EDS UK Documentary Teaser

My name is Lara Bloom and in April 2011 I am attempting to walk the London Marathon. The reason I am walking it is because I suffer from Ehlers-Danlos Syndrome, a connective tissue disorder that affects everything in the body, from ligaments, to tendons to even organs.
My journey is being filmed to make a documentary to try and raise awareness for the condition so that we can prevent misdiagnosis and misunderstanding.
Become a member of EDS UK today and help us make our invisible, visible.

[@PeoplePaulaDixon]

Lara, I'm the girl who came up and hugged you on the podium tonight. I was sorry to run up there, but I was just so overwhelmed by what you have done that I couldn't not hug you. You are unbelievable - not just for the physical feat you accomplished, but for everything you're doing to get the word out about EDS. On behalf of all of us who suffer without a tangible way to explain this syndrome to people we meet, I cannot thank you enough for making this film. YOU ROCK.

[@missmodern]

Oh, I can't wait to see the documentary!

[@pchamney]

Princess and the Pea! Of course I'm not the only person to make the connection. I hope very much to see this documentary. We need more awareness of EDS and hypermobility. Misdiagnosis & lack of diagnosis can make life harder in so many ways. Thanks for taking on this project.

[@doglovr13]

Hi Lara, wonderful documentary. I'm eagerly awaiting its completion and airing and hope I'll be able to watch it here in America. I was diagnosed last August with HEDS and my sister was diagnosed three years prior with HEDS. The way you describe the pain of EDS is completely true. Thanks for helping us get the word out there :) Hugs and love from a fellow zebra

[@kariaulrich]

Thank you for bringing awareness of EDS!

[@rnshi]

thanks for making this video. I think i may add it to my fb to help spread awareness. i was diagnosed in may this yr at 20. it's really difficult to get people to understand and you answered so many questions that people often have, in just this video alone. hope your documentary gets lots of attention! :) best of wishes!

[@taniatabu5026]

This looks like amazing. Can;t wait to see the full movie

[@karrotperry]

I was diagnosed w/ EDS type 3 when I was 29 yrs old, I was as a common place occurance w/ this disorder was misdiagnosed a good 10 yrs before w/ someone thing else, I wish there was a more awareness/understanding w/ this disorder, Thank you for educating others & bless your spirit :)

[@Blossombud777]

I'd like to see the dvd. I live in NY and respect this endeavor very much.

[@shannongreenwell1278]

Thank you for sharing your story with me. I , too have EDS and I totally can relate to your experience. I have the Classical type.

[@cammieksandi]

even Just the beginning portion of this documentary teaser says so very much about the lack of awareness in the world about EDS or even connective tissue and how it affects one's body in general. I can't wait til u raise enough money to finish your documentary, I'm crying so much though just with the trailers so it'll b tough to watch. I just want to b sure that u r ok in the end I felt so worried at the thought of u running a marathon and to see u exercising so very much! Laura your spirit to get the word out and do what u can to find ways to inform others and help others with EDS really inspires me. Thank you!

[@AishaApps]

I was diagnosed with EDS type 3 from an early age, never saw it as a problem as no one could really tell me much about it, i am 21 now and the pain and problems are increasing, i have been desperately trying to find something to show my friends and boyfriend as they do not understand and the information out there is so hard for them to digest and understand, this documentary looks great and i am sooo pleased someone is making one like this, when is this going to be on air?

[@MzFirezone]

Wow, thank you so much for doing this. I myself have EDS Type 1 and even with a diagnosis help for us is non existent. Understanding is even less.

[@TheMichelle158]

My child has the same condition. I so wish people understood. Its heartbreaking to watch him suffer.

[@EDSUKVideos]

Hi Paula, thank you so much for your support and it was so wonderful being able to share it with you all, the warmth and kindness you all had in the room was inspiring x

[@luckylucy101011]

im 13 i was diagnosed with hypermobility 2 years ago and cant get treatment, this trailer literally made me cry :'( i give hope to everyone with eds , be strong

[@LaraBloom]

Hi Stacy, it is not quite finished yet, everyone is a volunteer working on it so it is taking time! As soon as it is ready we will let everyone know where you can view it

[@EDSUKVideos]

Hi there, As soon as we have a channel and date I will let you know, thank you for your support. We will hopefully then have it on DVD to sell, Lara

[@AnastasiaBlue1230]

Is this documentary available anywhere to purchase or view? I have EDS and POTS and I think your story would really help me explain my condition to others (and help reassure me that I'm not crazy) Thank you!

[@littleyellowfish85]

this was made 2 years ago, has it been done as can't find it anywhere?

[@Wolverineeeeeeee]

Is the documentary still coming out? I would love to see it. I have EDS, POTS, IBS, IC, and now I'm being diagnosed with another life threatening disease called Mast Cell disease. Thankfully Bynadril still works for me but I'm going to have to carry around an epipen for the rest of my life. I still wonder why EDS and so many other diseases are related. I guess the old saying when it rains it pours applies to me.

[@EDSUKVideos]

@ElleWoods2011 It is called Breathe me by Sia

[@artgrl73]

so glad i found this! I have been diagnosed EDS III. I have a lot of problems with my back and am trying to strengthen my muscles without pulling things out of alignment all the time. Any thoughts or ideas for exercise? i've tried low impact but the more i walk my hips and back suffer...... i've tried alot of things and it gets exhausting. thanks for posting and sharing your story -best, mel

[@EDSUKVideos]

@scottssister1 Hi there, I will update everyone on the channel and date as soon as we know, if it doesnt make it out to the states we hope to be able to do it on DVD, thanks Lara

[@Shoningphotographyrocks]

Is there somewhere I can follow your progress on the completion of your movie? I am in the US and would love to see it.

[@melloyellow5598]

Anyone know where to find a link for this film?