Enterocutaneous Fistulas: What do we do?

[@barron4755]

I lost my Young Wife after she developed a Fistula after Colon Surgery for Adhesions. She lay in an Isolation ward for almost 3 Months and eventually developed Sepsis and Pulmonary Embolisms. I cannot stress enough how serious a Fistula is, and how difficult it is to treat. It tore my World apart and I pray that nobody ever has to endure what she went through. She was a Beautiful Person, and I miss her with my Entire Soul.

[@piplupboop]

I also lost my mom who had stage 4 cancer and developed this fistula 💔. She was sent home with hospice care and was doing ok the first two weeks. But the third week she was unable to get up from bed, unable to tell from reality and she kept asking same questions even though I already answered her a few times 😓. She was unable to get chemo since she had low potassium and hemoglobin levels to stop the cancer from growing and past chemo made her skin thin plus more other health issues as well 😞 made it impossible for a surgery 😢. She kept saying to the doctors 3 months prior that she had a pain in her stomach and they kept saying that it was from the intense colon surgery they did a year ago and she had to live with it 💔. It was awful seeing her health deteriorate so fast. Even 2 months before her passing she was able to walk just fine. I miss her very much and I’m sorry for your loss as well. :(

[@barron4755]

@@piplupboop - Thank you so much. I am so sorry for your loss. I struggle with it everyday. I still cannot comprehend how someone can be so Healthy and then be so bad within a few Days. A Surgeon later told me that "There is still so much about the Human Body that we don't understand". Just such a pity that so many People lose their Lives due to what we don't know.

[@judeemcdonald6515]

Barron - I think I have one of a ECF, eterocutaneous fistua My surgeon, ignored my pleas for help on my pain, knowing my surgery was botched. He then, wrote me off, abandoned me, after he botched my surgery, so it would not ever be known, what happened to e, leaving me doctorless. Then, changed my medical records to refect lies, untruths. He even changes, fasifying my labs to reflect normal readings, as well as some of my UA's, showing infection. I still suffer 3+ yrs. out, unhelped. I cannot find a Dr. to help me. No doctor wants to share "dirty" hands, with another doctor, esp. a surgeon, who messed up. Besides, in teaching hospitals, the group together, even sometimes with administration, to cover up errors. It's known!!! {Buyer be aware! ...Look Out!!!} My ❤ out to yr loss of yr beautiful wife. I must Trust Christ, Every Day!!!

[@justinaigwe8017]

Thank you so much Nutritional Optimization is the sure goal

[@sarahmujkanovic5260]

I am an ibd patient that has a harder form of Chron's and i had developed a perianal fistula and i had surgery so it went away but they realozed i had several fistulas in my stomach ( small intestines) and then i had a resection of all the fistulas and actual problems. After that i had a collection in my abdomen and they didnt know why it appeared there so i had my third surgery to remove the abscces. After that i was discharged home but after about 20 days i started to have problems with my op wound. Long story short it opened and nobody had realized that its a fistula and not just an infection. I literally lived with it for 8-9 months and i gained weight it didnt really stop me from living a normal lofe besides the cleaning and changing gauzes and sometimes pain but i felt fine. After they realized it was a fistula i had to go back to my surgeon that had operated me in the fisrt place which is a lot away from my home but i went. It was a fistula and he said that he will do a surgery where he is gonna drain it, clean and basically remove it. However i was discharged home after 10 days and everything was fine until like 5th day after i was discharged like some redish liquid started to some out of my wound. We went for a check up where he opened the wound and said that it was a high chance that it is just an infection. However i knew that literally after 15 days od my operation i developed another fistula because i had gas coming out of it and when i would hold myself from going to the bathroom basically shit came out of the wound. I know. Ew. They didnt let me eat or drink for 11 days in hopes that it will close but itself but obviously it didnt so i went under another surgery and this time he had to do a resection then cleaned up the fistula and canal and then closed me. Right now i am in hospital recovering from the surgery and i am hoping that this time it is really gone. I wanted just to share my story because its been really hard. Forgot to mention it all happened from may 2021 til this day. And im only 16 years old.

