I have a big decision ahead of me! What is DBS? • Deep Brain Stimulation... Instagram: / jeremymac76 Facebook: / jeremymcdonaldmusic
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@stewea579 ай бұрын
Jeremy, I would say do your research and write all your questions down for your consultation. It definitely is scary when you start out but really the surgery is not that bad. As you said everyone is different, I found after researching and talking to the surgeon I couldn’t wait to have it done. I’m 2 months out after my surgery and I have had 3 programming sessions. No major issues so far. I’m very happy I had the surgery. I was not tremor dominant, but had bradykinesia and stiffness. Also it improved my sleep although my surgeon said he doesn’t know why. Everyone has their own decision to make I would be happy to answer any questions you have.
@JeremyMcdonald9 ай бұрын
Thx, Stew! That is very encouraging!
@ricksuvanto50099 ай бұрын
If this is right for you , you will know when the time is right. Best thoughts.
@JeremyMcdonald9 ай бұрын
Thank you, Rick!
@SDWP9 ай бұрын
Try not too let it bring you down or make you anxious. All that worrying will just add more stress. Try to focus on the positives. You’ve got your consultation scheduled, you have an amazing wife that supports you, and you have really cool friends 😉 you can lean on. I know it’s easier said than done…but it helps to shift your focus. I hope you have an amazing day and do something fun!
@JeremyMcdonald9 ай бұрын
I do have some awesome friends!😊 Thx for the good advice, Michele!
@kendc47259 ай бұрын
Best to you and your family as you explore the DBS option.
@JeremyMcdonald9 ай бұрын
I appreciate that, Ken!
@ParkinsonsWigglesProject9 ай бұрын
Thank you for sharing your thoughts and fears about DBS! We can make the right decisions but it doesn’t mean that they are not still scary. Keep us posted! ❤
@JeremyMcdonald9 ай бұрын
Will do, Jennifer!😊
@johnp.26149 ай бұрын
Over last month I had my consultation, Capsit (medicine on-off) test, and neuropsychological. The neuropsychological seemed very focused on the question of how I would feel if the DBS results don’t meet my expectations. I am also in screening for a gene therapy trial involving a surgery much like DBS, but with gene infusion instead of probes. Good luck , Jeremy!
@JeremyMcdonald9 ай бұрын
Thx for the info, John! Keep me posted ✌️
@steveswoodworking25049 ай бұрын
Best of luck! Yeah, that sounds like something to put a lot of thought and research into.
@JeremyMcdonald9 ай бұрын
Thx, Steve!
@adawehi559 ай бұрын
Take your list of questions and concerns. Good luck. I hope you get all the answers you need.
@JeremyMcdonald9 ай бұрын
Thx, Karen!✌️
@tomrio99149 ай бұрын
Stay strong my friend. My Dr. gave a five year window after which they wouldn’t cover it due to age. I want to get it done so I can enjoy my family. I will see the Dr. on the eleventh. Will keep you posted.
@JeremyMcdonald9 ай бұрын
Please do!
@shsharrell92678 ай бұрын
Hey Jeremy from Springfield MO
@JeremyMcdonald8 ай бұрын
Hey, Sherry! How have you been?
@shakinginmyboots19 ай бұрын
I am curious myself thank you for sharing your journey. Lots to think about😊
@JeremyMcdonald9 ай бұрын
Thanks for watching!
@LifewithParkinsons9 ай бұрын
Hey Jeremy, tough decision to make. I do hope that your medical team can help you make the right decision.
@JeremyMcdonald9 ай бұрын
Me, too! Thx, David!✌️
@MyPDDaily9 ай бұрын
I wish you well during this difficult time!
@JeremyMcdonald9 ай бұрын
Many thx!😎
@BaronLane9 ай бұрын
Great luck sir. I had mine done about a year and a half ago. Best decision I ever made.
@JeremyMcdonald9 ай бұрын
That’s awesome! It gives me some hope!
@enidday53969 ай бұрын
I have the same thing going on, too much dyskinesia. I have an appointment with a surgeon later this month. It's very hard not to stress about it.
@JeremyMcdonald9 ай бұрын
Keep me updated!
@enidday53969 ай бұрын
This is truly being between a rock and a hard place.
@robertlidmarck90439 ай бұрын
Backing you all the way, whatever you decide to do.... For me personally DBS does not seem to be a potential treatment since my symptom are less external (shakes, gait, balance e t c). Peace & Love from Stockholm, Sweden.
@JeremyMcdonald9 ай бұрын
Thx, Robert! Always great to hear from Europe!
@kendrapatterson46299 ай бұрын
Hey man, I’d say check it out. It was a game changer for me. I couldn’t walk unaided before my first DBS surgery. And just this week had the other side done, 1 1/2 yrs later. Got my legs back with the first surgery, hoping to get back the ability to write with this surgery. So far so good. 😊
@JeremyMcdonald9 ай бұрын
Excellent! That’s great news!
@wandapetrella74499 ай бұрын
Such a difficult decision... I too question if I should have DBS...fear keeps me... I'll pray for peace of mind for you!
@JeremyMcdonald9 ай бұрын
@@wandapetrella7449 Thank you, Wanda!
@GoProGoalieUzi9 ай бұрын
I'm having dbs on Dec. 6th I think both sides, and battery..all in one surgery which I will be awake for.
@Anthony993559 ай бұрын
Good luck! Interested what your MDS has to say.
@MikeMercury9 ай бұрын
hi jeremy
@JeremyMcdonald9 ай бұрын
Hey, Mike¡
@mdecero9 ай бұрын
Aloha Jeremy, you’ll get there man. Just research and gather more information, you’ll eventually get to a conclusion. There is no wrong answer here. You have to do what you feel is best for you. I’ve been sitting on the fence about DBS for a few years here myself. I’m leaning more towards it nowadays. My meds aren’t working to the point fullest anymore. And I’m having freezing episodes. My only concern is, I’ve had a brain tumor removed in 2015 right after my PD diagnosis. Thankfully the growth was benign. But the thought of undergoing any brain related procedure is still scary. We’ll both get to our next step in this PD journey no matter what. I’ve just got to put my trust in my Doctor. Do something fun today! Enjoy the day, Mike
@JeremyMcdonald9 ай бұрын
Will do, Mike! Brain tumor….😯 That sounds terrifying! I’m glad you’re ok!
@shsharrell92678 ай бұрын
It's a tough decision. You said it best "It's a lot". It's a lot to go through, a person has to feel like going to all those appointments. I'd aak you this, how much do you have to lose? Is your quality of life good enough to not do DBS or wait to do DBS? I will be pulling for you to make the right decision.
@JeremyMcdonald8 ай бұрын
Life is very good, but I am having major problems getting around. I don’t know if I can afford to wait much longer.
@Tom-ls1vi9 ай бұрын
Hey Jeremy, did anybody discuss FUS with you? focused ultrasound?
@JeremyMcdonald9 ай бұрын
That is something that I have discussed with my MDS. Thx, Tom!
@GoProGoalieUzi9 ай бұрын
Go for it! Don't waste these years. They won't do dbs on: someone that is too old, does not respond to sinimet, or has depression.