Elevating the Patient Voice: Perspectives from the Fabry Community

Perspectives from the communities we serve have always played a central role in shaping our work to deliver innovative solutions for individuals and families affected by rare diseases. We would like to thank all the resilient members of the Fabry community whose valued support has helped achieve another important milestone for people living with Fabry disease in the U.S.
In this video, hear insights from Jack Johnson, Founder and Executive Director of the Fabry Support & Information Group; Jerry Walter, Founder and President of the National Fabry Disease Foundation; Giacomo Chiesi, Head of Chiesi Global Rare Diseases; and Stuart Siedman, Head of Patient Advocacy at Chiesi Global Rare Diseases.