EHJ Today - Left Ventricular non compaction

European Heart Journal - EHJ Today - Prof. T. Lüscher interviews Prof. F. Tanner on Left Ventricular noncompaction. Cardiology Update Davos 2015.

[@abubakarmuhammadsaid3244]

I have just been diagnosed with it. I have no idea what is it! I am confused and panic!

[@recon0x7f16]

how did u find out u had it , did u have symptoms

[@karim8516]

Same.I am 19.I do not want to die.

[@abubakarmuhammadsaid3244]

​@@karim8516 Trust me, you are not going to die any time soon, just follow the instructions from the doctors. Eat healthy, stay away form tea and coffee and junk food, and do regular exercise. Smoking and drinking treat them as your enemies. You will be perfectly fine for many years to come.

[@abubakarmuhammadsaid3244]

@@recon0x7f16 I couldn't breath properly, I always had to catch up with my breath.

[@karim8516]

@@abubakarmuhammadsaid3244 But my EF is very low.Under 14% with medication.I definetly need a transplant and I an afraid of it.At least I got a ICD implanted yesterday.I sadly am not allowed to do any exercise because my heart rate reaches 190 bpm easily just when I sit and the ICD is put on 200 bpm because I could not handle more.I thank you for giving me advise

[@roniaaime2976]

Can I do physical sports?? I legit want to go into the military and other jobs are boring

[@anyaw340]

I have this condition and was advised against doing anything besides maybe a brisk walk. The military likely wouldn't accept you with this kind of condition, unfortunately, if it's the US military. Military service with this condition puts you at high risk for sudden death.

[@recon0x7f16]

cant some people have this with no symptoms , if so how would you know if you have lvnc. or just wait till something happens?

[@anyaw340]

You definitely can. I'm 32 and just found out that I have it. My doctor saw that my blood pressure was high and she asked about my family history. I told her about parents with high blood pressure, and a sister who died of dilated cardiomypathy. She sent me to get an echocardiogram. That's when the LVNC was discovered; confirmed via Cardiac MRI. Ejection fraction is 36%. I have no symptoms at all. I did genetic testing, and it turns out I have two genes associated with this condition. I went from being on no medication ever, to now being on Carvedilol, Entresto, and Spironolactone.

[@anyaw340]

The only way to really know is to have an echo or Cardiac MRI done. If you're concerned that you may have it, I would suggesting bringing it up to your primary care doctor so that you can possibly be referred to have the exam done. With this condition, the something that happens could be a major event that kills you. That's the path I was headed down because I had no warning signs that told me to get checked out, and no one ever told my family that my sister's condition might be genetic.

[@recon0x7f16]

@@anyaw340 ty

[@bigcartoonyIIV]

yes you can, I went my enture life until i made 34 when my winky didnt want to tget hard, and i went to the gym and passed out. I ended up getting a ekg, and it read normal. That echo told it all.

[@maja4modic]

I have it 😎☺

[@3dlearningnoob348]

Maja Modic me to I am at the end stage. I need a new Heart.

[@reggiejmusic]

god bless you. I have LV non compaction as well. idk what stage I am in, but I was put on medication last year. I had this condition for a while but I never knew it. its very interesting to hear this info.@@3dlearningnoob348

[@ac.stacks]

Reggie Jackson me too

[@jackschwartz1309]

Hi, I might have this condition my echo noticed a very slight area that could be tribulations. Going for MRI soon. what are your guys prognosis?? Also were you diagnosed just by echo??

[@jackschwartz1309]

Hi, I’m 21 had minor palpitations when working out. Spoke with my cardiologist today. He thinks it’s very unlikely I have LVNC. Most likely minor infiltrate or nothing of concern. Still waiting on MRI Glad your doing ok. What was your symptoms. What prognosis did they give you?