I'm so amazed how we all prioritize different things! The best part about that is how varied these tips are - what a useful vid! Thanks everyone for sharing what's important to them in their day-to-day life! 💙💙

[@ChronicallyJenni]

I loved how much variety there is, I think it's so important! And thank you for getting involved and being so brilliant, what you said was something I really needed to hear!

[@alena6734]

THIS HELPED ME SO MUCH Thank you thank you I definitely need to take more care of my body and I am not weak when I ask for help/ let people know how much pain I really am in

[@CherryBlossom-rp7fr]

Brilliant collection of hacks, thank you from a drained & zonked out zebra!

[@JennyCole1988]

Another great video Jenni. So happy to be part of it with so many other amazing zebras xx

[@ChronicallyJenni]

Thank you so much Jenny! great to have you involved!

[@Voldycat]

Im fully taking notes while watching this thank you haha

[@bevishhh]

Literally 😅

[@jackiem9423]

Same!

[@ChronicallyJenni]

Haha I love this! x

[@Loveandkindness33]

I have hEDS and Cranialcervical Instability. What’s helped me the most for joint/muscle pain is the cream called, Penetrex. Also, I’m taking a non-opioid medication called, Low Dose Naltrexone at 3.5mg. It helps significantly with inflammation, pain and autoimmune symptoms. I highly, highly recommend you talking to your doctor about this medication. Also, a pregnancy pillow is essential! My ribs sublux a lot! Like 3-6 times a day. What has helped me put them back into place is a dense foam roller. I roll my back on it and my ribs go back into place with far less pain. For on the go sublux’s, my PT taped together 2 tennis balls 🎾 to look like a figure 8. I keep this in my car and put it on my back where needed and press against the car seat and my ribs are popped back in!

[@lorahargrove9710]

Jenny thank you so much it was wonderful love the hacks and we'll try some of them everybody looks great thanks again have a great weekend Miss model.!!!🦓🦓🦓🦓🦓🦓🦓🦓🦓🦽🦼🌞⛱♿💐🎈🎈🎈🎈😇😇😇😇😇👗

[@ChronicallyJenni]

Thank you so much and to you!

[@jackiem9423]

Thank you for this! It was awesome. I took notes. 🦓

[@ChronicallyJenni]

Really hope it helped x

[@katerego1029]

It’s so wild to hear people talking about exercising and how it helps. I wish. I’m lucky if I have the energy to go for a walk and if I walk too long I’m in pain for days and exhausted.

[@GreyLynn01]

Is it not “normal” for your arms and stuff to hurt when doing your hair? (For reference I’ve been doing my hair for about 10 years…)

[@mlapointej]

Everyone's always really shocked when they see how I can French braid my own hair.

[@kayleighweldon7855]

Yall im feeling hella bummed rn about all my diagnosis’ ngl