Elin's care kit - 5 things to add to the emergency kit

[@itsjustwaterweight978]

Elin loves her music. She is an old soul And I love it. Very smart with ear for good sound and jokes too lol. I haven't watched ur channel for awhile I missed u guys ☺️

[@ParentXP]

I'm glad you're back 🙂

[@esthermartin768]

Love seeing sweet Elin and her beautiful smile 😍

[@ParentXP]

Thank you Esther

[@maddielangdell6496]

You should get Alice to customize your wrist I love the emergency kit bag we are massive Star Wars fans ourselves where did you get it from

[@ParentXP]

I got it from Amazon, if you look at the links in the bio you can see it, or similar

[@ParentXP]

link in description, sorry

[@throughsusanseyes5773]

ok thanks i just dident know

[@ParentXP]

You're welcome

[@samanthallangille5024]

I'm glad you are starting to feel better I know it's a struggle to ask for help when you're used to being able to do it all by yourself I had a quick question I notice that her chair headrest and backrest are different in these videos lately did you get a complete new tear or just a different seating system it looks more supportive

[@ParentXP]

Hi Samantha, She has had her chair adjusted a bit but new gear hasn't arrived yet. She is about to get a new headrest and other bits and bobs too.

[@geraldinewademan1887]

I have tube going to my bladder and all the thing you are buying you can get from your doctor ( water gloves wipes and anything you need at the same time you get Elin medisons you should have been getting them all the time hope you do not mind me telling you this l just think someone would have told you this love watching your lovely family

[@ParentXP]

Thanks Geraldine, I'll ask the community nursing team.

[@geraldinewademan1887]

@@ParentXP did you do as l told you you shouldn't have been getting everything all this time getting wet wipes nappies antibiotics hand gel all the things you need l do not think your nurse is doing right by you you should not buying anything you you can get big bottles of E45 cream and incosheets to change her on or on bed or wheelchair ask your nurse for all you need

[@laibahhussain1694]

Evening to you all

[@tinabinaification]

Can they give Elen a Zofran tablet that just goes under your tongue and dissolves for vomiting and nausea and I was born with a type of c.p. And have severe stomach problems also and severe acid reflux and one of the things that helps me is Zofran and pancreatic enzymes they don’t know why my stomach is so bad they think it’s from not being able to walk but they’re not really sure what I in it

[@ParentXP]

Thanks Tina, I will definitely look into this. They don't know why Elin's stomach is so bad either but her gastroenterologist said there's a lot of muscles that have to work in the right order and the right direction for food to move through the digestive system. As Elin has so much brain damage, it may be that her nervous system isn't able to give those muscles the right instructions.

[@belindataylor2389]

We just call it the big black clip..

[@ParentXP]

Ha! Yeah, I may do that too 😅

[@belindataylor2389]

@@ParentXP hahaha 🤣

[@laibahhussain1694]

She got school tommorow then

[@ParentXP]

This was filmed on a school night.

[@janabrown6608]

Carabiner.

[@ParentXP]

Thanks

[@throughsusanseyes5773]

Just wondering why does she have a suction machine

[@ParentXP]

Because she's at risk of choking on her reflux / vomit

[@throughsusanseyes5773]

Carabena

[@ParentXP]

Thanks

[@alexthesaintbernardlover5938]

Hey guys

[@ParentXP]

Hey Alex

[@laibahhussain1694]

Good night

[@ParentXP]

Good night

[@laibahhussain1694]

Hi

[@laibahhussain1694]

Hello how are you