Elin has an EEG for the first time in 6 years

  Рет қаралды 7,014

ParentXP

ParentXP

Күн бұрын

Elin has an EEG for the first time in 6 years. It is time again, to see if her seizures show up on a trace now. Last time she had an EEG her seizures were such that they didn't register on the EEG trace.
It was a triggering experience being back at L&D Hospital and I didn't like having to try to trigger seizures for the technician to have something to record. Elin took the experience really well though.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
Instagram: / parentxp
Twitter: / parentxp
Facebook: / parentxp

Пікірлер: 11
@samellis930
@samellis930 6 ай бұрын
You are amazing mum
@JeanClaflin
@JeanClaflin 6 ай бұрын
Your girls are so beautiful and I wish you all happy Easter
@Jayne-br1vn
@Jayne-br1vn 6 ай бұрын
Elin is so beautiful. really sweet how her carer interacts with her. Seems like they have a strong bond
@jemmabrown1988
@jemmabrown1988 6 ай бұрын
Tova (sorry if I spelt that wrong) that’s the nature of PTSD it sneaks up on you and something hits you sometimes when you least expect it. I have PTSD from medical trauma too.
@emilywright5811
@emilywright5811 6 ай бұрын
❤❤❤
@Applemaybay
@Applemaybay 6 ай бұрын
Good luck with your results Elin I hope you get some answers soon that will help you
@eileenbogle3938
@eileenbogle3938 6 ай бұрын
The EEG glue is to die for 😂😂😂
@belindataylor2389
@belindataylor2389 6 ай бұрын
❤❤
@belindataylor2389
@belindataylor2389 6 ай бұрын
I hope Elin's EEg went alright Tova x
@Meemagolding
@Meemagolding 5 ай бұрын
Elin has GORGEOUS HAIR ❤ SO BEAUTIFUL
@abigailmagiera9938
@abigailmagiera9938 6 ай бұрын
🤲😃💗💜🤲
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