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My name is Lara Bloom and in April 2011 I am attempting to walk the London Marathon. The reason I am walking it is because I suffer from Ehlers-Danlos Syndrome, a connective tissue disorder that affects everything in the body, from ligaments, to tendons to even organs.
My journey is being filmed to make a documentary to try and raise awareness for the condition so that we can prevent misdiagnosis and misunderstanding.
Become a member of EDS UK today and help us make our invisible, visible.