[@cupcakevideos5332]

I am in this situation can you advise me?

[@VanNguyen-rr5pg]

me too. I have a enterocutaneous fistula. The shit keep coming to my wound. The doctor advised me to wait for 6 months to one year before he can do another surgery. Hopefully I could survive until that day. What should I do now?

[@kmokatz]

You all need to seek natural treatments and look into a gut healing elimination diet and supplements. Stop with the doctor run around and take your health into your own hands!!!

[@shirleynandwa3592]

Been a victim after I had a cs 2yrs ago!! It was. Hell on earth! BT after much encouragement I agreed to a corrective surgery en I thank God en the webuye Hosp surgical team for giving me back my self esteem!! Thank you lord!

[@02Huntet]

my mom isn't strong enough for surgery, her skin too thin and now dealing with this bag glued to her stomach and we don't know what kind of Dr to get her into after (2) surgeons dont care about her nutritoinal care or wound mangement, my mom is worsening

[@barron4755]

Whats the latest on your Mother?

[@avianphlu5397]

I have a very low output fistula post operative to an Ileal Rectal anastomosis at one of midline laproscopic wound openings. Happened about 12 days post operative. Since NPO and TPN therapy with IV antibiotics I am home on low impact diet therapy with lower left quadrant drain measuring flushes of saline in and out. 30 cc in and 30 cc out. Fistula output is barely measurable but still out gases a bit. Dr follow up in 4 days. Albany Medical Center.

[@samrajan2372]

hello sir how are you doing now? hope things are better and you are back to good health!

[@samrajan2372]

@avianphlu5397

[@lam075000]

How are you doing, sir??

[@josephossai9707]

Nice presentation, but in high output fistula , if surgery is delayed for 3 months or more, won't the patient get wasted and probably die before surgery is performed?

[@elisabethking9]

Joseph Ossai I had two fistulas. Had surgery after 4 months. Lost 30 pounds.

[@MrRahuludasi]

Hi Elisabeth, I have some questions for my father regarding an enterocutaneos fistula and a late surgery, could I please contact you? My email address is [e-mail]. thanks.

[@whisperingsage]

Well if you looked at the mortality figures at the end, yes, they are high mortality. I haven't been blessed to lose any weight ( I have gotten fatter) but it's common for some. I have read some NCBI studies that said the protein intake needs to be 1.5 to 2.5 grams of protein per Kg of body weight, . That's a very hard amount to take. It also says that less than 1600 calorie diets increased mortality to 40%. SO yes we are higher mortality.

[@michelleday3105]

I had a fistula from C-SECTION error. In 6 months i lost 122 pounds. Some of which was pregnancy weight. There was concern that i didn't weigh enough for surgical repair. I found a wonderful surgeon that was willing to do the repair. It is mot uncommon to be tube fed if patient is stable enough for a pic line. I have no words to describe the pain. My wound was too big to use any type of bag. Therefore, all the acid from digestion is in constant contact with skin... until the skin is gone... completely

[@02Huntet]

@@MrRahuludasi did you get any answers, my mom has the same and she is NOT strong enough for surgery, due to thin skin and other health issues. The (2) MD surgeons treating her in wichita ks dont seem to really care and shes getting worse-- so trying to figure out what kind of Dr to go to now.

[@HealthPlus-TV]

Great education. Thanks Dr .

[@whisperingsage]

My doc couldn't smile or relax with me until 4.5 months in the hospital when she was pretty sure I was going to live. This video could use better more graphic pictures, I don't think the speaker had actual experience with this. She was kind of a rote speaker parroting some papers.

[@tokelot.tsotetsi6191]

Thank You

[@whisperingsage]

Power point too tiny

[@whisperingsage]

Well that wasn't very encouraging.